• 2025 HiRO Annual Symposium

    Auberge Saint-Antoine Hotel 8 Rue Saint-Antoine, Québec, Quebec, Canada

    The HiRO Annual Symposium brings together the Canadian community of cardiogenetics specialists, researchers, patients, families and industry partners, with a goal to improve the care of families with inherited heart […]

  • ICHOM Conference

    Boston, MA Boston, MA, United States
  • 2025 Cincinnati Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS

    Cincinnati Children's Hospital 3333 Burnet Ave, Cincinnati, OH, United States

    The 2025 Cincinnati Regional Symposium: Living Better with Marfan, Loey-Dietz, and VEDS, hosted by Cincinnati Children’s Hospital Medical Center in collaboration with the Marfan Foundation, promises to be an informative […]

  • Rare Disease Conference Fall 2025

    Ottawa Marriott Hotel 100 Kent St, Ottawa, Ontario, Canada

    Co-Creating Canada's Rare Disease Action Plan Breaking news and updates Meet and connect Interactive dialogues Case study panels

  • Hope for Hypermobility 2026

    Theatre One, Health Sciences Centre (HSC), Foothills Campus 3330 Hospital Dr NW, Calgary, Alberta, Canada

    What is it? This patient-centred event aims to: Build a collaborative community amongst people living with Hypermobility Spectrum Disorders (HSD) and hypermobile Ehlers-Danlos Syndrome (hEDS), their allies, clinicians, and researchers. […]

    Free
  • Saskatoon Patient & Family Day – Connective Tissue Disorders and Aortopathy

    Saskatoon, Saskatchewan 102 Spadina Crescent E, Saskatoon, SK, Canada

    Join patients, families, healthcare professionals, and researchers for a Patient & Family Day dedicated to connective tissue disorders and heritable thoracic aortic disorders (HTAD), including Marfan syndrome, Loeys-Dietz syndrome, and […]