Category: Newsletters

The first half of 2026 has been a period of remarkable growth, collaboration, and impact for our community. Together with our patients, families, clinicians, researchers, partners, and supporters, we have

At Loeys-Dietz Canada, we are dedicated to fostering a supportive environment for individuals, families, clinicians, and researchers impacted by Loeys-Dietz syndrome (LDS) and other related Hereditary Thoracic Aortic Disorders (HTAD).

Today, we’re proud to highlight key initiatives that support individuals and families affected by heritable aortopathies, from groundbreaking research to advocacy efforts in new medical fields. In this issue, you

New year, new website! Find new information on Loeys-Dietz syndrome (LDS), updated educational resources, new point-of-care and risk-calculating tools for clinicians, and much more at the Loeys-Dietz Syndrome Foundation Canada’s

By making a donation, you can join us in supporting people living and working with Loeys-Dietz syndrome (LDS). What does our support look like? We provide a free LDS helpline,

This year, your generous support has helped us to make a big difference in the Loeys-Dietz syndrome (LDS) community. Whether you’ve contacted us for help or given time, feedback, or

In honour of IBD (Inflammatory Bowel Disease) Awareness Month, we are teaming up with the Canadian Digestive Health Foundation to raise awareness and bring you the latest information on IBD

The Loeys-Dietz Syndrome Foundation Canada is proud to announce the 2022 recipients of our first LEAP Impact Award. Congratulations to Nairy Khodabakhshian, Dr. Pei-Yu Chen, Dr. Michelle Keir, and Dr.

As youth with Loeys-Dietz syndrome or other complex, chronic conditions grow older, they transition from pediatric to adult health services. This change may raise questions such as: “What should I

As the school year approaches, LDS families may have questions – about how to prepare, what schools should know, and more. In this issue, we provide answers, suggest resources, and