What is Loeys-Dietz Syndrome? Loeys-Dietz syndrome (LDS) is a rare genetic disorder that affects the connective tissue in the body. The disorder was first described in 2005 by Dr. Bart
8 min. read Transitions in medical care can be common for individuals and families living with Loeys-Dietz syndrome (LDS) or other complex or chronic conditions. Transitions may include changes in
6 min. read How can students and families with Loeys-Dietz syndrome (LDS) prepare for school? What should educators know about students with LDS? As the school year approaches, LDS families
9 min. read Do you love to travel? Do you want to travel more? Are you travelling with a chronic illness or with someone that has one? If you answered
In order to deliver quality health care to you and your family, medical professionals rely on research. Here, we explore how researchers make new discoveries, current tools for LDS research, and LDSF Canada’s upcoming research award, the LEAP Impact Award.
Loeys-Dietz syndrome (LDS) affects people of all ages, including children. Their diagnosis can be a big adjustment for the whole family. However, understanding your child’s diagnosis, care, and resources can help them to live a long and meaningful life.
If you or a loved one is affected by a Heritable Thoracic Aortic Disorder (HTAD)—such as Loeys-Dietz syndrome, Marfan syndrome, vascular Ehlers-Danlos syndrome, or another related condition—you may have questions about what life with one of these diagnoses will look like.
These educational blog articles are designed to help. We cover a wide range of topics relevant to HTADs, including: genetics and inheritance, signs and symptoms across body systems, diagnosis and treatment planning, and long-term management. You’ll also find practical guidance on everyday life with a heritable aortic condition—covering areas such as exercise, nutrition, chronic pain, mental health, family planning, caregiving, and navigating school or work.
If you have more questions or need support, please contact our free Loeys-Dietz syndrome helpline at 1-888-LDS-FCAN or here: https://loeysdietzcanada.org/contact-us/
