Did You Know?

Did you know that Loeys-Dietz syndrome (LDS) patients can have vision and eye problems? Hypertelorism (widely spaced eyes) is a typical characteristic of LDS, while myopia (difficulty seeing from afar)

A better tomorrow starts today


This Giving Tuesday, join us in building a better tomorrow! On Giving Tuesday, November 29th, communities come together to do good. Get involved in the Loeys-Dietz syndrome (LDS) community by donating,


2022 Recipients of the First LEAP Impact Award

FOR IMMEDIATE RELEASE The Loeys-Dietz Syndrome Foundation Canada is proud to announce the 2022 recipients of our first LEAP Impact Award. Congratulations to Nairy Khodabakhshian, Dr. Pei-Yu Chen, Dr. Michelle

Human connective tissue cells at 500x magnification (500 times larger than their real size).

An Essential Guide to the Research Around You

In order to deliver quality health care to you and your family, medical professionals rely on research. Here, we explore how researchers make new discoveries, current tools for LDS research, and LDSF Canada’s upcoming research award, the LEAP Impact Award.

Girl in doctor's office

Kids with LDS: Get the Facts for your Family

Loeys-Dietz syndrome (LDS) affects people of all ages, including children. Their diagnosis can be a big adjustment for the whole family. However, understanding your child’s diagnosis, care, and resources can help them to live a long and meaningful life.

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