Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port Washington,
Seven leading North American nonprofits dedicated to aortic dissection awareness are uniting for the first time during Aortic Dissection Awareness Week 2025, urging the public to think “STAT” and recognize
What Is Scoliosis? Scoliosis is a spinal deformity that involves both rotation and lateral curvature of the spine The five main types of scoliosis include idiopathic, congenital, neuromuscular, syndrome-related, and
Emergencies can strike when least expected, especially for those living with or caring for someone with Loeys-Dietz syndrome (LDS). Understanding the unique challenges associated with this rare connective tissue disorder,
Loeys-Dietz syndrome (LDS) is a disorder that attacks the connective tissue in the body, leaving individuals with the syndrome susceptible to cardiovascular complications. These complications, which can be life-threatening if
In the realm of healthcare, where progress seems boundless, addressing chronic pain remains a formidable challenge. While medical advancements have enabled the treatment of various ailments, there are conditions like
Bringing a child into the world is a profound and joyous journey, filled with anticipation and excitement. However, for individuals and families affected by Loeys-Dietz syndrome (LDS), this journey may
An Overview into the Phenotypic Differences Across LDS Subtypes 8 min. read Do the different types of Loeys-Dietz syndrome (LDS) have different features? Research has now shown that there are
People with Loeys-Dietz syndrome (LDS) are more likely than others to have allergic diseases like allergies, eczema, asthma, and eosinophilic gastrointestinal disease. How do you know if you have an
Caregivers play an invaluable role in the lives of people with Loeys-Dietz syndrome (LDS). However, caregiving can be challenging. It is important to talk about navigating this journey and finding
If you or a loved one is affected by a Heritable Thoracic Aortic Disorder (HTAD)—such as Loeys-Dietz syndrome, Marfan syndrome, vascular Ehlers-Danlos syndrome, or another related condition—you may have questions about what life with one of these diagnoses will look like.
These educational blog articles are designed to help. We cover a wide range of topics relevant to HTADs, including: genetics and inheritance, signs and symptoms across body systems, diagnosis and treatment planning, and long-term management. You’ll also find practical guidance on everyday life with a heritable aortic condition—covering areas such as exercise, nutrition, chronic pain, mental health, family planning, caregiving, and navigating school or work.
If you have more questions or need support, please contact our free Loeys-Dietz syndrome helpline at 1-888-LDS-FCAN or here: https://loeysdietzcanada.org/contact-us/
