People with Loeys-Dietz syndrome (LDS) are more likely than others to have allergic diseases like allergies, eczema, asthma, and eosinophilic gastrointestinal disease. How do you know if you have an
LDS and Allergic Disease Read More »
Caregivers play an invaluable role in the lives of people with Loeys-Dietz syndrome (LDS). However, caregiving can be challenging. It is important to talk about navigating this journey and finding
Caregivers and Loeys-Dietz Syndrome: Navigate your Journey and Find Support Read More »
As a parent of a child with Loeys-Dietz syndrome type 2 you never know what the next day is going to bring. From the time I was five months pregnant I
Kimberly and Logan’s Story: Parent of a Child with Loeys-Dietz Syndrome Read More »
Dr. Tiscar Cavalle-Garrido has long been a leader and champion for Loeys-Dietz syndrome (LDS) diagnosis, multidisciplinary care, and research. She occupies six academic and clinical appointments, including an appointment as
Dr. Cavalle-Garrido: A Champion for LDS Care and Research Read More »
After officially being diagnosed with Loeys-Dietz syndrome (SMAD-3 variation) in October 2021 and having to postpone my pursuit in higher education, I knew my life would be filled with various
Transforming the Future of LDS “When you hear hoofbeats, don’t expect to see a zebra”. This adage was used to teach primary care professionals about looking for common conditions. But
LDSF Canada 2023 Rare Disease Day Statement Read More »
People with Loeys-Dietz syndrome may experience pain throughout the body. Pain can be chronic (lasting more than three or four months) and negatively impact quality of life. To help decrease
Pain Resources and Clinics for Loeys-Dietz Syndrome Read More »
Justin’s eulogy, delivered by his father Salvatore (Sal) Fratino: Justin was born on March 27, 1982 at 9:32 AM and 4 hours later, he had the 1st of many more
In Memory of Justin Fratino Read More »
Loeys-Dietz syndrome (LDS) is a genetic condition that affects the body’s connective tissue. As a genetic condition, it can be traced back to your genes and may be passed on
Genetics and Loeys-Dietz Syndrome Read More »
My name is Kristýna, I am 28 years old and am a graduate clerk. I currently work in a supermarket and have been living in Prague for 10 years, but
Kristýna’s Story: “The story of an invisible” Read More »
