Category: Newsletters

Loeys-Dietz Syndrome Foundation Canada (LDSFC) is looking for volunteers to read scientific articles and help us expand our GRIP database!

In this issue, we cover well-known people with three types of connective tissue disorders: Loeys-Dietz syndrome, Marfan syndrome, and Ehlers-Danlos syndrome. We also discuss the importance of multidisciplinary care and

Chronic pain is a common problem for people with Loeys-Dietz syndrome. In this issue, we discuss: why you may be having chronic pain; what you can do to decrease your

Mark your calendars for the upcoming launch of our first 4 LEAP Impact Awards! Applications open January 24, 2022. In anticipation of the launch, this month’s newsletter includes a guide

In preparation for the upcoming holidays, we explore allergic disease and the best allergy-friendly recipes. We also thank our amazing volunteers and cover the upcoming launch of our first 4

In honour of National Child Day, celebrated on November 20, this issue focuses on children. We cover the facts on kids with LDS, a caregiver’s story, the importance of multidisciplinary

In this issue, we discuss: Genetics and LDS: Random Mutations and Family Affairs LDS Support Centre Focus Group: Call for Patient Participants Zamplo: Call for Patient Participants