Whether for fun or for medical care, you may find yourself traveling this summer. Travelling with a medical condition like Loeys-Dietz syndrome can be complicated – but it can be […]
Newsletter: Travelling with Loeys-Dietz Syndrome Read More »
Izzy is a genetic counselling student at the Icahn School of Medicine at Mount Sinai with a special interest in genetic connective tissue disorders. She doesn’t have Loeys-Dietz syndrome, but
Izzy Shares her Life with Chronic Illness Read More »
Katya is an advocate and influencer using social media to share her experiences, insights, and resources for travel and daily life with chronic illness. Katya covers topics such as maintaining
Katya, An Advocate for Travelling with Chronic Illness Read More »
9 min. read Do you love to travel? Do you want to travel more? Are you travelling with a chronic illness or with someone that has one? If you answered
Travelling with Loeys-Dietz Syndrome: Prepare to Reach New Destinations Read More »
The Loeys-Dietz Syndrome Foundation Canada is excited to announce a new hotline for the Loeys-Dietz syndrome (LDS) community! Do you have questions about LDS? Are you looking for peer support
Newsletter: Our LDS Hotline is Here! Read More »
In honour of National Caregiver Day on April 5, this issue is dedicated to the many LDS caregivers and the people who support them. We cover: Navigating your caregiver journey
Newsletter: Caregivers and LDS Read More »
Loeys-Dietz Syndrome Foundation Canada (LDSFC) is looking for volunteers to read scientific articles and help us expand our GRIP database!
Newsletter: LDSFC is Looking for Volunteers Read More »
In this issue, we cover well-known people with three types of connective tissue disorders: Loeys-Dietz syndrome, Marfan syndrome, and Ehlers-Danlos syndrome. We also discuss the importance of multidisciplinary care and
Newsletter: Connective Tissue in the News Read More »
Chronic pain is a common problem for people with Loeys-Dietz syndrome. In this issue, we discuss: why you may be having chronic pain; what you can do to decrease your
Newsletter: Chronic Pain in Loeys- Dietz Syndrome Read More »
Mark your calendars for the upcoming launch of our first 4 LEAP Impact Awards! Applications open January 24, 2022. In anticipation of the launch, this month’s newsletter includes a guide
Newsletter: The LEAP Impact Award is Coming! Read More »
