Experts answer a participant's question

Empowering Connections

Reflections from the Heritable Aortic Disorders Symposium 2023  In the realm of medical conferences, few experiences are as profound and transformative as attending an event that brings together patients, medical

Dr. A. Noelle Larson presents at CTD Symposium

Canadian Paediatric Spine Society Symposium

Exploring Connective Tissue Disorders and Spinal Manifestations In a significant leap towards advancing medical understanding and patient care, the Loeys-Dietz Syndrome Foundation Canada, in collaboration with the Canadian Paediatric Spine

statue of hand supporting a live tree to depict sentiment of supporting growth and life in community

Peer Support Groups

Individuals with rare diseases often find themselves navigating uncharted territory, as there may be limited knowledge about their condition. In such circumstances, peer support groups offer a lifeline, providing a community of individuals who share similar experiences and can offer valuable support.

diverse women

What does Loeys-Dietz Syndrome Look Like?

An Overview into the Phenotypic Differences Across LDS Subtypes 8 min. read Do the different types of Loeys-Dietz syndrome (LDS) have different features? Research has now shown that there are

Living with Idiopathic Scoliosis

Caroline Bell has been living with idiopathic scoliosis since she was a teenager. Now an adult with a spinal fusion, she is starting to tell her scoliosis story. Today, she

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