Category: Newsletters

At Loeys-Dietz Canada, we are dedicated to fostering a supportive environment for individuals, families, clinicians, and researchers impacted by Loeys-Dietz syndrome (LDS) and other related Hereditary Thoracic Aortic Disorders (HTAD).

Today, we’re proud to highlight key initiatives that support individuals and families affected by heritable aortopathies, from groundbreaking research to advocacy efforts in new medical fields. In this issue, you

This year, your generous support has helped us to make a big difference in the Loeys-Dietz syndrome (LDS) community. Whether you’ve contacted us for help or given time, feedback, or

In honour of IBD (Inflammatory Bowel Disease) Awareness Month, we are teaming up with the Canadian Digestive Health Foundation to raise awareness and bring you the latest information on IBD

The Loeys-Dietz Syndrome Foundation Canada is proud to announce the 2022 recipients of our first LEAP Impact Award. Congratulations to Nairy Khodabakhshian, Dr. Pei-Yu Chen, Dr. Michelle Keir, and Dr.

As youth with Loeys-Dietz syndrome or other complex, chronic conditions grow older, they transition from pediatric to adult health services. This change may raise questions such as: “What should I

As the school year approaches, LDS families may have questions – about how to prepare, what schools should know, and more. In this issue, we provide answers, suggest resources, and

Whether for fun or for medical care, you may find yourself traveling this summer. Travelling with a medical condition like Loeys-Dietz syndrome can be complicated – but it can be

The Loeys-Dietz Syndrome Foundation Canada is excited to announce a new hotline for the Loeys-Dietz syndrome (LDS) community! Do you have questions about LDS? Are you looking for peer support

In honour of National Caregiver Day on April 5, this issue is dedicated to the many LDS caregivers and the people who support them. We cover: Navigating your caregiver journey