Blog
Kimberly and Logan’s Story: Parent of a Child with Loeys-Dietz Syndrome
As a parent of a child with Loeys-Dietz syndrome type 2 you never know what the next day is going to bring. From the time I was five months pregnant I
Dr. Cavalle-Garrido: A Champion for LDS Care and Research
Dr. Tiscar Cavalle-Garrido has long been a leader and champion for Loeys-Dietz syndrome (LDS) diagnosis, multidisciplinary care, and research. She occupies six academic and clinical appointments, including an appointment as
Amiel’s Story
After officially being diagnosed with Loeys-Dietz syndrome (SMAD-3 variation) in October 2021 and having to postpone my pursuit in higher education, I knew my life would be filled with various
Highlights from the Canadian Spine Society’s Conference
At the Canadian Spine Society‘s 23rd annual scientific conference, Wednesday afternoon was dedicated to learning about connective tissue disorders and their impact on the spine. The Loeys-Dietz Syndrome Foundation Canada was
LDSF Canada 2023 Rare Disease Day Statement
Transforming the Future of LDS “When you hear hoofbeats, don’t expect to see a zebra”. This adage was used to teach primary care professionals about looking for common conditions. But
Pain Resources and Clinics for Loeys-Dietz Syndrome
People with Loeys-Dietz syndrome may experience pain throughout the body. Pain can be chronic (lasting more than three or four months) and negatively impact quality of life. To help decrease