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X-ORIGINAL-URL:https://loeysdietzcanada.org
X-WR-CALDESC:Events for Loeys-Dietz Syndrome Foundation Canada
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DTSTART;VALUE=DATE:20260925
DTEND;VALUE=DATE:20260926
DTSTAMP:20260914T135411Z
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SUMMARY:Saskatoon Patient & Family Day - Connective Tissue Disorders and Aortopathy
DESCRIPTION:Join patients\, families\, healthcare professionals\, and researchers for a Patient & Family Day dedicated to connective tissue disorders and heritable thoracic aortic disorders (HTAD)\, including Marfan syndrome\, Loeys-Dietz syndrome\, and related conditions. \nTaking place on September 25\, 2026\, at Remai Modern in Saskatoon\, this in-person event will bring together experts from a range of specialties to provide practical\, accessible information on living with and managing these conditions. \nSessions will explore genetic testing\, aortic and cardiac care\, orthopedic concerns\, 3D facial imaging\, and available patient and family resources. The day will also create an opportunity for patients and families to connect with one another\, share their experiences\, ask questions\, and learn from members of the healthcare and research community. \nThe event is presented by the Canadian Aortopathy and Connective Tissue Disorders Registry (CAN-ACT) and the Canadian Congenital and Pediatric Cardiology Research Network (CCPCRN). \nAgenda: Connective Tissue Disorders_Patient and Family Day_Program \nTo register\, please email Monique Reboe Benjamin at monique.reboebenjamin@usask.ca \nAccommodation support may be available for participants travelling from outside Saskatoon. Please feel free to contact her directly to discuss available support options.
URL:https://loeysdietzcanada.org/event/saskatoon-patient-family-day/
LOCATION:Saskatoon\, Saskatchewan\, 102 Spadina Crescent E\, Saskatoon\, SK\, Canada
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