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X-WR-CALNAME:Loeys-Dietz Syndrome Foundation Canada
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X-WR-CALDESC:Events for Loeys-Dietz Syndrome Foundation Canada
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SUMMARY:Hope for Hypermobility 2026
DESCRIPTION:What is it? \n\n\nThis patient-centred event aims to: \n\nBuild a collaborative community amongst people living with Hypermobility Spectrum Disorders (HSD) and hypermobile Ehlers-Danlos Syndrome (hEDS)\, their allies\, clinicians\, and researchers.\nShare the latest information from leading clinicians\, patient advocates\, and researchers.\nEngage patients and caregivers in establishing an interdisciplinary clinic in Calgary for people living with HSD/hEDS.\nFacilitate community-engaged research and peer support priorities related to HSD/hEDS in Southern Alberta.\n\nThe theme for this year’s event is: “Advocating for care”. \n\n\n\n\n\n\nWhere will it be? \n\nIn-person\n\nTheatre One\, Health Sciences Centre (HSC)\, Foothills Campus\, 3330 Hospital Dr NW\, Calgary\n\n\nOnline\n\nA secure link will be sent to all those who register for the event\n\n\n\n\n\n\n\nWho is it for? \nWe are organizing the event primarily for people living with HSD/hEDS. However\, friends\, family members\, caregivers\, students\, researchers\, clinicians\, and interested community members are also welcome to attend\, as are people living with other types of connective tissue disorders. \n\n\n\n\n\n\n\n\n\n\n\n\nWhen is the registration deadline? \nIn-person registration has reached capacity and is now closed. Additional registrants will be placed on a waitlist.Online registration closes at 10 am on Friday\, April 24\, 2026 to ensure accessibility needs and security are accounted for. \n\nHow much does it cost?This event is FREE to attend thanks to a generous donation from the Canerector Foundation. However\, in order to continue sustainably supporting patient outreach events we request that attendees consider making a donation to the Better Mobility Lab. A $5 donation per person is suggested.
URL:https://loeysdietzcanada.org/event/hope-for-hypermobility-2026/
LOCATION:Theatre One\, Health Sciences Centre (HSC)\, Foothills Campus\, 3330 Hospital Dr NW\, Calgary\, Alberta\, Canada
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