Trauma Response to A Life-Changing Diagnosis

For some patients, they say “waiting is the hardest part” of receiving a medical diagnosis. But I disagree. Given my personal experience, it’s that exact moment of knowing your life will never be the same. That grief you feel for your own body who has to endure countless changes. The initial loss of freedom you encounter as you alter your daily activity. The overall transition of “finding a new normal” in changing your diet, occupation, and lifestyle. It is difficult to put into words just as much as it is difficult to experience.  However, if you are reading this blog post, and have read up to this point, just know that you are not alone. As part of a new support initiative, and with my intention to ease this tough transition, the Loeys-Dietz Syndrome Foundation Canada (LDSFC) is putting together a support group for LDS patients in Canada. Inspired by my own series of events, I want to help others move past the molasses, understand the black stylized font, and walk hand-in-hand on entering the LDS world. The faster we can process the information given, the faster we can improve our mindset about the situation. While we can’t control the genetic lottery, we can control our reactions, our personal environments, and our course of action to respond to these difficulties.