News and Events
Events
Events
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Hope for Hypermobility 2026
Theatre One, Health Sciences Centre (HSC), Foothills Campus 3330 Hospital Dr NW, Calgary, Alberta, CanadaWhat is it? This patient-centred event aims to: Build a collaborative community amongst people living with Hypermobility Spectrum Disorders (HSD) and hypermobile Ehlers-Danlos Syndrome (hEDS), their allies, clinicians, and researchers. […]
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4th Heritable Aortic Disorders Symposium
Vancouver, BC Vancouver, British Columbia, Canada
The Foundation is proud to sponsor and support a variety of events in the Loeys-Dietz
syndrome (LDS) community. With your help, our events provide education and support, and raise awareness for LDS.
News and Press Releases
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community
Canadian and U.S. Loeys-Dietz Syndrome Organizations Team Up to Help People Living with Rare Condition Find Community First-ever joint virtual event to share personal perspectives Montreal, Quebec | Port Washington,
Aortic Dissection Awareness Week (September 14 – 20, 2025)
Seven leading North American nonprofits dedicated to aortic dissection awareness are uniting for the first time during Aortic Dissection Awareness Week 2025, urging the public to think “STAT” and recognize
From Rare to Recognized – LDSFC at the 29th Canadian Connective Tissue Conference (CCTC)
From May 26th to 28th, 2025, Loeys-Dietz Canada proudly participated in the 29th Annual Canadian Connective Tissue Conference (CCTC), held in Montreal, Quebec. As a sponsor of this important scientific
Clinicians will be Connecting the Dots at this Upcoming Conference
Pediatric Gastroenterology & Cardiology for the Clinician Cardiology and Gastroenterology physicians, nurses and allied health professionals are invited to participate in this interactive, small-group learning opportunity in Montreal on May
LDSFC at the 2025 ICOI Conference
This February, Loeys-Dietz Syndrome Foundation Canada (LDSFC) proudly participated in the 2025 International Congress of Oral Implantologists (ICOI) conference in New Orleans. This event brought together a diverse group of
Canadian Paediatric Spine Society Symposium
Exploring Connective Tissue Disorders and Spinal Manifestations In a significant leap towards advancing medical understanding and patient care, the Loeys-Dietz Syndrome Foundation Canada, in collaboration with the Canadian Paediatric Spine
Event Descriptions
Heritable Aortic Disorders (HAD) Symposium 2023
The HAD Symposium is a unique opportunity for patients, families, friends, and medical
professionals to meet and learn about advances in the genetics, diagnosis and management of
Heritable Aortic Disorders like Loeys-Dietz syndrome (LDS).
Local and international experts cover a range of topics such as genetics, diagnosis, treatment, cardiac surgery, ophthalmology, orthopedics, pain management, and emergency situations.
Day 1 is dedicated to educating and updating medical professionals on the latest developments in diagnosing, screening, and managing hereditary aortopathies. The day is typically eligible for CME credits.
Day 2 is a time for patients, families, and friends to learn and connect. Participants have the opportunity to speak with LDS specialists from around the world and to connect with other people and families living with LDS.
The Symposium takes place annually and rotates between major Canadian cities. HAD 2023 is currently being planned for Halifax, Nova Scotia.
Are you interested in attending HAD 2023? Sign up for our mailing list.
