Category: LDS Events

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Exploring Frontiers in Genetic Medicine

A Unique Fellowship Opportunity in Aortopathy and Heritable Connective Tissue Disorders The Children Hospital of Eastern Ontario (CHEO) in Ottawa, Ontario, is offering an exceptional Clinical and Research Fellowship in

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Empowering Connections

Reflections from the Heritable Aortic Disorders Symposium 2023  In the realm of medical conferences, few experiences are as profound and transformative as attending an event that brings together patients, medical

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A better tomorrow starts today


This Giving Tuesday, join us in building a better tomorrow! On Giving Tuesday, November 29th, communities come together to do good. Get involved in the Loeys-Dietz syndrome (LDS) community by donating,

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Find all of our Loeys-Dietz syndrome (LDS) events in one place. No matter the focus of our events – from research to support to education and awareness – we are excited to share them with you. These LDS events include announcing the winners of our research grants, raising awareness for Loeys-Dietz syndrome awareness at conferences and in the community, and much more!

If you are looking for support or have questions about LDS, please contact our free Loeys-Dietz syndrome helpline at 1-888-LDS-FCAN.

To hear from people living and working with Loeys-Dietz syndrome, read our LDS Stories.

About LDS: Loeys-Dietz syndrome (LDS) is a rare, connective tissue disorder that was first described in 2005. LDS is also a genetic condition and is caused by a gene mutation (change) in the SMAD2, SMAD3, TGFB2, TGFB3, TGFBR1, or TGFBR2 genes. To learn more about special topics related to LDS, read about Living with Loeys-Dietz syndrome.

Do you have an event you’d like to start or see us at? We’d love to hear from you. Please contact us.

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