Events

Co-Creating Canada's Rare Disease Action Plan Breaking news and updates Meet and connect Interactive dialogues Case study panels

For the first time, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk […]

What is it? This patient-centred event aims to: Build a collaborative community amongst people living with Hypermobility Spectrum Disorders (HSD) and hypermobile Ehlers-Danlos Syndrome (hEDS), their allies, clinicians, and researchers. […]

Join patients, families, healthcare professionals, and researchers for a Patient & Family Day dedicated to connective tissue disorders and heritable thoracic aortic disorders (HTAD), including Marfan syndrome, Loeys-Dietz syndrome, and […]

The Marfan Foundation is collaborating with the European Society of Cardiology’s Peripheral Artery and Aortic Disease Working Group, along with local hosts, Drs. Arturo Evangelista and Gisela Teixidó Turà, to present “Science in […]