The Loeys-Dietz Syndrome Foundation Canada is excited to announce a new hotline for the Loeys-Dietz syndrome (LDS) community! Do you have questions about LDS? Are you looking for peer support
In honour of National Caregiver Day on April 5, this issue is dedicated to the many LDS caregivers and the people who support them. We cover: Navigating your caregiver journey
Loeys-Dietz Syndrome Foundation Canada (LDSFC) is looking for volunteers to read scientific articles and help us expand our GRIP database!
In this issue, we cover well-known people with three types of connective tissue disorders: Loeys-Dietz syndrome, Marfan syndrome, and Ehlers-Danlos syndrome. We also discuss the importance of multidisciplinary care and
Chronic pain is a common problem for people with Loeys-Dietz syndrome. In this issue, we discuss: why you may be having chronic pain; what you can do to decrease your
Mark your calendars for the upcoming launch of our first 4 LEAP Impact Awards! Applications open January 24, 2022. In anticipation of the launch, this month’s newsletter includes a guide
In preparation for the upcoming holidays, we explore allergic disease and the best allergy-friendly recipes. We also thank our amazing volunteers and cover the upcoming launch of our first 4
In honour of National Child Day, celebrated on November 20, this issue focuses on children. We cover the facts on kids with LDS, a caregiver’s story, the importance of multidisciplinary
In this issue, we discuss: Genetics and LDS: Random Mutations and Family Affairs LDS Support Centre Focus Group: Call for Patient Participants Zamplo: Call for Patient Participants
Catch up on past issues of our newsletters, featuring updates on research, events, community stories, and resources related to Heritable Thoracic Aortic Disorders (HTADs). Stay informed and connected to our work and the HTAD community
