Blog
Izzy Shares her Life with Chronic Illness
Izzy is a genetic counselling student at the Icahn School of Medicine at Mount Sinai with a special interest in genetic connective tissue disorders. She doesn’t have Loeys-Dietz syndrome, but has a different connective tissue disorder that shares some features with LDS and is called Hypermobile Ehlers-Danlos syndrome (hEDS). On hEDS and the importance of talking about chronic illness, Izzy says: “I was diagnosed about 5 years ago after many years of dizziness, joint pain,
Katya, An Advocate for Travelling with Chronic Illness
Katya is an advocate and influencer using social media to share her experiences, insights, and resources for travel and daily life with chronic illness. Katya covers topics such as maintaining health and wellness through diet, routine changes, pain relief, exercise, and mental health. About two years ago, Katya was diagnosed with multiple chronic conditions including Ehlers-Danlos syndrome (EDS), fibromyalgia, and scoliosis. She has experienced many symptoms since childhood, and is now finding ways to minimize
Travelling with Loeys-Dietz Syndrome: Prepare to Reach New Destinations
9 min. read Do you love to travel? Do you want to travel more? Are you travelling with a chronic illness or with someone that has one? If you answered yes to these questions, keep reading to learn more. Travelling is an incredible opportunity that everyone deserves to experience. However, it can easily become complicated due to the daily medications or medical needs of chronic illness. Therefore, this article is dedicated to supporting and informing
An Essential Guide to the Research Around You
In order to deliver quality health care to you and your family, medical professionals rely on research. Here, we explore how researchers make new discoveries, current tools for LDS research, and LDSF Canada’s upcoming research award, the LEAP Impact Award.
Kids with LDS: Get the Facts for your Family
Loeys-Dietz syndrome (LDS) affects people of all ages, including children. Their diagnosis can be a big adjustment for the whole family. However, understanding your child’s diagnosis, care, and resources can help them to live a long and meaningful life.