{"id":9055,"date":"2025-07-02T14:41:43","date_gmt":"2025-07-02T18:41:43","guid":{"rendered":"https:\/\/loeysdietzcanada.org\/?p=9055"},"modified":"2026-03-17T12:57:23","modified_gmt":"2026-03-17T16:57:23","slug":"de-rare-a-reconnu-fsldc-a-la-29e-canadian-connective-tissue-conference-cctc","status":"publish","type":"post","link":"https:\/\/loeysdietzcanada.org\/fr\/de-rare-a-reconnu-fsldc-a-la-29e-canadian-connective-tissue-conference-cctc\/","title":{"rendered":"De rare \u00e0 reconnu – FSLDC \u00e0 la 29e Canadian Connective Tissue Conference (CCTC)"},"content":{"rendered":"\t\t
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Du 26 au 28 mai 2025, Loeys-Dietz Canada a fi\u00e8rement particip\u00e9 \u00e0 la 29e Canadian Connective Tissue Conference (CCTC), qui s’est tenue \u00e0 Montr\u00e9al, au Qu\u00e9bec. En tant que commanditaire de cet important rassemblement scientifique, la FSLDC a eu l’honneur de contribuer \u00e0 une conf\u00e9rence r\u00e9unissant les plus grands chercheurs, cliniciens et partenaires de l’industrie du Canada afin de faire progresser les connaissances sur les maladies du tissu conjonctif.<\/p>

D\u00e9fendre la cause des maladies rares \u00e0 l’\u00e9chelle nationale<\/h5>

La pr\u00e9sence de la FSLDC a \u00e9t\u00e9 marqu\u00e9e par plusieurs contributions int\u00e9ressantes. Nous avons tenu un kiosque attrayant tout au long de la conf\u00e9rence, ce qui nous a permis d’\u00e9changer avec 123 participants<\/strong> de partout au Canada et de l’\u00e9tranger, de partager des ressources \u00e9ducatives et de nouer de nouveaux partenariats avec des scientifiques et des cliniciens engag\u00e9s dans l’avancement du domaine des maladies du tissu conjonctif h\u00e9r\u00e9ditaires.<\/p>

Un moment fort pour notre organisation a \u00e9t\u00e9 une pr\u00e9sentation sp\u00e9ciale donn\u00e9e par notre directrice g\u00e9n\u00e9rale, Jida El Hajjar. La conf\u00e9rence de Jida, intitul\u00e9e \u00ab De la raret\u00e9 \u00e0 la reconnaissance : \u00e9laborer une r\u00e9ponse nationale au syndrome de Loeys-Dietz (SLD) et \u00e0 la maladie h\u00e9r\u00e9ditaire de l’aorte thoracique \u00bb, <\/strong>a pr\u00e9sent\u00e9 la mission du FSLDC, les d\u00e9fis du diagnostic et de la prise en charge des maladies rares, ainsi que les progr\u00e8s r\u00e9alis\u00e9s dans l’\u00e9laboration d’une r\u00e9ponse nationale globale \u00e0 ces affections sous-diagnostiqu\u00e9es. Sa pr\u00e9sentation a soulign\u00e9 l’importance cruciale d’un diagnostic pr\u00e9coce, de la collaboration en recherche et de strat\u00e9gies de soins centr\u00e9es sur le patient.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Soutenir les talents \u00e9mergents et l’excellence scientifique<\/h5>

Outre sa pr\u00e9sentation, Jida a \u00e9galement particip\u00e9 en tant que juge au concours d’affiches de la conf\u00e9rence, contribuant ainsi \u00e0 \u00e9valuer les travaux innovants des scientifiques et cliniciens \u00e9mergents. Avec plus de 86\u00a0r\u00e9sum\u00e9s soumis<\/strong> et 54\u00a0affiches pr\u00e9sent\u00e9es<\/strong>, le concours de cette ann\u00e9e a refl\u00e9t\u00e9 le dynamisme et la profondeur de la recherche en cours sur la biologie et les maladies du tissu conjonctif.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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La conf\u00e9rence a maintenu sa tradition unique de responsabilisation des stagiaires, avec des sessions scientifiques copr\u00e9sid\u00e9es par de jeunes chercheurs et des opportunit\u00e9s de leadership int\u00e9gr\u00e9es tout au long de l’\u00e9v\u00e9nement. La FSLDC \u00e9tait fi\u00e8re de soutenir une conf\u00e9rence qui valorise si clairement le d\u00e9veloppement de la prochaine g\u00e9n\u00e9ration de chercheurs et de leaders en soins de sant\u00e9.<\/p>

Perspectives d’avenir<\/h5>

En tant qu’organisme vou\u00e9 \u00e0 la sensibilisation, \u00e0 l’am\u00e9lioration des r\u00e9sultats pour les patients et \u00e0 l’avancement de la recherche sur le syndrome de Loeys-Dietz et les affections connexes, la FSLDC est fi\u00e8re de faire partie de la communaut\u00e9 du CCTC. Cette conf\u00e9rence est un espace essentiel de collaboration, d’\u00e9change de connaissances et de d\u00e9fense des droits, et nous nous r\u00e9jouissons \u00e0 l’id\u00e9e de poursuivre notre engagement dans les ann\u00e9es \u00e0 venir.<\/p>

Nous remercions chaleureusement la Canadian Connective Tissue Society (CCTS) et le comit\u00e9 organisateur de la 29e CCTC pour leur travail exceptionnel dans l’organisation d’un \u00e9v\u00e9nement v\u00e9ritablement marquant. Ensemble, nous contribuons \u00e0 la reconnaissance et \u00e0 la compr\u00e9hension des maladies rares.<\/p>

Pour en savoir plus sur la Canadian Connective Tissue Society, visitez\u00a0: https:\/\/connective-tissue-canada.com<\/a><\/p>

Restez inform\u00e9(e) des \u00e9v\u00e9nements \u00e0 venir comme ceux-ci ici\u00a0: https:\/\/loeysdietzcanada.org\/fr\/s-impliquer\/nos-evenements\/<\/a><\/p>

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Du 26 au 28 mai 2025, Loeys-Dietz Canada a fi\u00e8rement particip\u00e9 \u00e0 la 29e Canadian Connective Tissue Conference (CCTC), qui s’est tenue \u00e0 Montr\u00e9al, au Qu\u00e9bec. En tant que commanditaire […]<\/p>\n","protected":false},"author":4,"featured_media":9042,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[49,79],"tags":[],"class_list":["post-9055","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements","category-nouvelles"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/posts\/9055","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/comments?post=9055"}],"version-history":[{"count":5,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/posts\/9055\/revisions"}],"predecessor-version":[{"id":9766,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/posts\/9055\/revisions\/9766"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/media\/9042"}],"wp:attachment":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/media?parent=9055"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/categories?post=9055"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/tags?post=9055"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}