Events

The 2025 Cincinnati Regional Symposium: Living Better with Marfan, Loey-Dietz, and VEDS, hosted by Cincinnati Children’s Hospital Medical Center in collaboration with the Marfan Foundation, promises to be an informative and engaging event. The symposium will focus on genetic aortic and vascular conditions and will feature two distinct days: a Provider Day (October 24) and […]

Co-Creating Canada's Rare Disease Action Plan Breaking news and updates Meet and connect Interactive dialogues Case study panels

For the first time, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk about LDS from those with lived experience. Join four community members – two from the United States and two from Canada – for this dynamic […]

What is it? This patient-centred event aims to: Build a collaborative community amongst people living with Hypermobility Spectrum Disorders (HSD) and hypermobile Ehlers-Danlos Syndrome (hEDS), their allies, clinicians, and researchers. Share the latest information from leading clinicians, patient advocates, and researchers. Engage patients and caregivers in establishing an interdisciplinary clinic in Calgary for people living […]

Join patients, families, healthcare professionals, and researchers for a Patient & Family Day dedicated to connective tissue disorders and heritable thoracic aortic disorders (HTAD), including Marfan syndrome, Loeys-Dietz syndrome, and related conditions. Taking place on September 25, 2026, at Remai Modern in Saskatoon, this in-person event will bring together experts from a range of specialties […]

The Marfan Foundation is collaborating with the European Society of Cardiology’s Peripheral Artery and Aortic Disease Working Group, along with local hosts, Drs. Arturo Evangelista and Gisela Teixidó Turà, to present “Science in Spain.”  This joint meeting brings together: The 12th International Symposium on Marfan, Loeys-Dietz, Vascular Ehlers-Danlos and Related Syndromes The Genetic Aortic Network and the European Society for Cardiology Aorta and […]