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May 10 2015

The second annual Nik Dragicevic Memorial Tournament was held in Windsor, Ontario from May 8th to 10th.  This event remembers a remarkable individual by bringing together people to do what he loved most, spend time with family and friends, and play basketball.  This year, organisers were thrilled to have more than 55 teams participate in the three-day tournament, and more than 500 people gather together in the evening to celebrate the weekend.  Nik's name will forever be spoken with love, and his family and friends are working hard to raise awareness and research funds for the Loeys-Dietz Syndrome Foundation Canada in his honour.  For more information, and pictures, please visit Thank you to all those who worked to make this tournament a reality!read more

May 01 2015

This past May, the Foundation launched a brand new website in accordance with its organizational rebranding efforts.  The site now serves as the main hub for up-to-date information on medical insights, patient tools, community events, research opportunities, useful videos, and much more. Special thanks to web developer extraordinaire George Petridis for volunteering countless hours to make this project a reality. Check it out today!

Un nouveau site web

En mai dernier, la Fondation a procédé au lancement de son tout nouveau site Web, dans le cadre des mesures prises pour renouveler son image. Ce nouveau site sera LA source où trouver l’information la plus à jour sur les données médicales, les événements de la communauté et les initiatives de recherche,  des outils pour les patients, des vidéos et des liens utiles, et bien plus. Nous souhaitons remercier George Petridis pour les nombreuses heures qu'il a consacrées à la réalisation de ce projet. Visitez le nouveau site dès aujourd’hui!
Veuillez cependant noter que le volet francophone du site Internet n’est pas encore terminé. Vous souhaitez nous aider à traduire et réviser le nouveau site? Écrivez-nous au

Loeys-Dietz Canada Website Screenshotread more

April 18 2015

The conference addressed the integration of new genomic technologies into the healthcare system, at the level of practice and policy, including implications for patients and families, clinicians, health care systems, and more

January 15 2015
loeys dietz day sick kids toronto

Looking back on an unforgettable day.

By Johane Gauthier Galli and Alexander Galliread more