Izzy is a genetic counselling student at the Icahn School of Medicine at Mount Sinai with a special interest in genetic connective tissue disorders. She doesn’t have Loeys-Dietz syndrome, but […]
Izzy Shares her Life with Chronic Illness Read More »
Katya is an advocate and influencer using social media to share her experiences, insights, and resources for travel and daily life with chronic illness. Katya covers topics such as maintaining
Katya, An Advocate for Travelling with Chronic Illness Read More »
9 min. read Do you love to travel? Do you want to travel more? Are you travelling with a chronic illness or with someone that has one? If you answered
Travelling with Loeys-Dietz Syndrome: Prepare to Reach New Destinations Read More »
In honour of National Caregiver Day on April 5, this issue is dedicated to the many LDS caregivers and the people who support them. We cover: Navigating your caregiver journey
Newsletter: Caregivers and LDS Read More »
In this issue, we cover well-known people with three types of connective tissue disorders: Loeys-Dietz syndrome, Marfan syndrome, and Ehlers-Danlos syndrome. We also discuss the importance of multidisciplinary care and
Newsletter: Connective Tissue in the News Read More »
Chronic pain is a common problem for people with Loeys-Dietz syndrome. In this issue, we discuss: why you may be having chronic pain; what you can do to decrease your
Newsletter: Chronic Pain in Loeys- Dietz Syndrome Read More »
Mark your calendars for the upcoming launch of our first 4 LEAP Impact Awards! Applications open January 24, 2022. In anticipation of the launch, this month’s newsletter includes a guide
Newsletter: The LEAP Impact Award is Coming! Read More »
In order to deliver quality health care to you and your family, medical professionals rely on research. Here, we explore how researchers make new discoveries, current tools for LDS research, and LDSF Canada’s upcoming research award, the LEAP Impact Award.
An Essential Guide to the Research Around You Read More »
In honour of National Child Day, celebrated on November 20, this issue focuses on children. We cover the facts on kids with LDS, a caregiver’s story, the importance of multidisciplinary
Newsletter: Kids and LDS Read More »
Loeys-Dietz syndrome (LDS) affects people of all ages, including children. Their diagnosis can be a big adjustment for the whole family. However, understanding your child’s diagnosis, care, and resources can help them to live a long and meaningful life.
Kids with LDS: Get the Facts for your Family Read More »
