{"id":9613,"date":"2026-02-23T12:58:22","date_gmt":"2026-02-23T17:58:22","guid":{"rendered":"https:\/\/loeysdietzcanada.org\/?post_type=tribe_events&#038;p=9613"},"modified":"2026-02-23T15:45:25","modified_gmt":"2026-02-23T20:45:25","slug":"points-de-vue-des-patients-vivre-avec-le-syndrome-de-loeys-dietz","status":"publish","type":"tribe_events","link":"https:\/\/loeysdietzcanada.org\/fr\/event\/points-de-vue-des-patients-vivre-avec-le-syndrome-de-loeys-dietz\/","title":{"rendered":"Points de Vue des Personnes : Vivre avec le Syndrome de Loeys-Dietz"},"content":{"rendered":"<p data-start=\"0\" data-end=\"290\">Pour la toute premi\u00e8re fois, la Fondation du syndrome de Loeys-Dietz Canada et la Fondation du syndrome de Loeys-Dietz \u2013 une division de la Marfan Foundation \u2013 unissent leurs forces pour vous offrir une discussion authentique sur le SLD, anim\u00e9e par des personnes ayant une exp\u00e9rience v\u00e9cue.<\/p>\n<p data-start=\"292\" data-end=\"424\">Joignez-vous \u00e0 quatre membres de la communaut\u00e9 \u2013 deux des \u00c9tats-Unis et deux du Canada \u2013 pour cette discussion dynamique et mod\u00e9r\u00e9e.<\/p>\n<p data-start=\"426\" data-end=\"593\">L\u2019inscription est gratuite, mais obligatoire. Vos questions \u00e0 l\u2019avance peuvent \u00eatre envoy\u00e9es \u00e0 l\u2019adresse suivante : <a class=\"decorated-link cursor-pointer\" rel=\"noopener\" data-start=\"542\" data-end=\"563\">brandcomms@marfan.org<\/a> \u2014 elles sont les bienvenues !<\/p>\n<p data-start=\"595\" data-end=\"902\" data-is-last-node=\"\" data-is-only-node=\"\">Veuillez noter : les renseignements des personnes inscrites seront partag\u00e9s avec les fondations canadienne et am\u00e9ricaine du syndrome de Loeys-Dietz pour des raisons pratiques li\u00e9es \u00e0 cet \u00e9v\u00e9nement conjoint. Nous vous invitons \u00e0 consulter nos politiques de confidentialit\u00e9 : <a href=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2026\/02\/2023-11-21_FR_Politique-de-protection.pdf\">LDSF Canada<\/a> et <a href=\"https:\/\/marfan.org\/privacy\/\">LDSF (\u00c9tats-Unis).<\/a><\/p>\n<p data-start=\"595\" data-end=\"902\" data-is-last-node=\"\" data-is-only-node=\"\">Ce webinaire se tiendra uniquement en anglais.<\/p>\n<p data-start=\"595\" data-end=\"902\" data-is-last-node=\"\" data-is-only-node=\"\"><a href=\"https:\/\/events.marfan.org\/en\/i0HMOL6\/g\/PZK9gy065W\/peoples-perspectives-living-with-loeys-dietz-syndrome-5a3qRf7pesD\/overview\">Cliquez ici pour vous inscrire<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Pour la toute premi\u00e8re fois, la Fondation du syndrome de Loeys-Dietz Canada et la Fondation du syndrome de Loeys-Dietz \u2013 une division de la Marfan Foundation \u2013 unissent leurs forces [&hellip;]<\/p>\n","protected":false},"author":10,"featured_media":0,"template":"","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","footnotes":""},"tags":[],"tribe_events_cat":[],"class_list":["post-9613","tribe_events","type-tribe_events","status-publish","hentry"],"aioseo_notices":[],"aioseo_head":"\n\t\t<!-- All in One SEO 4.9.9 - aioseo.com -->\n\t<meta name=\"description\" content=\"Pour la toute premi\u00e8re fois, la Fondation du syndrome de Loeys-Dietz Canada et la Fondation du syndrome de Loeys-Dietz \u2013 une division de la Marfan Foundation \u2013 unissent leurs forces pour vous offrir une discussion authentique sur le SLD, anim\u00e9e par des personnes ayant une exp\u00e9rience v\u00e9cue. 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