Blog
Exploring Frontiers in Genetic Medicine
A Unique Fellowship Opportunity in Aortopathy and Heritable Connective Tissue Disorders The Children Hospital of Eastern Ontario (CHEO) in Ottawa, Ontario, is offering an exceptional Clinical and Research Fellowship in
Navigating Family Planning with Loeys-Dietz Syndrome: A Comprehensive Guide
Bringing a child into the world is a profound and joyous journey, filled with anticipation and excitement. However, for individuals and families affected by Loeys-Dietz syndrome (LDS), this journey may
Trauma Response to A Life-Changing Diagnosis
Written by: Amiel Buning “You Have it”. After months of waiting for an official diagnosis, my results were given to me through these three life-changing words. “You Have it”. “As
Empowering Connections
Reflections from the Heritable Aortic Disorders Symposium 2023 In the realm of medical conferences, few experiences are as profound and transformative as attending an event that brings together patients, medical
Canadian Paediatric Spine Society Symposium
Exploring Connective Tissue Disorders and Spinal Manifestations In a significant leap towards advancing medical understanding and patient care, the Loeys-Dietz Syndrome Foundation Canada, in collaboration with the Canadian Paediatric Spine
Peer Support Groups
Individuals with rare diseases often find themselves navigating uncharted territory, as there may be limited knowledge about their condition. In such circumstances, peer support groups offer a lifeline, providing a community of individuals who share similar experiences and can offer valuable support.