Blog
LDS and Allergic Disease
People with Loeys-Dietz syndrome (LDS) are more likely than others to have allergic diseases like allergies, eczema, asthma, and eosinophilic gastrointestinal disease. How do you know if you have an allergic disease? What to do if you have one? Keep reading to find out. Table of Contents Add a header to begin generating the table of contents Allergic disease and LDS People with Loeys-Dietz syndrome are more likely than the general population to have an
Caregivers and Loeys-Dietz Syndrome: Navigate your Journey and Find Support
Caregivers play an invaluable role in the lives of people with Loeys-Dietz syndrome (LDS). However, caregiving can be challenging. It is important to talk about navigating this journey and finding support. In this article, we cover: Who are caregivers? Caring for people with LDS Caregiving experiences Tips and tricks Where to find support Financial assistance How to a caregiver In honour of National Caregiver Day, this article is dedicated to the many LDS caregivers and
Kimberly and Logan’s Story: Parent of a Child with Loeys-Dietz Syndrome
As a parent of a child with Loeys-Dietz syndrome type 2 you never know what the next day is going to bring. From the time I was five months pregnant I was told that Logan would not survive once he was born because they could not tell me what was wrong with him. Watching him grow and knowing that he was different made it hard on me as a parent. Logan’s Loeys-Dietz Syndrome Diagnosis Finally in
Dr. Cavalle-Garrido: A Champion for LDS Care and Research
Dr. Tiscar Cavalle-Garrido has long been a leader and champion for Loeys-Dietz syndrome (LDS) diagnosis, multidisciplinary care, and research. She occupies six academic and clinical appointments, including an appointment as Associate Professor at McGill University, and is a pediatric cardiologist at the Montreal Children’s Hospital. Dr. Cavalle-Garrido has an active interest in caring for children with aortopathies and connective tissue disorders like LDS. To her, working with children and families is an honour and a
Amiel’s Story
After officially being diagnosed with Loeys-Dietz syndrome (SMAD-3 variation) in October 2021 and having to postpone my pursuit in higher education, I knew my life would be filled with various new challenges. During my diagnosis, I remember this overwhelming sense of anxiety, stress, and fear, and how I wish I had someone to talk to who could relate to my personal LDS experience. Thus, when I was introduced to the Foundation in May 2022, I
Highlights from the Canadian Spine Society’s Conference
At the Canadian Spine Society‘s 23rd annual scientific conference, Wednesday afternoon was dedicated to learning about connective tissue disorders and their impact on the spine. The Loeys-Dietz Syndrome Foundation Canada was thrilled to join forces with the Canadian Spine Society and Canadian Pediatric Spine Society to make this connective tissue disorder symposium possible. Keeping reading to find out about our impact at the conference, the amazing speakers, and the valuable patient perspectives that were shared. Why was