{"id":10153,"date":"2026-05-29T09:06:26","date_gmt":"2026-05-29T13:06:26","guid":{"rendered":"https:\/\/loeysdietzcanada.org\/?p=10153"},"modified":"2026-05-29T09:21:40","modified_gmt":"2026-05-29T13:21:40","slug":"10153","status":"publish","type":"post","link":"https:\/\/loeysdietzcanada.org\/fr\/10153\/","title":{"rendered":"Le 4e Symposium sur les aortopathies h\u00e9r\u00e9ditaires r\u00e9unit experts, patients et organismes communautaires \u00e0 Vancouver\u00a0"},"content":{"rendered":"

Le 4e Symposium sur les aortopathies h\u00e9r\u00e9ditaires r\u00e9unit experts, patients et organismes communautaires \u00e0 Vancouver\u00a0<\/strong><\/p>\n

Vancouver (Colombie-Britannique) | 22 et 23 mai 2026<\/p>\n

Deux jours. Des dizaines de conf\u00e9renciers experts. Des centaines d\u2019\u00e9changes. Un engagement commun : am\u00e9liorer la vie des personnes touch\u00e9es par les aortopathies h\u00e9r\u00e9ditaires.<\/span>\u00a0<\/span><\/p>\n

Le 4e Symposium sur les aortopathies h\u00e9r\u00e9ditaires (SAH4) s\u2019est conclu avec succ\u00e8s \u00e0 Vancouver, en Colombie-Britannique, r\u00e9unissant des professionnels de la sant\u00e9, des chercheurs, des patients, des familles, des d\u00e9fenseurs des droits des patients et des organismes communautaires provenant de partout au Canada et d\u2019ailleurs pour deux journ\u00e9es d\u2019apprentissage, de collaboration et de r\u00e9seautage.<\/span>\u00a0<\/span><\/p>\n

Cr\u00e9\u00e9 afin de faire progresser l\u2019\u00e9ducation, la recherche et les soins destin\u00e9s aux personnes vivant avec une aortopathie h\u00e9r\u00e9ditaire, le SAH4 a offert une plateforme unique permettant de partager les plus r\u00e9centesavanc\u00e9es en g\u00e9n\u00e9tique, diagnostic, soins multidisciplinaires, sant\u00e9 mentale, activit\u00e9 physique, innovation et soutien aux patients.<\/span>\u00a0<\/span><\/p>\n

La premi\u00e8re journ\u00e9e, consacr\u00e9e aux sessions scientifiques et accr\u00e9dit\u00e9e en formation m\u00e9dicale continue (FMC), a permis \u00e0 des experts de premier plan d\u2019aborder des sujets tels que les contributions g\u00e9n\u00e9tiques aux maladies aortiques thoraciques, les soins p\u00e9diatriques, la grossesse et les aortopathies, la sant\u00e9 psychologique, les mod\u00e8les de soins multidisciplinaires ainsi que les nouvelles approches th\u00e9rapeutiques et de recherche.<\/span>\u00a0<\/span><\/p>\n

La deuxi\u00e8me journ\u00e9e, ax\u00e9e sur l\u2019\u00e9ducation communautaire, a donn\u00e9 aux patients, aux familles et aux proches aidants les outils n\u00e9cessaires gr\u00e2ce \u00e0 des pr\u00e9sentations accessibles sur la sant\u00e9 mentale, l\u2019exercice et la m\u00e9decine du sport, la nutrition, la g\u00e9n\u00e9tique, l\u2019imagerie cardiaque, la gestion de la douleur et la transition des soins p\u00e9diatriques vers les soins adultes. La journ\u00e9e a \u00e9galement \u00e9t\u00e9 marqu\u00e9e par des t\u00e9moignages de patients inspirants ainsi que par de nombreuses occasions d\u2019\u00e9changes et de cr\u00e9ation de liens au sein de la communaut\u00e9.<\/span>\u00a0<\/span><\/p>\n

\u00ab Des \u00e9v\u00e9nements comme le SAH4 nous rappellent pourquoi ce travail est si important \u00bb, affirme Jida El Hajjar, directrice g\u00e9n\u00e9rale de la Fondation canadienne du syndrome de Loeys-Dietz. \u00ab R\u00e9unir des experts, des patients, des familles et des d\u00e9fenseurs cr\u00e9e non seulement des occasions de partager les connaissances, mais aussi de tisser les liens qui favorisent la recherche, am\u00e9liorent les soins et renforcent notre communaut\u00e9. \u00bb<\/span>\u00a0<\/span><\/p>\n

Le symposium n\u2019aurait pas \u00e9t\u00e9 possible sans la contribution exceptionnelle de ses conf\u00e9renciers, mod\u00e9rateurs, b\u00e9n\u00e9voles, partenaires patients, participants, commanditaires et organismes partenaires, dont la collaboration continue de faire progresser l\u2019\u00e9ducation, la sensibilisation, la recherche et les soins centr\u00e9s sur les patients au sein de la communaut\u00e9 des aortopathies h\u00e9r\u00e9ditaires.<\/span>\u00a0<\/span><\/p>\n

Nous remercions chaleureusement l\u2019Universit\u00e9 de la Colombie-Britannique, la Fondation St. Paul\u2019s, Vancouver Coastal Health, la Fondation canadienne du syndrome de Loeys-Dietz, le Dilawri Cardiovascular Institute, la Genetic Aortic Disorders Association (GADA) Canada ainsi que The Marfan Foundation pour leur soutien inestimable dans la r\u00e9alisation du SAH4.<\/span>\u00a0<\/span><\/p>\n

Alors que le symposium prend fin, les conversations, les partenariats et les id\u00e9es g\u00e9n\u00e9r\u00e9s au cours de ces deux journ\u00e9es continueront d\u2019inspirer les efforts visant \u00e0 am\u00e9liorer les r\u00e9sultats de sant\u00e9 et la qualit\u00e9 de vie des personnes et des familles touch\u00e9es par les aortopathies h\u00e9r\u00e9ditaires.<\/span>\u00a0<\/span><\/p>\n

Ensemble, nous b\u00e2tissons un avenir plus fort, plus connect\u00e9 et plus inclusif pour la communaut\u00e9 des aortopathies.<\/span>\u00a0<\/span><\/p>\n

Liens connexes<\/span><\/b>\u00a0<\/span><\/p>\n

Fondation canadienne du syndrome de Loeys-Dietz \u2013 https:\/\/loeysdietzcanada.org<\/a><\/p>\n

Genetic Aortic Disorders Association (GADA) Canada \u2013 https:\/\/gada.ca<\/a><\/p>\n

The Marfan Foundation \u2013 https:\/\/www.marfan.org<\/a><\/p>\n

Pour plus d\u2019information<\/span><\/b>\u00a0<\/span><\/p>\n

Maria El Bizri
\nAgente de mobilisation des connaissances et de la communaut\u00e9
\nFondation canadienne du syndrome de Loeys-Dietz
\nmaria.bizri@loeysdietzcanada.org<\/a>
\n514-471-0442, poste 224<\/p>\n","protected":false},"excerpt":{"rendered":"

Le 4e Symposium sur les aortopathies h\u00e9r\u00e9ditaires r\u00e9unit experts, patients et organismes communautaires \u00e0 Vancouver\u00a0 Vancouver (Colombie-Britannique) | 22 et 23 mai 2026 Deux jours. Des dizaines de conf\u00e9renciers experts. […]<\/p>\n","protected":false},"author":10,"featured_media":10152,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[49,79],"tags":[],"class_list":["post-10153","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements","category-nouvelles"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/posts\/10153","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/users\/10"}],"replies":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/comments?post=10153"}],"version-history":[{"count":2,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/posts\/10153\/revisions"}],"predecessor-version":[{"id":10155,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/posts\/10153\/revisions\/10155"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/media\/10152"}],"wp:attachment":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/media?parent=10153"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/categories?post=10153"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/tags?post=10153"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}