Where to Find a Clinic
Find a Clinic for Loeys-Dietz Syndrome
The Foundation’s Find a Clinic directory lists Canadian health centres where staff have expertise in Loeys-Dietz syndrome, related conditions, and genetics and/or cardiology. It may be necessary to obtain a referral to be treated at these centres.
If you cannot find a clinic near you or would like to find a clinic specializing in orthopedics, neurology, physiotherapy, women’s health, or other, please contact us.
Peter Lougheed Centre
Southern Alberta Adult Congenital Heart Clinic
Provides care and long term management of adults with congenital heart conditions.
- 26 Avenue NE #3500, Calgary, Alberta, T1Y 6J4
- Phone: 403-943-4504
- Fax: 403-291-6814
Richmond Road Diagnostic and Treatment Centre
Clinical & Metabolic Genetics Program
Provides care for people and their families who have, or who are at risk for, inherited cardiac conditions and connective tissue conditions.
- 1820 Richmond Road SW, Calgary, Alberta, T2T 5C7
- Phone: 403-943-9944
- Fax: 403-592-4218 (General Fax), 403-476-8752 (Referral Fax)
Alberta Children’s Hospital
Cardiovascular Genetics Clinic
Provides care for people and their families who have, or who are at risk for, inherited cardiac conditions and connective tissue conditions.
- 28 Oki Drive NW, Calgary, Alberta, T3B 6A8
- Phone: 403-955-7373
- Fax: 403-592-4218 (General Fax), 403-476-8752 (Referral Fax)
University of Calgary
Provides assessment, diagnosis and treatment to patients living with aortic conditions including thoracoabdominal aortic aneurysm, ascending and aortic arch aneurysm and inherited/congenital aortopathy.
- 4449 Front Street SE, Calgary, Alberta, T3M 1M4
Phone: 403-956-2655
Stollery Children’s Hospital
- 4C2n Walter Mackenzie Centre, 8440 112 Street NW, Edmonton, Alberta, T6G 2B7
- Phone: 780-407-3392
- Fax: 780-407-3310
Stollery Children’s Hospital
Specializes in the diagnosis and follow-up of children with congenital or acquired cardiac disease from birth to 18 years of age.
- 4C2n Walter Mackenzie Centre, 8440 112 Street NW, Edmonton, Alberta, T6G 2B7
- Phone: 780-407-3392
- Fax: 780-407-3310
Mazankowksi Alberta Heart Institute
Northern Alberta Adult Congenital Heart Program
Provides care and long-term management of adults with congenital heart disease.
- 11220 83 Avenue NW, Room 2a5.061, Edmonton, Alberta, T6G 2B7
- Phone: 780-407-6552
- Fax: 780-407-4546
The Heart Centre at St. Paul’s Hospital
(Affiliated with Providence Health Care)
Provides comprehensive, multisystem assessments, care and follow up for people with a wide range of genetic disorders that stretch or weaken the aorta (e.g. Loeys-Dietz, Marfan Syndrome, other connective tissue disorders).
- 1081 Burrard Street, Room 5051 (Providence Building), Vancouver, British Columbia, V6Z 1Y6
- Phone: : 604-682-2344 x 63728
- Fax: 604-602-8644
Vancouver General Hospital
The Vancouver Coastal Health (VCH) Centre for Thoracic Aortic Disease (CTAD)
- 2775 Laurel Street, 9th floor, Vancouver, British Columbia, V5Z 1M9
- Phone: 604-875-4553
- Fax: 604-875-5806
BC Children’s Hospital
Provides expert care to children and youth living with a range of heart conditions, including congenital and acquired diseases.
- 4500 Oak Street, Vancouver, British Columbia, V6H 3V4
Phone: 604-875-2120
BC Women’s and Children Hospital
Provincial Medical Genetics Program
- 4500 Oak Street, Vancouver, British Columbia, V6H 3N1
- Phone: 604-875-2157
- Fax: 604-875-2376
Victoria General Hospital
Department of Medical Genetics
Assesses individuals and families with known or possible genetic diagnoses.
- 1 Hospital Way, Victoria, British Columbia, V8X 6RS
- Phone: 250-727-4461
- Fax: 250-727-4295
Royal Jubilee Hospital
Provides expert and timely care for individuals with thoracic aortic disease living on Vancouver Island.
- 2020 Richmond Road, Suite #106, Victoria, British Columbia, V8R 6R5
- Phone: 250-595-1833
- Fax: 250-595-1889
- Email: vcs@victoriacardiacsurgery.ca
Cardiac Sciences Manitoba
Manitoba Thoracic Aortic Diseases Clinic (MTAC)
Provides high quality and comprehensive care to patients in Manitoba, Northwestern Ontario, and Nunavut with thoracic aortic disease.
- CR 1005 – 369 Tache Ave, Winnipeg, Manitoba, R2H 2A6
- Phone: 204-258-1811
- Fax: 204-231-5493
Children’s Hospital of Manitoba
(Affiliated with the University of Manitoba)
Cardiology Clinic at the Children’s Heart Centre
Includes pediatric cardiologists, nurse clinicians, CVT technologists, a social worker, and administrative staff.
- 820 Sherbrook Street, Level 4, JM-476, Winnipeg, Manitoba, R3E 0Z2
- Phone: 204-787-2071
Fax: 204-787-2004
New Brunswick Heart Centre
New Brunswick Centre for Aortic Disease
Provides treatment, surgical services, and consultation for patients across NB and Atlantic Canada.
Partnered with: The Maritime Connective Tissue Clinic (Halifax)
- 400 University Avenue, St. John, New Brunswick, E2L 4L4
- Phone: 506-648-7782
- Fax: 506-648-6110
Health Sciences Centre
- 300 Prince Phillip Drive, St. John’s, Newfoundland, A1B 3V6
- Phone: 709-777-2640
IWK Health Centre
(Affiliated with Dalhousie University)
Maritime Medical Genetics Service
Provides genetic services to people in Nova Scotia, New Brunswick, and Prince Edward Island.
- 5980 University Avenue #5850, Halifax, Nova Scotia, B3K 6R8
- Phone: 902-470-8754
- Fax: 902-470-8709
Maritime Heart Centre
A multidisciplinary care clinic for patients and families affected by genetic mutations causing aneurysms and connective tissue disorders.
- 1796 Summer Street, Room 2102, Halifax, Nova Scotia, B3H 3A7
- Phone: 902-473-1945
- Fax: 902-473-2434
St. Michael’s Hospital
Aortopathy and Connective Tissue Disease Clinic
Provides assessment and counselling for people who may be at risk for, or known to have a hereditary condition based on their medical or family history.
- 30 Bond St., Toronto Ontario, M5B 1W8
- Phone: 416-864-5376
- Fax: 416-864-6021
The Hospital for Sick Children (SickKids)
(Affiliated with the University of Toronto)
Cardiology Clinic at the Labatt Family Heart Centre
- 555 University Avenue, 4th Floor, Atrium (4A), Toronto, Ontario, M5G 1X8
- Phone: 416-813-5848
- Fax: 416-813-5582
Clinical and Metabolic Genetic
Diagnosis and management of children with suspected connective tissue disorders, including Loeys-Dietz and Marfan syndromes.
- 5550 University Avenue, Toronto, Ontario, M5G 1X8
- Phone: 416-813-6390
- Fax: 416-813-5345
Toronto General Hospital
(Affiliated with University Health Network)
Cardiology Clinic at the Peter Munk Cardiac Centre
- 585 University Avenue, Norman Urquhart Building, 5th floor, Toronto, Ontario, M5G 2N2
- Phone: 416-340-5309
- Toll-free: 888-846-4278 (888-UHN-HART)
- Fax: 416-340-4127
- Email: pmcc_acc@uhn.ca
Children’s Hospital of Eastern Ontario (CHEO)
(Affiliated with the University of Ottawa)
Connective Tissue Clinic “The connective tissue clinic at CHEO accepts referrals for patients with suspected underlying heritable connective tissue disorders. We aim to diagnose and care for patients and families with Loeys-Dietz syndrome, Marfan syndrome, vascular EDS and other forms of familial thoracic aneurysms. We also see patients without a family history if they present with a significant aortic dilation before 50 years of age or if they sustained a spontaneous arterial dissection prior to age 50 in the absence of another identified etiology. Finally, we see patients with significant joint hypermobility in the presence of additional findings. Care is provided in close collaboration with the team from the Aorta Clinic of the Ottawa Heart Institute for our adult patients and with Dr. Lai and other pediatric cardiologists for our pediatric patients.”
The clinic is open to individuals of all ages, despite it being housed in a paediatric hospital.
- 401 Smyth Road, Ottawa, Ontario, K1H 8L1
- Phone: 613-737-2275
- Fax: 613-738-4822
University of Ottawa Heart Institute
(Affiliated with the University of Ottawa)
- 40 Ruskin Street, Ottawa, Ontario, K1Y 4W7
- Phone: 613-696-7237
- Fax: 613-696-7302
- Email: aorticclinic@ottawaheart.ca
London Health Sciences Centre
Medical Genetics Program of Southwestern Ontario
Provides comprehensive services in medical genetics to individuals, couples, and families in London and surrounding area, in a caring, respectful, and compassionate environment for all patients.
- Zone B Level 5 (North Tower), Room 040 (B5-040), 800 Commissioners Road East, London, Ontario, N6A SW9
- Phone: 519-685-8140
- Fax: 519-685-8214
Mount Sinai Hospital
Fred A. Litwin Family Centre in Genetic Medicine
- 3rd Floor, Room 300, 60 Murray Street, Toronto, Ontario, MST 3L9
Credit Valley Hospital
- 2200 Eglinton Avenue West, Mississauga, Ontario, L5M 2N1
Hamilton Health Sciences
Adult Congenital Heart Disease/Cardiac Diseases in Pregnancy Clinic
Provides individualized long-term care for adult patients born with congenital heart disease, including patients with diseases of the thoracic aorta.
- McMaster University Medical Centre, 1200 Main St W, Boris Clinic, 4th Floor, Yellow Section, Hamilton, Ontario, L8N 3Z5
- Phone: 905-521-2100 Ext 76645
- Fax: 905-521-5053
Montreal Heart Institute
(Affiliated with Université de Montréal)
Aorta and Connective Tissue Clinic at the Cardiovascular Genetics Centre
- The clinic was the subject of a study and article.
- Article: First 2 years of experience of an integrated multidisciplinary clinic for adults with aortopathies in a Canadian context
- Citation: Laberge A, Hamamsy IE, Robb L, et al. MG-114 First 2 years of experience of an integrated multidisciplinary clinic for adults with aortopathies in a canadian context. Journal of Medical Genetics 2015;52:A3.
- 5000 Bélanger Street, Montréal, Québec, H1T 1C8
- Phone: 514-376-3330 x 2498
- Fax: 514-593-2158
The Montreal Children’s Hospital
(Affiliated with the McGill University Health Centre)
- 1001 Décarie Boulevard, Room B-RC.3219, Montreal, Québec, H4A 3J1
- Phone: 514-412-4400 ext. 23269
- Fax: 514-412-4273
- Email:
McGill University Health Centre
Aortic Clinic (for adults)
- 1001 Décarie Boulevard, A 04.3140, Montréal, Québec, H4A 3J1
- Phone: 514-412-4427
- Fax: 514-412-4296
CHU Sainte-Justine
(Affiliated with Université de Montréal)
- 3175 Côte-Sainte-Catherine Road, Montréal, Québec, H3T 1C5
- Phone: 514-345-4654
- Fax: 514-345-2171
Centre hospitalier de l’Université de Montréal (CHUM)
The center provides multidisciplinary care in collaboration with specialists in hereditary aortopathies from internal medicine, genetics, cardiology, cardiac surgery, and vascular surgery.
- 1000 Saint-Denis Street, Montreal, Quebec, H2X 0C1
- Phone: 514-890-8000 ext. 14943
- Fax: 514-412-7125
- Email: centre.aortique.dsi.chum@ssss.gouv.qc.ca
Quebec Heart and Lung Institute
(Affiliated with the University of Laval)
Thoracic Aortic Disease Clinic
- 2725 Ste-Foy Road, Québec, Quebec G1V 4G5
- Phone: 418-656-8711 x 3395
- Fax: 418-656-4856
- Email: iucpq.cmat@ssss.gouv.qc.ca
Jim Pattison Children’s Hospital
Pediatric Cardiology Clinic
- 103 Hospital Drive, Saskatoon, Saskatchewan, S7N 0W8
- Phone: 306-844-1235
- Fax: 306-844-153
Medical genetics focuses on how genetic or inherited conditions can affect a child’s health and development.
- 103 Hospital Drive, Saskatoon, Saskatchewan, S7N 0W8
- Phone: 306-655-1692
- Email: medicalgenetics@saskatoonhealthregion.ca
The Foundation offers the Find a Clinic directory as an informative resource to support patients and families with Loeys-Dietz syndrome and related conditions. We do not provide social, health, or medical services nor are we responsible for medical or other referred services provided by third parties.
If you would like to include a medical team or clinic in this directory, please contact us.