Events

The HiRO Annual Symposium brings together the Canadian community of cardiogenetics specialists, researchers, patients, families and industry partners, with a goal to improve the care of families with inherited heart disease.

The 2025 Cincinnati Regional Symposium: Living Better with Marfan, Loey-Dietz, and VEDS, hosted by Cincinnati Children’s Hospital Medical Center in collaboration with the Marfan Foundation, promises to be an informative and engaging event. The symposium will focus on genetic aortic and vascular conditions and will feature two distinct days: a Provider Day (October 24) and […]

Co-Creating Canada's Rare Disease Action Plan Breaking news and updates Meet and connect Interactive dialogues Case study panels

For the first time, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk about LDS from those with lived experience. Join four community members – two from the United States and two from Canada – for this dynamic […]

What is it? This patient-centred event aims to: Build a collaborative community amongst people living with Hypermobility Spectrum Disorders (HSD) and hypermobile Ehlers-Danlos Syndrome (hEDS), their allies, clinicians, and researchers. Share the latest information from leading clinicians, patient advocates, and researchers. Engage patients and caregivers in establishing an interdisciplinary clinic in Calgary for people living […]