Blog

Did You Know?
Did you know that Loeys-Dietz syndrome (LDS) patients can have vision and eye problems? Hypertelorism (widely spaced eyes) is a typical characteristic of LDS, while myopia (difficulty seeing from afar)

#GivingTuesday
This Giving Tuesday, join us in building a better tomorrow! On Giving Tuesday, November 29th, communities come together to do good. Get involved in the Loeys-Dietz syndrome (LDS) community by donating,

Loeys-Dietz Syndrome and Inflammatory Bowel Disease
What is Loeys-Dietz Syndrome? Loeys-Dietz syndrome (LDS) is a rare genetic disorder that affects the connective tissue in the body. The disorder was first described in 2005 by Dr. Bart

2022 Recipients of the First LEAP Impact Award
FOR IMMEDIATE RELEASE The Loeys-Dietz Syndrome Foundation Canada is proud to announce the 2022 recipients of our first LEAP Impact Award. Congratulations to Nairy Khodabakhshian, Dr. Pei-Yu Chen, Dr. Michelle

An Essential Guide to the Research Around You
In order to deliver quality health care to you and your family, medical professionals rely on research. Here, we explore how researchers make new discoveries, current tools for LDS research, and LDSF Canada’s upcoming research award, the LEAP Impact Award.

Kids with LDS: Get the Facts for your Family
Loeys-Dietz syndrome (LDS) affects people of all ages, including children. Their diagnosis can be a big adjustment for the whole family. However, understanding your child’s diagnosis, care, and resources can help them to live a long and meaningful life.