News and Events
Events
Latest Past Events
Science in Spain
Barcelona, Spain BarceloneThe Marfan Foundation is collaborating with the European Society of Cardiology’s Peripheral Artery and Aortic Disease Working Group, along with local hosts, Drs. Arturo Evangelista and Gisela Teixidó Turà, to present “Science in […]
Saskatoon Patient & Family Day – Connective Tissue Disorders and Aortopathy
Saskatoon, Saskatchewan 102 Spadina Crescent E, SaskatoonJoin patients, families, healthcare professionals, and researchers for a Patient & Family Day dedicated to connective tissue disorders and heritable thoracic aortic disorders (HTAD), including Marfan syndrome, Loeys-Dietz syndrome, and […]
4th Heritable Aortic Disorders Symposium
Vancouver, BC VancouverThe Foundation is proud to sponsor and support a variety of events in the Loeys-Dietz syndrome (LDS) community. With your help, our events provide education and support, and raise awareness for LDS.
Heritable Aortic Disorders Symposium (HAD)
LDSF Canada’s Heritable Aortic Disorders Symposium (HAD) is a national educational initiative that brings together healthcare professionals, researchers, patients, and families to advance knowledge and care for people living with heritable aortic disorders.
To date, LDSF Canada has hosted four HAD symposiums, creating opportunities for clinical education, knowledge exchange, patient engagement, and collaboration across the aortic community. The symposiums address key areas including genetics and diagnosis, clinical management, surgery, research and innovation, lifestyle, and the lived experience of patients and families.
Canadian Association of Emergency Physicians Webinar: “When the Aorta Whispers: Detecting Deadly Disease in the Emergency Department”
On September 23, 2026, LDSF Canada collaborated with the Canadian Association of Emergency Physicians (CAEP) on a national webinar focused on the recognition and management of acute aortic dissection in the emergency department. The session equipped emergency physicians with practical knowledge to recognize warning signs, identify patients with underlying heritable aortic conditions, and support timely diagnosis and management.
The webinar also featured LDSF Canada Patient Partner Albert Mallia, who shared his lived experience and brought an essential patient perspective to the discussion.
The webinar is available to watch on YouTube.
LDSF Canada Patient & Family Days
LDSF Canada hosts Patient & Family Days across Canada to bring together individuals and families affected by heritable aortic and connective tissue disorders. These events provide opportunities to learn directly from healthcare professionals and researchers, ask questions, connect with others who share similar experiences, and access trusted information and resources.
To date, LDSF Canada has hosted Patient & Family Days in London, Ontario, and Saskatoon, Saskatchewan, helping bring education, support, and community closer to patients and families across the country.
Stay tuned for a Patient & Family Day near you! Follow us on social media or subscribe to our newsletter to hear about upcoming events.
News and Press Releases
Eight leading aortic-awareness organizations unite to amplify life-saving stories during Aortic Dissection Awareness Week
Eight leading aortic-awareness organizations unite to amplify life-saving stories during Aortic Dissection Awareness Week Goal: Raising awareness through storytelling, education and collective action Montreal, Quebec, September 9, 2026 — Eight
The 4th Heritable Aortic Disorders Symposium Brings Together Experts, Patients, and Community Organizations in Vancouver
The 4th Heritable Aortic Disorders Symposium Brings Together Experts, Patients, and Community Organizations in Vancouver Vancouver, British Columbia | May 22–23, 2026 Two days. Dozens of expert speakers. Hundreds of
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port Washington,
Aortic Dissection Awareness Week (September 14 – 20, 2025)
Seven leading North American nonprofits dedicated to aortic dissection awareness are uniting for the first time during Aortic Dissection Awareness Week 2025, urging the public to think “STAT” and recognize
From Rare to Recognized – LDSFC at the 29th Canadian Connective Tissue Conference (CCTC)
From May 26th to 28th, 2025, Loeys-Dietz Canada proudly participated in the 29th Annual Canadian Connective Tissue Conference (CCTC), held in Montreal, Quebec. As a sponsor of this important scientific
Clinicians will be Connecting the Dots at this Upcoming Conference
Pediatric Gastroenterology & Cardiology for the Clinician Cardiology and Gastroenterology physicians, nurses and allied health professionals are invited to participate in this interactive, small-group learning opportunity in Montreal on May