“We interrupt this regular conversation of “LDS: Doom and Gloom” to cover the topic of bags. School bags, knapsacks, tote bags, purses, briefcases, fanny packs, crossbody bags, coin purses, and […]
Bags, Tags, and (Mis)Identifying the Green Flags Read More »
Written by: Amiel Buning *Tu tump* *Tu tump* *Tu tump* Listen closer and tell me what you hear Hand on your chest tell me what you feel If I gave
An Unhealthy Fixation on Cardiovascular Causation Read More »
In the realm of healthcare, where progress seems boundless, addressing chronic pain remains a formidable challenge. While medical advancements have enabled the treatment of various ailments, there are conditions like
Unveiling the Mindful Solution: Managing Chronic Pain in Loeys-Dietz Syndrome Read More »
A Unique Fellowship Opportunity in Aortopathy and Heritable Connective Tissue Disorders The Children Hospital of Eastern Ontario (CHEO) in Ottawa, Ontario, is offering an exceptional Clinical and Research Fellowship in
Exploring Frontiers in Genetic Medicine Read More »
Bringing a child into the world is a profound and joyous journey, filled with anticipation and excitement. However, for individuals and families affected by Loeys-Dietz syndrome (LDS), this journey may
Navigating Family Planning with Loeys-Dietz Syndrome: A Comprehensive Guide Read More »
Written by: Amiel Buning “You Have it”. After months of waiting for an official diagnosis, my results were given to me through these three life-changing words. “You Have it”. “As
Trauma Response to A Life-Changing Diagnosis Read More »
Reflections from the Heritable Aortic Disorders Symposium 2023 In the realm of medical conferences, few experiences are as profound and transformative as attending an event that brings together patients, medical
Empowering Connections Read More »
Exploring Connective Tissue Disorders and Spinal Manifestations In a significant leap towards advancing medical understanding and patient care, the Loeys-Dietz Syndrome Foundation Canada, in collaboration with the Canadian Paediatric Spine
Canadian Paediatric Spine Society Symposium Read More »
Individuals with rare diseases often find themselves navigating uncharted territory, as there may be limited knowledge about their condition. In such circumstances, peer support groups offer a lifeline, providing a community of individuals who share similar experiences and can offer valuable support.
Peer Support Groups Read More »
An Overview into the Phenotypic Differences Across LDS Subtypes 8 min. read Do the different types of Loeys-Dietz syndrome (LDS) have different features? Research has now shown that there are
What does Loeys-Dietz Syndrome Look Like? Read More »
