Blog
Newsletter: The LEAP Impact Award is Coming!
Mark your calendars for the upcoming launch of our first 4 LEAP Impact Awards! Applications open January 24, 2022. In anticipation of the launch, this month’s newsletter includes a guide to scientific research, information about the LEAP award, its impact in the community, and our Leadership Development Program for award recipients.
An Essential Guide to the Research Around You
In order to deliver quality health care to you and your family, medical professionals rely on research. Here, we explore how researchers make new discoveries, current tools for LDS research, and LDSF Canada’s upcoming research award, the LEAP Impact Award.
Newsletter: Kids and LDS
In honour of National Child Day, celebrated on November 20, this issue focuses on children. We cover the facts on kids with LDS, a caregiver’s story, the importance of multidisciplinary clinics, and the upcoming launch of our first 4 LEAP Impact Awards.
Kids with LDS: Get the Facts for your Family
Loeys-Dietz syndrome (LDS) affects people of all ages, including children. Their diagnosis can be a big adjustment for the whole family. However, understanding your child’s diagnosis, care, and resources can help them to live a long and meaningful life.
Newsletter: LDS: Genetics, Support and More
In this issue, we discuss: Genetics and LDS: Random Mutations and Family Affairs LDS Support Centre Focus Group: Call for Patient Participants Zamplo: Call for Patient Participants
Highlights from HAD 2019
The 2nd annual Heritable Aortic Disorders symposium was a resounding success with more than 180 health professionals and 40 patients and family members in attendance! This year, the HAD collaborative hosted the event at CHU Ste. Justine in Montreal, Quebec with the goal of educating and connecting healthcare professionals, foundation members, patients, and families over 2 days of presentations, workshops and networking opportunities. Day 1, September 6, 2019 “A multidisciplinary and individual treatment approach is important.” “Not only do patients