Today, we’re proud to highlight key initiatives that support individuals and families affected by heritable aortopathies, from groundbreaking research to advocacy efforts in new medical fields.
In this issue, you will find:
- Rare Disease Day 2025 – Learn more about this global awareness initiative.
- Introducing the CAN-ACT Registry – A vital step in improving care and research for rare aortic conditions in Canada.
- Advocacy at the ICOI Conference – How we’re engaging the dental community in early diagnosis and care.
Read on to discover how we’re making an impact!