2024 CAN-ACT National Investigator Meeting

This event is co-funded by the Canadian Institutes of Health Research (CIHR) and the Loeys-Dietz Syndrome Foundation Canada (LDSFC).

Hosted at the Marriott Fairfield Inn & Suites Montreal Airport Hotel, 7700, Avenue Michel Jasmin, Dorval (Montréal), QC on Friday, May 31, 2024.


This event is invite only.

Registration Deadline: April 30, 2024

CAN-ACT Registry Logo

The upcoming National Investigator Meeting will bring together CAN-ACT investigators and patient-partners. This collaborative gathering aims to foster brainstorming, identification, discussions and validation of emerging research questions.

Meeting Objectives & Agenda

This meeting aims to confirm if the patient data elements that will be collected will address crucial and shared aspects of the hereditary aortopathy community at large, and is aligned with all our investigators own research objectives.

  • To validate the patient questionnaires (Symptom, Quality of Life, and Exercise)

  • To identify patient-oriented research questions

  • To validate patient recruitment strategies and estimate potential patient numbers

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