Where to Find a Clinic

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Find a Clinic for Loeys-Dietz Syndrome

The Foundation’s Find a Clinic directory lists Canadian health centres where staff have expertise in Loeys-Dietz syndrome, related conditions, and genetics and/or cardiology. It may be necessary to obtain a referral to be treated at these centres. 

If you cannot find a clinic near you or would like to find a clinic specializing in orthopedics, neurology, physiotherapy, women’s health, or other, please contact us.


Peter Lougheed Centre

Southern Alberta Adult Congenital Heart Clinic

  •  26 Avenue NE #3500, Calgary, Alberta, T1Y 6J4
  • Phone: 403-943-4504
  • Fax: 403-291-6814

Alberta Children’s Hospital 

Genetic Connective Tissues Disorders Clinic

  • 28 Oki Drive NW, Calgary, Alberta, T3B 6A8
  • Phone: 403-955-7373
  • Fax: 403-955-2701

University of Calgary

Calgary Aortic Clinic

  • 4448 Front Street SE, Calgary, Alberta, T3M 1M4  

Stollery Children’s Hospital

Pediatric Cardiology Clinic

  •  4C2n Walter Mackenzie Centre, 8440 112 Street NW, Edmonton, Alberta, T6G 2B7
  • Phone: 780-407-3392
  • Fax: 780-407-3310

Mazankowksi Alberta Heart Institute

Northern Alberta Adult Congenital Heart Program

  • 11220 83 Avenue NW, Room 2a5.061, Edmonton, Alberta, T6G 2B7
  • Phone: 780-407-6552
  • Fax: 780-407-4546
British Columbia

The Heart Centre at St. Paul’s Hospital

(Affiliated with Providence Health Care)

 Pacific Adult Congenital Heart (PACH) Clinic

  • “The PACH clinic’s multidisciplinary team of physicians, nurses, psychologists and social workers provide clinical expertise to patients 18 years and older with congenital heart disease. Individuals who are newly diagnosed with congenital heart disease and those transitioning from pediatric programs receive ongoing follow-up and care for their cardiac condition.”
  • 1081 Burrard Street, Room 5051 (Providence Building), Vancouver, British Columbia, V6Z 1Y6
  • Phone: 604-806-8520
  • Fax: 604-806-8800 

Heritable Aortopathies Clinic (HAC) 

  • “The Heritable Aortopathies Clinic (HAC) provides assessments, care and follow up for people with a wide range of genetic disorders that stretch or weaken the aorta (e.g. Loeys-Dietz and Marfan syndromes). The team includes doctors, nurses, a genetic counsellor and other health care professionals and specialists at St. Paul’s Hospital and Vancouver Coastal Health Authority.”
  • 1081 Burrard Street, Room 5051 (Providence Building), Vancouver, British Columbia, V6Z 1Y6
  • Phone: 604-806-8520
  • Fax: 604-806-8800 

 Vancouver General Hospital

The Vancouver Coastal Health (VCH) Centre for Thoracic Aortic Disease (CTAD)

  •  2775 Laurel Street, 9th floor, Vancouver, British Columbia, V5Z 1M9
  • Phone: 604-875-4553
  • Fax: 604-875-5806

BC Children’s Hospital

The Heart Centre

  •  4480 Oak Street, Vancouver, British Columbia, V6H 3V4    

BC Women’s and Children Hospital

Provincial Medical Genetics Program  

  •  4500 Oak Street, Vancouver, British Columbia, V6H 3N1    

Victoria General Hospital

Department of Medical Genetics

  •  1 Hospital Way, Victoria, British Columbia, V8X 6RS    

Cardiac Sciences Manitoba

Manitoba Thoracic Aortic Diseases Clinic (MTAC)   

  • CR 1005 – 369 Tache Ave
  • Winnipeg, Manitoba
  • R2H 2A6    

Winnipeg Pediatric Cardiology Program

  • FE241-685 William Avenue, Winnipeg, Manitoba, R2E 0Z1  

Children’s Hospital of Manitoba

(Affiliated with the University of Manitoba)

Cardiology Clinic at the Children’s Heart Centre

  • 820 Sherbrook Street, Level 4, JM-476, Winnipeg, Manitoba, R3E 0Z2
  • Phone: 204-787-2410
  • Fax: 204-787-2004
New Brunswick

New Brunswick Heart Centre

New Brunswick Centre for Aortic Disease  

  •  4000 University Avenue, St. John, New Brunswick, E2L 4L4    

Health Sciences Centre

Cardiac Genetics Clinic

  •  300 Prince Phillip Drive, St. John’s, Newfoundland, A1B 3V6  
  • Phone: 709-777-2640

Janeway Children’s Health and Rehabilitation Centre  

  •  300 Prince Phillip Drive, St. John’s, Newfoundland, A1B 3V6  

Western Memorial Regional Hospital

Orthopedic Care Program 

  •  1 Brookfield Ave, Corner Brook, Newfoundland, A2H 6J7    

Chronic Pain Management Clinic

  •  1 Brookfield Ave, Corner Brook, Newfoundland, A2H 6J7
Nova Scotia

IWK Health Centre

(Affiliated with Dalhousie University)

Maritime Medical Genetics Service

  • 5980 University Avenue #5850, Halifax, Nova Scotia, B3K 6R8

Maritime Heart Centre

Connective Tissue Clinic

  • A multidisciplinary care clinic for patients and families affected by genetic mutations causing aneurysms and connective tissue disorders.
  • 1796 Summer Street, Room 2102, Halifax, Nova Scotia, B3H 3A7
  • Phone: 902-473-1945
  • Fax: 902-473-2434

St. Michael’s Hospital

The Aorta Program 

  • Diagnosis and management of patients with aortic-associated connective tissue disorders.
  • 30 Bond St., Toronto Ontario, M5B 1W8
  • Phone:  416-864-3086
  • Fax: 416-864-6096

The Hospital for Sick Children (SickKids)

(Affiliated with the University of Toronto)

Cardiology Clinic at the Labatt Family Heart Centre 

  • 555 University Avenue, 4th Floor, Atrium (4A), Toronto, Ontario, M5G 1X8
  • Phone: 416-813-5848
  • Fax: 416-813-5582

Clinical and Metabolic Genetics

  •  Diagnosis and management of children with suspected connective tissue disorders, including Loeys-Dietz and Marfan syndromes. 
  • 5550 University Avenue, Toronto, Ontario, M5G 1X8
  • Phone: 416-813-6390
  • Fax: 416-813-5345

Toronto General Hospital

(Affiliated with University Health Network)

Cardiology Clinic at the Peter Munk Cardiac Centre

  • 585 University Avenue, Norman Urquhart Building, 5th floor, Toronto, Ontario, M5G 2N2
  • Phone: 416-340-5309
  • Toll-free: 888-846-4278 (888-UHN-HART)
  • Fax: 416-340-4127
  • Email: pmcc_acc@uhn.ca 

Children’s Hospital of Eastern Ontario (CHEO) 

(Affiliated with the University of Ottawa)

 Connective Tissue Clinic 

  •  “The connective tissue clinic at CHEO accepts referrals for patients with suspected underlying heritable connective tissue disorders. We aim to diagnose and care for patients and families with Loeys-Dietz syndrome, Marfan syndrome, vascular EDS and other forms of familial thoracic aneurysms. We also see patients without a family history if they present with a significant aortic dilation before 50 years of age or if they sustained a spontaneous arterial dissection prior to age 50 in the absence of another identified etiology. Finally, we see patients with significant joint hypermobility in the presence of additional findings.  Care is provided in close collaboration with the team from the Aorta Clinic of the Ottawa Heart Institute for our adult patients and with Dr. Lai and other pediatric cardiologists for our pediatric patients.” 
  • The clinic is open to individuals of all ages, despite it being housed in a paediatric hospital. 
  • 401 Smyth Road, Ottawa, Ontario, K1H 8L1
  • Phone: 613-737-2275
  • Fax: 613-738-4822 

University of Ottawa Heart Institute

(Affiliated with the University of Ottawa)

Aortic Clinic

  •  40 Ruskin Street, Ottawa, Ontario, K1Y 4W7
  • Phone: 613-696-7237
  • Fax: 613-696-7302
  • Email: aorticclinic@ottawaheart.ca

Victoria Hospital

General Genetics Clinic

  • Zone B Level 5 (North Tower), 800 Commissioners Road East, London, Ontario, N6A SW9
  • Phone: 519-685-8140
  • Fax: 519-685-8214

John McGivney Children’s Centre

General Genetics Clinic

  • 3945 Machette Road, Windsor, Ontario, N9C 4C2  
  • Phone: 519-252-7281
  • Fax: 519-977-2216

Mount Sinai Hospital

Fred A. Litwin Family Centre in Genetic Medicine

  • 3rd Floor, Room 300, 60 Murray Street, Toronto, Ontario, MST 3L9    

Prenatal Diagnosis and Medical Genetic Program 

  •  600 University Avenue, Toronto, Ontario, M5G 1X5
  •  Phone: 416-596-4200

Credit Valley Hospital

Genetics Program

  •  2200 Eglinton Avenue West, Mississauga, Ontario, L5M 2N1

Montreal Heart Institute

(Affiliated with Université de Montréal)

 Aorta and Connective Tissue Clinic at the Cardiovascular Genetics Centre 

The Montreal Children’s Hospital

(Affiliated with the McGill University Health Centre)

Department of Cardiology

  • General paediatric cardiology with an interest in aortopathies.
  • 1001 Décarie Boulevard, Room B-RC.3219, Montreal, Québec, H4A 3J1
  • Phone: 514-412-4423
  • Fax: 514-412-4273

McGill University Health Centre
Aortic Clinic (for adults)

  • 1001 Décarie Boulevard, Montréal, Québec, H4A 3J1
  • Phone: 514-934-1934 x 36873
  • Fax: 514-843-1602

Shriners Hospitals for Children – Montreal, Canada 


  • 1003 Décarie Boulevard, Montréal, Québec, H4A 0A9
  • Phone: 514-842-4464 (clinic)
  • Toll-free: 800-237-5055

CHU Sainte-Justine 

(Affiliated with Université de Montréal)

 Paediatric Gastroenterology

  •  Gastroenterology, nutrition, allergic disorders, nutrition support, inflammatory bowel diseases. 
  • 3175 Côte-Sainte-Catherine Road, Montréal, Québec, H3T 1C5
  • Phone: 514-345-4871

Cardiovascular Genetic Clinic

  • 3175 Côte-Sainte-Catherine Road, Montréal, Québec, H3T 1C5
  • Phone: 514-345-4654
  • Fax: 514-345-2171

Quebec Heart and Lung Institute

(Affiliated with the University of Laval)

Thoracic Aortic Disease Clinic

  •  2725 Ste-Foy Road, Québec, Quebec G1V 4G5
  • Phone: 418-656-8711 x 5612
  • Fax: 418-656-4833
  • Email: iucpq.cmat@ssss.gouv.qc.ca

Jim Pattison Children’s Hospital

Pediatric Cardiology Clinic

  •  103 Hospital Drive, Saskatoon, Saskatchewan, S7N 0W8
  • Phone: 306-844-1235
  • Fax: 306-844-1535

The Foundation offers the Find a Clinic directory as an informative resource to support patients and families with Loeys-Dietz syndrome and related conditions. We do not provide social, health, or medical services nor are we responsible for medical or other referred services provided by third parties.

If you would like to include a medical team or clinic in this directory, please contact us.

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