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  • ICHOM Conference

    Boston, MA Boston, MA, United States

  • 2025 Cincinnati Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS

    Cincinnati Children's Hospital 3333 Burnet Ave, Cincinnati, OH, United States

    The 2025 Cincinnati Regional Symposium: Living Better with Marfan, Loey-Dietz, and VEDS, hosted by Cincinnati Children’s Hospital Medical Center in collaboration with the Marfan Foundation, promises to be an informative […]

  • Rare Disease Conference Fall 2025

    Ottawa Marriott Hotel 100 Kent St, Ottawa, Ontario, Canada

    Co-Creating Canada's Rare Disease Action Plan Breaking news and updates Meet and connect Interactive dialogues Case study panels

  • Hope for Hypermobility 2026

    Theatre One, Health Sciences Centre (HSC), Foothills Campus 3330 Hospital Dr NW, Calgary, Alberta, Canada

    What is it? This patient-centred event aims to: Build a collaborative community amongst people living with Hypermobility Spectrum Disorders (HSD) and hypermobile Ehlers-Danlos Syndrome (hEDS), their allies, clinicians, and researchers. […]

    Free

  • Saskatoon Patient & Family Day – Connective Tissue Disorders and Aortopathy

    Saskatoon, Saskatchewan 102 Spadina Crescent E, Saskatoon, SK, Canada

    Join patients, families, healthcare professionals, and researchers for a Patient & Family Day dedicated to connective tissue disorders and heritable thoracic aortic disorders (HTAD), including Marfan syndrome, Loeys-Dietz syndrome, and […]

  • Science in Spain

    Barcelona, Spain Barcelone, Spain

    The Marfan Foundation is collaborating with the European Society of Cardiology’s Peripheral Artery and Aortic Disease Working Group, along with local hosts, Drs. Arturo Evangelista and Gisela Teixidó Turà, to present “Science in […]