{"id":8456,"date":"2022-03-15T14:31:44","date_gmt":"2022-03-15T18:31:44","guid":{"rendered":"https:\/\/loeysdietzcanada.org\/?p=8456"},"modified":"2025-04-15T14:39:41","modified_gmt":"2025-04-15T18:39:41","slug":"bulletin-dinformation-le-tissu-conjonctif-dans-lactualite","status":"publish","type":"post","link":"https:\/\/loeysdietzcanada.org\/fr\/bulletin-dinformation-le-tissu-conjonctif-dans-lactualite\/","title":{"rendered":"Bulletin d\u2019information : Le tissu conjonctif dans l&#8217;actualit\u00e9"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"8456\" class=\"elementor elementor-8456 elementor-8447\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-7ccf5bd elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"7ccf5bd\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-6e1aae5\" data-id=\"6e1aae5\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1e3d031 elementor-widget elementor-widget-text-editor\" data-id=\"1e3d031\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">Dans ce bulletin, nous parlons de personnes connues atteintes de trois types de maladies du tissu conjonctif : le <b>syndrome de <\/b><b>Loeys-Dietz<\/b>, le <b>syndrome de Marfan<\/b> et le <b>syndrome d\u2019Ehlers- <\/b><b>Danlos<\/b>. Nous discutons aussi de l\u2019importance des soins multidisciplinaires et rappelons aux chercheurs de faire une proposition pour le prix Impact dans le cadre du Programme LEAP avant le 22 mars.<\/p><p class=\"p1\">Quelle est l\u2019incidence sur vous d\u2019une personne connue souffrant d\u2019une maladie du tissu conjonctif ? Lorsque des personnes connues partagent leurs probl\u00e8mes de sant\u00e9, cela contribue \u00e0 <b>normaliser<\/b> et \u00e0 <b>faire conna\u00eetre<\/b> ces diff\u00e9rents probl\u00e8mes de sant\u00e9. Pour les maladies rares, la sensibilisation est particuli\u00e8rement importante et peut contribuer \u00e0 :<\/p><ul><li class=\"p1\">favoriser un <b>diagnostic pr\u00e9coce<\/b> et <b>exact<\/b>;<\/li><li class=\"p1\">\u00e0 <b>sauver des vies<\/b> et \u00e0 <b>am\u00e9liorer les soins<\/b> et la <b>qualit\u00e9 de <\/b><b>vie<\/b>;<\/li><li class=\"p1\">\u00e0 cr\u00e9er un <b>esprit de groupe<\/b>;<\/li><li class=\"p1\">\u00e0 inciter les d\u00e9cideurs \u00e0 <b>financer la recherche<\/b> et les <b>services<\/b> li\u00e9s aux maladies rares.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-0d791f3 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"0d791f3\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-61b407f\" data-id=\"61b407f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-50fc0ad elementor-widget elementor-widget-html\" data-id=\"50fc0ad\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<object data=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2025\/04\/Connective-Tissue-in-the-News-Le-tissu-conjonctif-dans-lactualite.pdf\" type=\"application\/pdf\" width=\"700px\" height=\"1200px\">\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Dans ce bulletin, nous parlons de personnes connues atteintes de trois types de maladies du tissu conjonctif : le syndrome de Loeys-Dietz, le syndrome de Marfan et le syndrome d\u2019Ehlers- [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":8449,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[68],"tags":[],"class_list":["post-8456","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-bulletins-dinformation"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/posts\/8456","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/comments?post=8456"}],"version-history":[{"count":4,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/posts\/8456\/revisions"}],"predecessor-version":[{"id":8460,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/posts\/8456\/revisions\/8460"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/media\/8449"}],"wp:attachment":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/media?parent=8456"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/categories?post=8456"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/tags?post=8456"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}