Start a Fundraiser

A Loeys-Dietz syndrome fundraiser is one of the best ways you can support the Foundation and raise awareness in your community. 

How to organize a fundraiser

1. Make a plan

Raising money for the Foundation starts with a goal and a plan. How much do I want to raise? How do I want to do it?

Some successful fundraising ideas that have worked in the past include bake sales, 5K community runs, marathons, bike-a-thons, and shave-to-raise campaigns. The possibilities are endless.

2. Contact us

Once you are ready to get moving, contact us at and tell us about your project.

We will support you from start to finish by sharing your fundraiser in our newsletter and social media and creating a Campaign Giving Page on Canada Helps. This Page is where your supporters will make their donations, leave messages of support and encouragement, and track your fundraising efforts. Canada Helps will take care of issuing all tax receipts.

Depending on your goal, we will also send you a Foundation SWAG kit of caps, bags, tattoos, t-shirts, and jackets.

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Past LDS Fundraisers

Thank you to our past fundraisers! Their events have included:

  • Gino’s bike ride for LDS around the Niagara region, Ontario
  • Sal’s Montreal Marathon
  • Joseph’s Gran Fondo NY
  • Alex’s Birthday Donation and his Valentine’s Day Cookie sale events
  • Tyler’s Birthday Donation
  • Cycle Paul’s Bike for LDS
  • Dominic’s Sales Team
  • Justin’s Bar-Mitzvah donation
  • The Loyola High School “Free Dress Day” event and the President’s Year End Fundraising Campaign 
  • Several birthday and special occasion Facebook fundraisers
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