{"id":8184,"date":"2025-02-28T14:03:45","date_gmt":"2025-02-28T19:03:45","guid":{"rendered":"https:\/\/loeysdietzcanada.org\/?p=8184"},"modified":"2025-04-15T14:29:50","modified_gmt":"2025-04-15T18:29:50","slug":"bulletin-dinformation-celebration-de-la-journee-des-maladies-rares-2025","status":"publish","type":"post","link":"https:\/\/loeysdietzcanada.org\/fr\/bulletin-dinformation-celebration-de-la-journee-des-maladies-rares-2025\/","title":{"rendered":"Bulletin d&#8217;information : C\u00e9l\u00e9bration de la Journ\u00e9e des maladies rares 2025"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"8184\" class=\"elementor elementor-8184 elementor-8172\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-51e686b elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"51e686b\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-30f27dc\" data-id=\"30f27dc\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-32ec8d0 elementor-widget elementor-widget-text-editor\" data-id=\"32ec8d0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">Aujourd\u2019hui, nous sommes fiers de souligner les initiatives cl\u00e9s qui soutiennent les individus et les familles touch\u00e9s par les aortopathies h\u00e9r\u00e9ditaires, depuis la recherche r\u00e9volutionnaire jusqu\u2019aux efforts de plaidoyer dans de nouveaux domaines m\u00e9dicaux.<\/p><p class=\"p1\">Dans ce num\u00e9ro, vous trouverez :<\/p><ul><li class=\"p1\"><b>Journ\u00e9e des maladies rares 2025<\/b> \u2013 Apprenez-en davantage sur cette initiative mondiale de sensibilisation.<\/li><li class=\"p1\"><b>Pr\u00e9sentation du registre CAN-ACT<\/b> \u2013 Une \u00e9tape essentielle dans l&#8217;am\u00e9lioration des soins et de la recherche sur les affections aortiques rares au Canada.<\/li><li class=\"p1\"><b>Plaidoyer lors de la conf\u00e9rence ICOI<\/b> \u2013 Comment nous engageons la communaut\u00e9 dentaire dans le diagnostic et les soins pr\u00e9coces.<\/li><\/ul><p class=\"p1\">Lisez la suite pour d\u00e9couvrir comment nous avons un impact !<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-7f74d8b elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"7f74d8b\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-02a9fd4\" data-id=\"02a9fd4\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1d302e4 elementor-widget elementor-widget-html\" data-id=\"1d302e4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<object 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