Blog – All Articles

What Does Scoliosis Look Like with LDS & Other Connective Tissue Disorders?

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20 June 2025

Newsletter: Empowering the Loeys-Dietz Community Through Shared Stories, Advocacy and Upcoming Events

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30 May 2025

Patient Stories of Strength & Resilience

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27 May 2025

Clinicians will be Connecting the Dots at this Upcoming Conference

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9 April 2025

Newsletter: Celebrating Rare Disease Day 2025

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28 February 2025

LDSFC at the 2025 ICOI Conference

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28 February 2025

Choose Your Own Adventure! The Loeys-Dietz Syndrome Training Arc

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5 February 2025

Emergency Preparedness Booklet for Loeys-Dietz Syndrome Families

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20 January 2025

Loeys-Dietz Syndrome: Cardiovascular Complications & Preparing for Surgery

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30 December 2024

Bags, Tags, and (Mis)Identifying the Green Flags

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27 September 2024

An Unhealthy Fixation on Cardiovascular Causation

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9 April 2024

Unveiling the Mindful Solution: Managing Chronic Pain in Loeys-Dietz Syndrome

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3 April 2024

Exploring Frontiers in Genetic Medicine

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11 March 2024

Navigating Family Planning with Loeys-Dietz Syndrome: A Comprehensive Guide

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22 December 2023

Trauma Response to A Life-Changing Diagnosis

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12 October 2023

Empowering Connections

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6 September 2023

Canadian Paediatric Spine Society Symposium

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6 September 2023

Peer Support Groups

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31 July 2023

What does Loeys-Dietz Syndrome Look Like?

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1 June 2023

Higgy Bears: For Kids & Teens with Scoliosis

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1 June 2023

Living with Idiopathic Scoliosis

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1 June 2023

LDS and Allergic Disease

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1 May 2023

Caregivers and Loeys-Dietz Syndrome: Navigate your Journey and Find Support

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3 April 2023

Kimberly and Logan’s Story: Parent of a Child with Loeys-Dietz Syndrome

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14 March 2023

Dr. Cavalle-Garrido: A Champion for LDS Care and Research

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14 March 2023

Amiel’s Story

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13 March 2023

Highlights from the Canadian Spine Society’s Conference

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13 March 2023

LDSF Canada 2023 Rare Disease Day Statement

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6 February 2023

Pain Resources and Clinics for Loeys-Dietz Syndrome

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6 February 2023

In Memory of Justin Fratino

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5 January 2023

Genetics and Loeys-Dietz Syndrome

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13 December 2022

Kristýna’s Story: “The story of an invisible”

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8 December 2022

Hélène’s Story

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8 December 2022

Did You Know?

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6 December 2022

#GivingTuesday

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25 November 2022

Loeys-Dietz Syndrome and Inflammatory Bowel Disease

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1 November 2022

2022 Recipients of the First LEAP Impact Award

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12 October 2022

How to Transition from Pediatric to Adult Care with Loeys-Dietz Syndrome

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6 September 2022

School and Loeys-Dietz Syndrome: Guidance for Families, Educators, and Students

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21 July 2022

Izzy Shares her Life with Chronic Illness

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4 July 2022

Katya, An Advocate for Travelling with Chronic Illness

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27 June 2022

Travelling with Loeys-Dietz Syndrome: Prepare to Reach New Destinations

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22 June 2022

Newsletter: Caregivers and LDS

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5 April 2022

Newsletter: Connective Tissue in the News

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15 March 2022

Newsletter: Chronic Pain in Loeys- Dietz Syndrome

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1 February 2022

Newsletter: The LEAP Impact Award is Coming!

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11 January 2022

An Essential Guide to the Research Around You

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7 January 2022

Newsletter: Kids and LDS

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2 November 2021

Kids with LDS: Get the Facts for your Family

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1 November 2021

Newsletter: LDS: Genetics, Support and More

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12 October 2021

Highlights from HAD 2019

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14 November 2019