Written by: Amiel Buning *Tu tump* *Tu tump* *Tu tump* Listen closer and tell me what you hear Hand on your chest tell me what you feel If I gave
“It is often said that traversing the medical world is difficult for any new patient. Building upon hours of medical appointments and lifechanging conditions, there are a lot of feelings and emotions to unpack in our personal journeys. Ranging from everyday difficulties to genuine health concerns, the purpose of this blog is to navigate the world of Loeys-Dietz Syndrome (LDS) and the challenges it brings. Written from the perspective of an LDS patient, get ready to go on a journey of grief, loss, acceptance, and hope as we learn to live with, and conquer, our diagnosis.”
– Amiel Buning
