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Exploring Frontiers in Genetic Medicine

A Unique Fellowship Opportunity in Aortopathy and Heritable Connective Tissue Disorders The Children Hospital of Eastern Ontario (CHEO) in Ottawa, Ontario, is offering an exceptional Clinical and Research Fellowship in

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Trauma Response to A Life-Changing Diagnosis

Written by: Amiel Buning “You Have it”. After months of waiting for an official diagnosis, my results were given to me through these three life-changing words. “You Have it”. “As

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Empowering Connections

Reflections from the Heritable Aortic Disorders Symposium 2023  In the realm of medical conferences, few experiences are as profound and transformative as attending an event that brings together patients, medical

Dr. A. Noelle Larson presents at CTD Symposium

Canadian Paediatric Spine Society Symposium

Exploring Connective Tissue Disorders and Spinal Manifestations In a significant leap towards advancing medical understanding and patient care, the Loeys-Dietz Syndrome Foundation Canada, in collaboration with the Canadian Paediatric Spine

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Peer Support Groups

Individuals with rare diseases often find themselves navigating uncharted territory, as there may be limited knowledge about their condition. In such circumstances, peer support groups offer a lifeline, providing a community of individuals who share similar experiences and can offer valuable support.

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