The first half of 2026 has been a period of remarkable growth, collaboration, and impact for our community. Together with our patients, families, clinicians, researchers, partners, and supporters, we have continued advancing our mission to improve the lives of individuals affected by Loeys-Dietz syndrome and other heritable thoracic aortic diseases (HTAD).
In this edition of our newsletter, we bring you:
- Upcoming events
- A powerful new blog post sharing patient stories
- A patient written e-book series
- An invitation to participate in the Canadian Survey on the Impact of Disease
Whether you’re a patient, caregiver, or healthcare professional, we hope these stories and events inspire connection and offer valuable insights.
In this edition, we highlight our work-and that of our partnersfrom January to June 2026 across our three core pillars: Research and Innovation, Advocacy and Awareness, and Patient Support and Community. From new research initiatives and educational resources to national advocacy efforts, community events, and expanded support services, these updates reflect the progress we are making together to build a stronger future for the HTAD community.