2025 HiRO Annual Symposium
The HiRO Annual Symposium brings together the Canadian community of cardiogenetics specialists, researchers, patients, families and industry partners, with a goal to improve the care of families with inherited heart […]
The HiRO Annual Symposium brings together the Canadian community of cardiogenetics specialists, researchers, patients, families and industry partners, with a goal to improve the care of families with inherited heart […]
The 2025 Cincinnati Regional Symposium: Living Better with Marfan, Loey-Dietz, and VEDS, hosted by Cincinnati Children’s Hospital Medical Center in collaboration with the Marfan Foundation, promises to be an informative […]
Co-Creating Canada's Rare Disease Action Plan Breaking news and updates Meet and connect Interactive dialogues Case study panels
For the first time, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk […]
What is it? This patient-centred event aims to: Build a collaborative community amongst people living with Hypermobility Spectrum Disorders (HSD) and hypermobile Ehlers-Danlos Syndrome (hEDS), their allies, clinicians, and researchers. […]
Join patients, families, healthcare professionals, and researchers for a Patient & Family Day dedicated to connective tissue disorders and heritable thoracic aortic disorders (HTAD), including Marfan syndrome, Loeys-Dietz syndrome, and […]