News and Events
Events
Events
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Saskatoon Patient & Family Day – Connective Tissue Disorders and Aortopathy
Saskatoon, Saskatchewan 102 Spadina Crescent E, Saskatoon, SK, CanadaJoin patients, families, healthcare professionals, and researchers for a Patient & Family Day dedicated to connective tissue disorders and heritable thoracic aortic disorders (HTAD), including Marfan syndrome, Loeys-Dietz syndrome, and […]
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Science in Spain
Barcelona, Spain Barcelone, SpainThe Marfan Foundation is collaborating with the European Society of Cardiology’s Peripheral Artery and Aortic Disease Working Group, along with local hosts, Drs. Arturo Evangelista and Gisela Teixidó Turà, to present “Science in […]
The Foundation is proud to sponsor and support a variety of events in the Loeys-Dietz
syndrome (LDS) community. With your help, our events provide education and support, and raise awareness for LDS.
News and Press Releases
Eight leading aortic-awareness organizations unite to amplify life-saving stories during Aortic Dissection Awareness Week
Eight leading aortic-awareness organizations unite to amplify life-saving stories during Aortic Dissection Awareness Week Goal: Raising awareness through storytelling, education and collective action Montreal, Quebec, September 9, 2026 — Eight
The 4th Heritable Aortic Disorders Symposium Brings Together Experts, Patients, and Community Organizations in Vancouver
The 4th Heritable Aortic Disorders Symposium Brings Together Experts, Patients, and Community Organizations in Vancouver Vancouver, British Columbia | May 22–23, 2026 Two days. Dozens of expert speakers. Hundreds of
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port Washington,
Aortic Dissection Awareness Week (September 14 – 20, 2025)
Seven leading North American nonprofits dedicated to aortic dissection awareness are uniting for the first time during Aortic Dissection Awareness Week 2025, urging the public to think “STAT” and recognize
From Rare to Recognized – LDSFC at the 29th Canadian Connective Tissue Conference (CCTC)
From May 26th to 28th, 2025, Loeys-Dietz Canada proudly participated in the 29th Annual Canadian Connective Tissue Conference (CCTC), held in Montreal, Quebec. As a sponsor of this important scientific
Clinicians will be Connecting the Dots at this Upcoming Conference
Pediatric Gastroenterology & Cardiology for the Clinician Cardiology and Gastroenterology physicians, nurses and allied health professionals are invited to participate in this interactive, small-group learning opportunity in Montreal on May