Blog
Empowering Connections
Reflections from the Heritable Aortic Disorders Symposium 2023 In the realm of medical conferences, few experiences are as profound and transformative as attending an event that brings together patients, medical
Canadian Paediatric Spine Society Symposium
Exploring Connective Tissue Disorders and Spinal Manifestations In a significant leap towards advancing medical understanding and patient care, the Loeys-Dietz Syndrome Foundation Canada, in collaboration with the Canadian Paediatric Spine
Peer Support Groups
Individuals with rare diseases often find themselves navigating uncharted territory, as there may be limited knowledge about their condition. In such circumstances, peer support groups offer a lifeline, providing a community of individuals who share similar experiences and can offer valuable support.
What does Loeys-Dietz Syndrome Look Like?
An Overview into the Phenotypic Differences Across LDS Subtypes 8 min. read Do the different types of Loeys-Dietz syndrome (LDS) have different features? Research has now shown that there are
Higgy Bears: For Kids & Teens with Scoliosis
By: Lauren Founder of Higgy Bears Hi! My name is Lauren, and I am the founder of Higgy Bears, a nonprofit organization based in the US. I make special
Living with Idiopathic Scoliosis
Caroline Bell has been living with idiopathic scoliosis since she was a teenager. Now an adult with a spinal fusion, she is starting to tell her scoliosis story. Today, she