Blog
Clinicians will be Connecting the Dots at this Upcoming Conference
Pediatric Gastroenterology & Cardiology for the Clinician Cardiology and Gastroenterology physicians, nurses and allied health professionals are invited to participate in this interactive, small-group learning opportunity in Montreal on May 30, 2025. With expert-led discussions and engaging Q&A sessions, attendees will leave equipped to recognize subtle signs, refine their diagnostic strategies, and improve patient outcomes. Register by April 15 for early-bird savings! Learn more at www.pediatricsmcgill.ca
Newsletter: Celebrating Rare Disease Day 2025
Today, we’re proud to highlight key initiatives that support individuals and families affected by heritable aortopathies, from groundbreaking research to advocacy efforts in new medical fields. In this issue, you will find: Rare Disease Day 2025 – Learn more about this global awareness initiative. Introducing the CAN-ACT Registry – A vital step in improving care and research for rare aortic conditions in Canada. Advocacy at the ICOI Conference – How we’re engaging the dental community
LDSFC at the 2025 ICOI Conference
This February, Loeys-Dietz Syndrome Foundation Canada (LDSFC) proudly participated in the 2025 International Congress of Oral Implantologists (ICOI) conference in New Orleans. This event brought together a diverse group of dental professionals, including implantologists, orthodontists, general dentists, and dental hygienists, offering an ideal platform to raise awareness about Heritable Aortic Disorders and their impact on oral health. Dr. Ady Palti, Chairman of the International Congress of Oral Implantologists, shared his thoughts on the significance of
Choose Your Own Adventure! The Loeys-Dietz Syndrome Training Arc
Medical Disclaimer The information provided here is meant to empower individuals to make informed decisions – it does not, however, replace a reader’s relationship with their doctor. This article is a patient testimony, we cannot guarantee that it is error- free or complete. Please speak with a qualified healthcare professional before making medical decisions. Research for LDS is ongoing. The Loeys-Dietz Syndrome Foundation Canada is not responsible for the quality of the information or services
Emergency Preparedness Booklet for Loeys-Dietz Syndrome Families
Emergencies can strike when least expected, especially for those living with or caring for someone with Loeys-Dietz syndrome (LDS). Understanding the unique challenges associated with this rare connective tissue disorder, we are thrilled to announce the release of a new, comprehensive Emergency Preparedness Booklet. This resource is designed to empower individuals and families with essential tools, knowledge, and guidance to navigate potential medical emergencies. Whether you’re a patient, caregiver, or healthcare provider, this booklet offers invaluable
Loeys-Dietz Syndrome: Cardiovascular Complications & Preparing for Surgery
Loeys-Dietz syndrome (LDS) is a disorder that attacks the connective tissue in the body, leaving individuals with the syndrome susceptible to cardiovascular complications. These complications, which can be life-threatening if left untreated in individuals with LDS, include mitral valve prolapse, aortic dissection, and aortic aneurysms, most of which will require surgical intervention. Surgery is a big word and it can seem very scary, which can be stressful not just for the person who must undergo