{"id":1823,"date":"2022-07-18T16:47:57","date_gmt":"2022-07-18T20:47:57","guid":{"rendered":"https:\/\/loeysdietzcanada.org\/?page_id=1823"},"modified":"2025-01-20T13:06:36","modified_gmt":"2025-01-20T18:06:36","slug":"bien-vivre-avec-le-sld","status":"publish","type":"page","link":"https:\/\/loeysdietzcanada.org\/fr\/soutien-aux-patients\/bien-vivre-avec-le-sld\/","title":{"rendered":"Bien vivre avec le SLD"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"1823\" class=\"elementor elementor-1823 elementor-683\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-48d2bcc9 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"48d2bcc9\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-4018500f\" data-id=\"4018500f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-608e2939 elementor-widget elementor-widget-heading\" data-id=\"608e2939\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Bien vivre avec le SLD<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-193443d8 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"193443d8\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-54456f79\" data-id=\"54456f79\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-30df3abc elementor-widget elementor-widget-image\" data-id=\"30df3abc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1024\" height=\"683\" src=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/09\/myles-tan-WNAO036c6FM-unsplash-1024x683.jpg\" class=\"attachment-large size-large wp-image-1651\" alt=\"\" srcset=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/09\/myles-tan-WNAO036c6FM-unsplash-1024x683.jpg 1024w, https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/09\/myles-tan-WNAO036c6FM-unsplash-300x200.jpg 300w, https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/09\/myles-tan-WNAO036c6FM-unsplash-768x512.jpg 768w, https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/09\/myles-tan-WNAO036c6FM-unsplash-1536x1024.jpg 1536w, https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/09\/myles-tan-WNAO036c6FM-unsplash-2048x1365.jpg 2048w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-a9056d4 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"a9056d4\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-c34951f\" data-id=\"c34951f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-727cf9b elementor-widget elementor-widget-text-editor\" data-id=\"727cf9b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Au moment du diagnostic, les personnes atteintes du SLD peuvent recevoir des examens d&#8217;imagerie, des traitements pour leurs sympt\u00f4mes visibles, et des soins m\u00e9dicaux d&#8217;urgence.\u00a0\u00a0\u00a0\u00a0\u00a0<\/span><\/p><p><span style=\"font-weight: 400;\">Cependant, les facteurs qui ont un impact sur leur qualit\u00e9 de vie (<strong>douleur, sant\u00e9 mentale et exercice<\/strong>) sont souvent n\u00e9glig\u00e9s et laissent les personnes et les familles touch\u00e9es avec plus de questions que de r\u00e9ponses. Il est pr\u00e9f\u00e9rable d&#8217;aborder ces pr\u00e9occupations d\u00e8s le d\u00e9part avec une \u00e9quipe <strong>multidisciplinaire<\/strong> de professionnels de la sant\u00e9 de diff\u00e9rentes sp\u00e9cialit\u00e9s et de divers lieux de soins.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d3335ce elementor-widget elementor-widget-spacer\" data-id=\"d3335ce\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1dd08c0 elementor-widget-mobile__width-inherit elementor-align-center elementor-widget elementor-widget-button\" data-id=\"1dd08c0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/loeysdietzcanada.org\/fr\/soutien-aux-patients\/ou-trouver-une-clinique\/\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-long-arrow-alt-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">trouvez une clinique<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-15668cc elementor-widget elementor-widget-spacer\" data-id=\"15668cc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div 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elementor-element-d5988fc elementor-widget elementor-widget-spacer\" data-id=\"d5988fc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f46237b elementor-widget elementor-widget-spacer\" data-id=\"f46237b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-b36163e elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b36163e\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-be4e127\" data-id=\"be4e127\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6868d4a elementor-widget elementor-widget-heading\" data-id=\"6868d4a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Traitement de la douleur avec le syndrome de Loeys-Dietz<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<script>\n\t\t\t\t(function($) {\n                    \"use strict\";\n\n                    var target = $('.elementor-element-b36163e');\n                    target.addClass('e-lazyloaded');\n\n                    \n                    var EaelParallaxElement = {\n\n\t\t\t\t\t\tinit: function() {\n\t\t\t\t\t\t\telementorFrontend.hooks.addAction('frontend\/element_ready\/global', EaelParallaxElement.initWidget);\n\t\t\t\t\t\t},\n                        responsiveParallax: function(){\n                            var android = 0,\n                                ios = 0;\n                            switch( true || 1 ){\n                                case android && ios:\n                                  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\t\t\t\t}( jQuery ) );\n\t\t\t<\/script>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-070a9e5 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"070a9e5\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-0861329\" data-id=\"0861329\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-78f8ebb elementor-widget elementor-widget-heading\" data-id=\"78f8ebb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Traitement de la douleur<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-7439163\" data-id=\"7439163\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f09a263 elementor-widget elementor-widget-text-editor\" data-id=\"f09a263\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Bien que la douleur ne dispara\u00eetra pas compl\u00e8tement, une <\/span><b>gestion appropri\u00e9e de la douleur<\/b><span style=\"font-weight: 400;\"> peut contribuer \u00e0 diminuer les niveaux de celle-ci et ainsi \u00e0 am\u00e9liorer la qualit\u00e9 de vie.\u00a0<\/span><\/p><p><span style=\"font-weight: 400;\">La bonne prise en charge de la douleur repose sur :<\/span><\/p><ol><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">L\u2019identification de la source de la douleur ;<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">La mise en place d\u2019une \u00e9quipe m\u00e9dicale multidisciplinaire ;<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Une combinaison de strat\u00e9gies de r\u00e9duction de la douleur comprenant l&#8217;\u00e9ducation du patient, la th\u00e9rapie physique, la psychoth\u00e9rapie et la th\u00e9rapie pharmacologique.<\/span><\/li><\/ol>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-19e4ef7 elementor-widget elementor-widget-eael-adv-accordion\" data-id=\"19e4ef7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"eael-adv-accordion.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t            <div class=\"eael-adv-accordion\" id=\"eael-adv-accordion-19e4ef7\" data-scroll-on-click=\"no\" data-scroll-speed=\"300\" data-accordion-id=\"19e4ef7\" data-accordion-type=\"accordion\" data-toogle-speed=\"300\">\n            <div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"quipe-multidisciplinaire\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"1\" aria-controls=\"elementor-tab-content-2711\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">\u00c9quipe multidisciplinaire<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-2711\" class=\"eael-accordion-content clearfix\" data-tab=\"1\" aria-labelledby=\"quipe-multidisciplinaire\"><p><span style=\"font-weight: 400\">La douleur chronique est mieux prise en charge par une <\/span><b>\u00e9quipe multidisciplinaire<\/b><span style=\"font-weight: 400\"> de professionnels qui sont des experts, et\/ou sont pr\u00eats \u00e0 se renseigner activement, sur la douleur chronique et les troubles du tissu conjonctif. L&#8217;\u00e9quipe peut comprendre un prestataire de soins primaires, un sp\u00e9cialiste de la douleur chronique, un psychiatre, un psychologue, un physioth\u00e9rapeute et un ergoth\u00e9rapeute.\u00a0<\/span><\/p><\/div>\n\t\t\t\t\t<\/div><div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"ergothrapie-et-physiothrapie\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"2\" aria-controls=\"elementor-tab-content-2712\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Ergoth\u00e9rapie et physioth\u00e9rapie<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-2712\" class=\"eael-accordion-content clearfix\" data-tab=\"2\" aria-labelledby=\"ergothrapie-et-physiothrapie\"><p><b>L&#8217;ergoth\u00e9rapeute<\/b><span style=\"font-weight: 400\"> est un professionnel de la sant\u00e9 qui aide les gens \u00e0 accomplir leurs t\u00e2ches quotidiennes au travail, \u00e0 l&#8217;\u00e9cole, \u00e0 la maison et dans leurs loisirs. Le <\/span><b>physioth\u00e9rapeute<\/b><span style=\"font-weight: 400\"> est un professionnel de la sant\u00e9 qui aide les personnes \u00e0 am\u00e9liorer leur mouvement et \u00e0 r\u00e9duire la douleur par l&#8217;\u00e9ducation du patient, les soins physiques et les recommandations d&#8217;exercices. Les physioth\u00e9rapeutes et les ergoth\u00e9rapeutes peuvent aider les gens \u00e0 prot\u00e9ger leurs articulations et \u00e0 faire de l&#8217;exercice correctement.\u00a0<\/span><\/p><p>\u00a0<\/p><p><b>Comment pouvez-vous prot\u00e9ger vos articulations ?<\/b><span style=\"font-weight: 400\"> En adoptant une bonne posture, une installation ergonomique au travail ou \u00e0 l&#8217;\u00e9cole, en faisant une pause dans les activit\u00e9s m\u00e9caniques r\u00e9p\u00e9titives (comme taper \u00e0 la machine, couper des aliments et passer l&#8217;aspirateur) et en utilisant des attelles externes. Pour les personnes atteintes <\/span><b>d&#8217;hypermobilit\u00e9<\/b><span style=\"font-weight: 400\">, la protection et la stabilit\u00e9 des articulations est particuli\u00e8rement importante.\u00a0<\/span><\/p><\/div>\n\t\t\t\t\t<\/div><div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"thrapie-pharmacologique\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"3\" aria-controls=\"elementor-tab-content-2713\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Th\u00e9rapie pharmacologique<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-2713\" class=\"eael-accordion-content clearfix\" data-tab=\"3\" aria-labelledby=\"thrapie-pharmacologique\"><p><span style=\"font-weight: 400\">Des m\u00e9dicaments en vente libre ou sur ordonnance peuvent \u00eatre utilis\u00e9s pour soulager la douleur. Il est g\u00e9n\u00e9ralement recommand\u00e9 d&#8217;utiliser les m\u00e9dicaments en m\u00eame temps que d&#8217;autres strat\u00e9gies de r\u00e9duction de la douleur.<\/span><\/p><\/div>\n\t\t\t\t\t<\/div><div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"cannabis\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"4\" aria-controls=\"elementor-tab-content-2714\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Cannabis<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-2714\" class=\"eael-accordion-content clearfix\" data-tab=\"4\" aria-labelledby=\"cannabis\"><p><span style=\"font-weight: 400\">Le cannabis peut \u00eatre un moyen s\u00fbr et efficace de g\u00e9rer la douleur. Il existe plusieurs fa\u00e7ons d&#8217;utiliser le cannabis, notamment en le fumant, en le vaporisant ou en l&#8217;ing\u00e9rant.\u00a0<\/span><\/p><p>\u00a0<\/p><p><span style=\"font-weight: 400\">Pour en savoir plus sur le cannabis et la gestion de la douleur :<\/span><\/p><ul><li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Le Dr Jordan Tishler, sp\u00e9cialiste du cannabis, pr\u00e9sente (en anglais) un <\/span><a href=\"https:\/\/www.youtube.com\/watch?v=G2TmWvdqdk8\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400\">webinaire sur la marijuana m\u00e9dicale et la gestion de la douleur<\/span><\/a><span style=\"font-weight: 400\">.<\/span><\/li><li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Il est recommand\u00e9 de consulter un professionnel de la sant\u00e9 au sujet de l&#8217;utilisation du cannabis. Il peut se renseigner sur les besoins d&#8217;une personne en mati\u00e8re de gestion de la douleur et aussi expliquer le dosage, le moment de la prise, ainsi que les avantages et les inconv\u00e9nients des diff\u00e9rentes m\u00e9thodes d&#8217;administration (comme l\u2019inhalation, la vaporisation et l&#8217;ingestion).<\/span><\/li><\/ul><\/div>\n\t\t\t\t\t<\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-fb454b8 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"fb454b8\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-af41e1f\" data-id=\"af41e1f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e1ebd19 elementor-widget elementor-widget-heading\" data-id=\"e1ebd19\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Douleurs chroniques<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-5191faf\" data-id=\"5191faf\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d9e29ba elementor-widget elementor-widget-text-editor\" data-id=\"d9e29ba\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">De nombreux rapports font \u00e9tat du <\/span><b>syndrome de Loeys-Dietz (SLD) et de douleurs chroniques<\/b><span style=\"font-weight: 400;\"> (d\u00e9finies comme \u00e9tant des douleurs qui durent au moins trois ou quatre mois).\u00a0<\/span><\/p><p><span style=\"font-weight: 400;\">Une \u00e9tude men\u00e9e en 2020 aupr\u00e8s de personnes atteintes des types 1 \u00e0 4 du SLD a r\u00e9v\u00e9l\u00e9 que <\/span><b>79 % d&#8217;entre elles souffraient de douleurs musculo-squelettiques chroniques<\/b><span style=\"font-weight: 400;\">. La douleur peut avoir un impact nocif sur la sant\u00e9 physique et mentale, la qualit\u00e9 du sommeil et les niveaux d&#8217;\u00e9nergie, ainsi que sur la capacit\u00e9 de participer aux activit\u00e9s professionnelles, scolaires et de loisirs.\u00a0<\/span><\/p><p><span style=\"font-weight: 400;\">Les personnes atteintes du SLD peuvent souffrir de douleurs dans diverses parties du corps, notamment :<\/span><\/p><ul><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Maux de t\u00eate ;<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Des douleurs au niveau du cou ;<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Des douleurs vert\u00e9brales ou dorsales ;<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Des douleurs aux c\u00f4tes et \u00e0 la respiration ;<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Des douleurs abdominales ;<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Des douleurs aux bras ;<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Des douleurs aux chevilles et aux genoux.<\/span><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d255d27 elementor-widget elementor-widget-eael-adv-accordion\" data-id=\"d255d27\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"eael-adv-accordion.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t            <div class=\"eael-adv-accordion\" id=\"eael-adv-accordion-d255d27\" data-scroll-on-click=\"no\" data-scroll-speed=\"300\" data-accordion-id=\"d255d27\" data-accordion-type=\"accordion\" data-toogle-speed=\"300\">\n            <div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"types-de-douleur\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"1\" aria-controls=\"elementor-tab-content-2201\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Types de douleur<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-2201\" class=\"eael-accordion-content clearfix\" data-tab=\"1\" aria-labelledby=\"types-de-douleur\"><p><span style=\"font-weight: 400\">Les personnes atteintes du SLD peuvent ressentir diff\u00e9rents types de douleur, tels que :<\/span><\/p><ul><li style=\"font-weight: 400\"><b>Douleur m\u00e9canique<\/b><span style=\"font-weight: 400\"> : douleur due \u00e0 une sollicitation des articulations et des muscles. Cette douleur peut \u00eatre caus\u00e9e par une hypermobilit\u00e9, une instabilit\u00e9 articulaire ou une mauvaise posture.<\/span><\/li><li style=\"font-weight: 400\"><b>Douleur neuropathique<\/b><span style=\"font-weight: 400\"> : douleur li\u00e9e au syst\u00e8me nerveux.<\/span><\/li><li style=\"font-weight: 400\"><b>Douleur inflammatoire<\/b><span style=\"font-weight: 400\"> : douleur li\u00e9e \u00e0 l&#8217;inflammation et aux l\u00e9sions tissulaires. Cette douleur peut survenir apr\u00e8s une intervention chirurgicale, une blessure, un r\u00e9gime alimentaire ou des mouvements r\u00e9p\u00e9titifs quotidiens (comme marcher et hacher des aliments) qui peuvent provoquer des blessures de surutilisation.<\/span><\/li><\/ul><\/div>\n\t\t\t\t\t<\/div><div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"le-froid-et-la-douleur\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"2\" aria-controls=\"elementor-tab-content-2202\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Le froid et la douleur<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-2202\" class=\"eael-accordion-content clearfix\" data-tab=\"2\" aria-labelledby=\"le-froid-et-la-douleur\"><p><span style=\"font-weight: 400\">Les patients atteints du SLD ont signal\u00e9 que l&#8217;intensit\u00e9 de la douleur et la fr\u00e9quence des pouss\u00e9es douloureuses augmentent lorsque la temp\u00e9rature saisonni\u00e8re baisse. La saison froide peut aggraver les douleurs articulaires et musculaires, les douleurs li\u00e9es aux troubles inflammatoires et auto-immuns, ainsi que des troubles tels que la d\u00e9pression et l&#8217;anxi\u00e9t\u00e9 qui peuvent coexister avec des douleurs chroniques.<\/span><\/p><p>\u00a0<\/p><p><span style=\"font-weight: 400\">Conseils pour limiter la douleur pendant la saison froide :<\/span><\/p><ul><li style=\"font-weight: 400\"><b>Restez au chaud<\/b><span style=\"font-weight: 400\"> : augmentez la temp\u00e9rature de votre chauffage \u00e0 la maison, habillez-vous de plusieurs couches de v\u00eatements chauds, utilisez une couverture \u00e9lectrique ou un coussin chauffant, prenez des bains ou des douches chaudes et buvez des boissons chaudes comme du caf\u00e9, du th\u00e9 ou du chocolat chaud.<\/span><\/li><li style=\"font-weight: 400\"><b>Restez actif<\/b><span style=\"font-weight: 400\"> : des mouvements doux et de faible intensit\u00e9 sont bons pour le corps et l&#8217;esprit.<\/span><\/li><li style=\"font-weight: 400\"><b>Restez hydrat\u00e9<\/b><span style=\"font-weight: 400\"> : buvez suffisamment d&#8217;eau et \u00e9vitez l&#8217;alcool.<\/span><\/li><li style=\"font-weight: 400\"><b>Dormez bien<\/b><span style=\"font-weight: 400\"> : essayez d&#8217;avoir un sommeil suffisant et de bonne qualit\u00e9.<\/span><\/li><li style=\"font-weight: 400\"><b>Mangez bien<\/b><span style=\"font-weight: 400\"> : concentrez-vous sur la consommation d&#8217;une vari\u00e9t\u00e9 d&#8217;aliments sains et essayez d&#8217;\u00e9viter les aliments susceptibles d&#8217;augmenter l&#8217;inflammation comme la viande rouge, les fritures, les f\u00e9culents transform\u00e9s et le sucre.<\/span><\/li><li style=\"font-weight: 400\"><b>Prenez suffisamment de soleil<\/b><span style=\"font-weight: 400\"> : la lumi\u00e8re naturelle peut contribuer \u00e0 att\u00e9nuer les sentiments de d\u00e9pression ou d&#8217;anxi\u00e9t\u00e9 (qui peuvent coexister avec la douleur chronique). Profiter du soleil \u00e0 l&#8217;ext\u00e9rieur peut \u00e9galement vous aider \u00e0 rester actif.<\/span><\/li><li style=\"font-weight: 400\"><b>\u00c9vitez le tabac<\/b><span style=\"font-weight: 400\"> : les fumeurs peuvent \u00eatre plus vuln\u00e9rables au d\u00e9veloppement et \u00e0 la sensation de douleur chronique.<\/span><\/li><li style=\"font-weight: 400\"><b>Amusez-vous<\/b><span style=\"font-weight: 400\"> : les activit\u00e9s sociales et les passe-temps peuvent \u00eatre une bonne distraction et un bon stimulant pour l&#8217;humeur.<\/span><\/li><li style=\"font-weight: 400\"><b>Parlez \u00e0 un professionnel<\/b><span style=\"font-weight: 400\"> : la douleur est complexe. Les trucs et astuces \u00e9num\u00e9r\u00e9s ci-dessus peuvent ne pas entra\u00eener une r\u00e9duction substantielle de la douleur. Les professionnels de la sant\u00e9 mentale sont les mieux plac\u00e9s pour vous aider \u00e0 trouver la source de votre douleur et \u00e0 \u00e9tablir un plan de soins qui vous convient.<\/span><\/li><\/ul><\/div>\n\t\t\t\t\t<\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-41051e5e elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"41051e5e\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-5001d6e8\" data-id=\"5001d6e8\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6dcea9f4 elementor-widget elementor-widget-heading\" data-id=\"6dcea9f4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Rester en forme avec le syndrome de Loeys-Dietz<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<script>\n\t\t\t\t(function($) {\n                    \"use strict\";\n\n                    var target = $('.elementor-element-41051e5e');\n                    target.addClass('e-lazyloaded');\n\n                    \n                    var EaelParallaxElement = {\n\n\t\t\t\t\t\tinit: function() {\n\t\t\t\t\t\t\telementorFrontend.hooks.addAction('frontend\/element_ready\/global', EaelParallaxElement.initWidget);\n\t\t\t\t\t\t},\n                        responsiveParallax: function(){\n                            var android = 0,\n                                ios = 0;\n                            switch( true || 1 ){\n                                case android && ios:\n                                    return \/iPad|iPhone|iPod|Android\/;\n                                    break;\n                                case android && ! ios:\n                                    return \/Android\/;\n                                    break;\n                                case ! android && ios:\n                                    return \/iPad|iPhone|iPod\/;\n                                    break;\n                                case ( ! android && ! ios ):\n                                    return null;\n                            }\n                        },\n\t\t\t\t\t\tinitWidget: function( $scope ) {\n\n\t\t\t\t\t\t\ttarget.jarallax({\n\t\t\t\t\t\t\t\ttype: 'scroll',\n\t\t\t\t\t\t\t\tspeed: 1.3,\n\t\t\t\t\t\t\t\tkeepImg: true,\n                                disableParallax: EaelParallaxElement.responsiveParallax(),\n\t\t\t\t\t\t\t});\n\t\t\t\t\t\t}\n\n\t\t\t\t\t};\n\n\t\t\t\t\t$( window ).on('elementor\/frontend\/init', EaelParallaxElement.init);\n\n                    \t\t\t\t}( jQuery ) );\n\t\t\t<\/script>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-84c4852 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"84c4852\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-6f23a7e\" data-id=\"6f23a7e\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-90445ae elementor-widget elementor-widget-text-editor\" data-id=\"90445ae\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Les personnes atteintes du SLD sont encourag\u00e9es \u00e0 <\/span><b>rester en forme dans la limite de leurs possibilit\u00e9s<\/b><span style=\"font-weight: 400;\">. Le mouvement est important pour la sant\u00e9 mentale et physique en g\u00e9n\u00e9ral, et peut :<\/span><\/p><ul><li><span style=\"font-weight: 400;\">r\u00e9duire la fr\u00e9quence cardiaque et la pression art\u00e9rielle avec le temps<\/span><\/li><li><span style=\"font-weight: 400;\">aider le corps \u00e0 devenir plus fort et plus stable<\/span><\/li><li><span style=\"font-weight: 400;\">diminuer le risque de blessure et de douleur<\/span><\/li><li><span style=\"font-weight: 400;\">augmenter la lib\u00e9ration d&#8217;endorphines (substances dans le corps qui peuvent am\u00e9liorer l&#8217;humeur et diminuer la douleur)<\/span><\/li><li><span style=\"font-weight: 400;\">am\u00e9liorer la sant\u00e9 cardiovasculaire en r\u00e9duisant la pression art\u00e9rielle et la fr\u00e9quence cardiaque<\/span><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-ffe36eb elementor-section-height-default elementor-section-boxed elementor-section-height-default\" data-id=\"ffe36eb\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-fd5c10e\" data-id=\"fd5c10e\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1780013 elementor-widget elementor-widget-heading\" data-id=\"1780013\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Quel type d'exercice est s\u00e9curitaire pour les personnes atteintes du syndrome de Loeys-Dietz ?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-5b5c710\" data-id=\"5b5c710\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-09cff9d elementor-widget elementor-widget-eael-adv-accordion\" data-id=\"09cff9d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"eael-adv-accordion.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t            <div class=\"eael-adv-accordion\" id=\"eael-adv-accordion-09cff9d\" data-scroll-on-click=\"no\" data-scroll-speed=\"300\" data-accordion-id=\"09cff9d\" data-accordion-type=\"accordion\" data-toogle-speed=\"300\">\n            <div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"conseils-pour-dmarrer-un-nouvel-exercice\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"1\" aria-controls=\"elementor-tab-content-1021\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Conseils pour d\u00e9marrer un nouvel exercice<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-1021\" class=\"eael-accordion-content clearfix\" data-tab=\"1\" aria-labelledby=\"conseils-pour-dmarrer-un-nouvel-exercice\"><ul><li><p><strong>Parlez-en \u00e0 un professionnel.<\/strong> Les personnes doivent discuter de leurs projets d&#8217;activit\u00e9 physique avec un professionnel de la sant\u00e9. Un professionnel peut d\u00e9terminer quel type de mouvement est sans danger en fonction des caract\u00e9ristiques physiques de chaque individu, comme l&#8217;instabilit\u00e9 de la colonne cervicale, la fonction des valves cardiaques et la taille des vaisseaux sanguins comme l&#8217;aorte. Un professionnel peut \u00e9galement proposer une routine d&#8217;exercices adapt\u00e9e au corps, aux besoins et aux objectifs de chaque personne.<\/p><\/li><li><p><strong>Commencez lentement.<\/strong> Il est recommand\u00e9 de commencer lentement. Avec le temps, la fr\u00e9quence et le temps consacr\u00e9 \u00e0 l&#8217;exercice peuvent augmenter.<\/p><\/li><li><p><span style=\"font-size: 16px\"><strong>Pensez \u00e0 long terme.<\/strong> Les bienfaits physiques de l&#8217;exercice ne sont pas imm\u00e9diats et peuvent prendre du temps avant d\u2019appara\u00eetre. Pour certaines personnes souffrant de douleur, il faut parfois des mois avant que la douleur ne cesse et un an, voir plus, avant de ressentir d\u2019autres b\u00e9n\u00e9fices.<\/span><\/p><\/li><\/ul><\/div>\n\t\t\t\t\t<\/div><div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"il-est-gnralement-conseill-de-\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"2\" aria-controls=\"elementor-tab-content-1022\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Il est g\u00e9n\u00e9ralement conseill\u00e9 de :<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-1022\" class=\"eael-accordion-content clearfix\" data-tab=\"2\" aria-labelledby=\"il-est-gnralement-conseill-de-\"><ul><li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Faire des exercices r\u00e9guliers mais doux.<\/span><\/li><li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Effectuer des exercices d&#8217;a\u00e9robie l\u00e9gers et mod\u00e9r\u00e9s avec mod\u00e9ration. Ces activit\u00e9s comprennent la natation, la marche, la randonn\u00e9e douce, le jogging et le v\u00e9lo.\u00a0\u00a0<\/span><\/li><li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Un niveau d&#8217;activit\u00e9 mod\u00e9r\u00e9 signifie \u00eatre capable d&#8217;avoir une discussion sans avoir besoin de prendre des respirations au milieu de phrases courtes.<\/span><\/li><\/ul><\/div>\n\t\t\t\t\t<\/div><div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"il-est-gnralement-dconseill-de-\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"3\" aria-controls=\"elementor-tab-content-1023\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Il est g\u00e9n\u00e9ralement d\u00e9conseill\u00e9 de :<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-1023\" class=\"eael-accordion-content clearfix\" data-tab=\"3\" aria-labelledby=\"il-est-gnralement-dconseill-de-\"><ul><li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Exercer tout groupe musculaire jusqu&#8217;au point d&#8217;\u00e9puisement. Cela inclut les activit\u00e9s statiques (isom\u00e9triques) et dynamiques (a\u00e9robie\/ana\u00e9robie).<\/span><\/li><li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Maintenir une pression art\u00e9rielle ou une fr\u00e9quence cardiaque \u00e9lev\u00e9e. Les personnes atteintes du SLD ne doivent pas maintenir une fr\u00e9quence cardiaque sup\u00e9rieure \u00e0 140 battements par minute.<\/span><\/li><li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Effectuer des exercices isom\u00e9triques brusques qui sollicitent les muscles, comme les redressements assis, les tractions, l\u2019escalade, l&#8217;entra\u00eenement avec r\u00e9sistance ou avec des poids lourds.\u00a0<\/span><\/li><li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Participer \u00e0 des activit\u00e9s de gymnastique ou de tumbling car elles peuvent contribuer \u00e0 l&#8217;instabilit\u00e9 de la colonne cervicale.<\/span><\/li><li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Pratiquer des sports de contact ou de haute intensit\u00e9 comme le football, le basket-ball, le handball, l&#8217;aviron ou toute activit\u00e9 pr\u00e9sentant un risque \u00e9lev\u00e9 de coup violent \u00e0 la t\u00eate ou \u00e0 la poitrine.<\/span><\/li><li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Participer \u00e0 des activit\u00e9s avec une acc\u00e9l\u00e9ration ou une d\u00e9c\u00e9l\u00e9ration rapide, comme les sprints de course, car elles peuvent augmenter le risque de dissection des vaisseaux sanguins.<\/span><\/li><li style=\"font-weight: 400\"><span style=\"font-weight: 400\">Utiliser des mouvements qui entra\u00eenent une hyperextension des articulations ou provoquent des blessures ou des douleurs articulaires.<\/span><\/li><\/ul><\/div>\n\t\t\t\t\t<\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-9fd8b81 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"9fd8b81\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-fd9ea35\" data-id=\"fd9ea35\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-699f13c elementor-widget elementor-widget-heading\" data-id=\"699f13c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">La sant\u00e9 mentale et le syndrome de Loeys-Dietz<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<script>\n\t\t\t\t(function($) {\n                    \"use strict\";\n\n                    var target = $('.elementor-element-9fd8b81');\n                    target.addClass('e-lazyloaded');\n\n                    \n                    var EaelParallaxElement = {\n\n\t\t\t\t\t\tinit: function() {\n\t\t\t\t\t\t\telementorFrontend.hooks.addAction('frontend\/element_ready\/global', EaelParallaxElement.initWidget);\n\t\t\t\t\t\t},\n                        responsiveParallax: function(){\n                            var android = 0,\n                                ios = 0;\n                            switch( true || 1 ){\n                                case android && ios:\n                                    return \/iPad|iPhone|iPod|Android\/;\n                                    break;\n                                case android && ! ios:\n                                    return \/Android\/;\n                                    break;\n                                case ! android && ios:\n                                    return \/iPad|iPhone|iPod\/;\n                                    break;\n                                case ( ! android && ! ios ):\n                                    return null;\n                            }\n                        },\n\t\t\t\t\t\tinitWidget: function( $scope ) {\n\n\t\t\t\t\t\t\ttarget.jarallax({\n\t\t\t\t\t\t\t\ttype: 'scroll',\n\t\t\t\t\t\t\t\tspeed: 1.3,\n\t\t\t\t\t\t\t\tkeepImg: true,\n                                disableParallax: EaelParallaxElement.responsiveParallax(),\n\t\t\t\t\t\t\t});\n\t\t\t\t\t\t}\n\n\t\t\t\t\t};\n\n\t\t\t\t\t$( window ).on('elementor\/frontend\/init', EaelParallaxElement.init);\n\n                    \t\t\t\t}( jQuery ) );\n\t\t\t<\/script>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-5bd571c elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"5bd571c\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-a58c0c9\" data-id=\"a58c0c9\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2b289b4 elementor-widget elementor-widget-text-editor\" data-id=\"2b289b4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Vivre avec le syndrome de Loeys-Dietz (SLD) peut \u00eatre difficile et peut\u00a0affecter la sant\u00e9 mentale d&#8217;une personne. Il est normal qu&#8217;un patient atteint du SLD, ainsi que ses amis et sa famille, \u00e9prouvent des sentiments d&#8217;accablement, d&#8217;anxi\u00e9t\u00e9, de d\u00e9pression, de col\u00e8re, d&#8217;incertitude, de peur, d&#8217;isolement, de stress post-traumatique, et d\u2019autres sentiments de d\u00e9tresse, au moment du diagnostic ou \u00e0 n&#8217;importe quelle \u00e9tape du parcours du SLD.\u00a0<\/span><\/p><p><span style=\"font-weight: 400;\">Le syndrome de Loeys-Dietz peut entra\u00eener des \u00e9v\u00e8nements de sant\u00e9 accrus, tr\u00e8s stressants et mettant la vie en danger (hospitalisation, chirurgie, etc.), ainsi que des difficult\u00e9s chroniques \u00e0 long terme (concilier le travail et les \u00e9tudes avec le SLD, la douleur chronique, la dynamique familiale, etc.) Les composantes aigu\u00ebs et chroniques peuvent avoir un impact \u00e9motionnel. Il est essentiel que les personnes et les familles atteintes du SLD trouvent les ressources et le soutien dont elles ont besoin.\u00a0<\/span><\/p><p><span style=\"font-weight: 400;\">Pour beaucoup d&#8217;entre elles, le soutien consiste \u00e0 parler \u00e0 un professionnel de la sant\u00e9 mentale. Pour trouver un <\/span><b>professionnel de la sant\u00e9 mentale<\/b><span style=\"font-weight: 400;\"> pr\u00e8s de chez vous, consultez un r\u00e9pertoire <\/span><a href=\"https:\/\/www.psychologytoday.com\/ca\/therapists\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">g\u00e9n\u00e9ral<\/span><\/a><span style=\"font-weight: 400;\"> ou <\/span><a href=\"https:\/\/cpa.ca\/fr\/public\/unpsychologue\/societesprovinciales\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">provincial<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-802bb24 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"802bb24\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-cd4e4ab\" data-id=\"cd4e4ab\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ae81706 elementor-widget elementor-widget-heading\" data-id=\"ae81706\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Pr\u00e9paration aux cas d'urgence<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<script>\n\t\t\t\t(function($) {\n                    \"use strict\";\n\n                    var target = $('.elementor-element-802bb24');\n                    target.addClass('e-lazyloaded');\n\n                    \n                    var EaelParallaxElement = {\n\n\t\t\t\t\t\tinit: function() {\n\t\t\t\t\t\t\telementorFrontend.hooks.addAction('frontend\/element_ready\/global', EaelParallaxElement.initWidget);\n\t\t\t\t\t\t},\n                        responsiveParallax: function(){\n                            var android = 0,\n                                ios = 0;\n                            switch( true || 1 ){\n                                case android && ios:\n                                    return \/iPad|iPhone|iPod|Android\/;\n                                    break;\n                                case android && ! ios:\n                                    return \/Android\/;\n                                    break;\n                                case ! android && ios:\n                                    return \/iPad|iPhone|iPod\/;\n                                    break;\n                                case ( ! android && ! ios ):\n                                    return null;\n                            }\n                        },\n\t\t\t\t\t\tinitWidget: function( $scope ) {\n\n\t\t\t\t\t\t\ttarget.jarallax({\n\t\t\t\t\t\t\t\ttype: 'scroll',\n\t\t\t\t\t\t\t\tspeed: 1.3,\n\t\t\t\t\t\t\t\tkeepImg: true,\n                                disableParallax: EaelParallaxElement.responsiveParallax(),\n\t\t\t\t\t\t\t});\n\t\t\t\t\t\t}\n\n\t\t\t\t\t};\n\n\t\t\t\t\t$( window ).on('elementor\/frontend\/init', EaelParallaxElement.init);\n\n                    \t\t\t\t}( jQuery ) );\n\t\t\t<\/script>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-825d355 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"825d355\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-26256aa\" data-id=\"26256aa\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1b54331 elementor-widget elementor-widget-text-editor\" data-id=\"1b54331\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"font-weight: 400;\">Lorsque vous vivez avec un membre de votre famille atteint du syndrome de Loeys-Dietz ou que vous \u00eates atteint du syndrome de Loeys-Dietz, une situation d&#8217;urgence peut survenir \u00e0 tout moment. Le livret sur la pr\u00e9paration aux situations d&#8217;urgence li\u00e9es au syndrome de Loeys-Dietz vise \u00e0 fournir aux individus et aux familles les outils n\u00e9cessaires pour se pr\u00e9parer \u00e0 une \u00e9ventuelle situation d&#8217;urgence.<\/p><p style=\"font-weight: 400;\"><strong>De quoi discutons-nous dans ce livret?<\/strong><\/p><ul><li>Signes et sympt\u00f4mes d&#8217;urgence<\/li><li>Autres situations d&#8217;urgence<\/li><li>Informations vitales pour les m\u00e9decins<\/li><li>Pr\u00e9paration aux situations d&#8217;urgence<\/li><li>Pr\u00e9paration aux situations d&#8217;urgence ax\u00e9e sur la famille<\/li><li>Dispositifs d&#8217;alerte m\u00e9dicale portables<\/li><li>Directives avanc\u00e9es<\/li><li>Sensibilisation<\/li><li>Suggestions d&#8217;experts<\/li><\/ul><p style=\"font-weight: 400;\"><strong>Comment obtenir votre exemplaire :<\/strong><\/p><p><a href=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2025\/01\/LDS-EMERGENCY-PREPAREDNESS_FR.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">T\u00e9l\u00e9chargez cette ressource inestimable gratuitement ici.<\/span><\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-dd9dc39 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"dd9dc39\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-74535444\" data-id=\"74535444\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2b5c88b7 elementor-widget elementor-widget-heading\" data-id=\"2b5c88b7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Avez-vous des questions ?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-428d9320 elementor-widget elementor-widget-spacer\" data-id=\"428d9320\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5b2051f elementor-align-center elementor-widget elementor-widget-button\" data-id=\"5b2051f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/loeysdietzcanada.org\/fr\/contactez-nous\/\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-long-arrow-alt-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Contactez-nous<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<script>\n\t\t\t\t(function($) {\n                    \"use strict\";\n\n                    var target = $('.elementor-element-dd9dc39');\n                    target.addClass('e-lazyloaded');\n\n                    \n                    var EaelParallaxElement = {\n\n\t\t\t\t\t\tinit: function() {\n\t\t\t\t\t\t\telementorFrontend.hooks.addAction('frontend\/element_ready\/global', EaelParallaxElement.initWidget);\n\t\t\t\t\t\t},\n                        responsiveParallax: function(){\n                            var android = 0,\n                                ios = 0;\n                            switch( true || 1 ){\n                                case android && ios:\n                                    return \/iPad|iPhone|iPod|Android\/;\n                                    break;\n                                case android && ! ios:\n                                    return \/Android\/;\n                                    break;\n                                case ! android && ios:\n                                    return \/iPad|iPhone|iPod\/;\n                                    break;\n                                case ( ! android && ! ios ):\n                                    return null;\n                            }\n                        },\n\t\t\t\t\t\tinitWidget: function( $scope ) {\n\n\t\t\t\t\t\t\ttarget.jarallax({\n\t\t\t\t\t\t\t\ttype: 'scroll',\n\t\t\t\t\t\t\t\tspeed: 1.3,\n\t\t\t\t\t\t\t\tkeepImg: true,\n                                disableParallax: EaelParallaxElement.responsiveParallax(),\n\t\t\t\t\t\t\t});\n\t\t\t\t\t\t}\n\n\t\t\t\t\t};\n\n\t\t\t\t\t$( window ).on('elementor\/frontend\/init', EaelParallaxElement.init);\n\n                    \t\t\t\t}( jQuery ) );\n\t\t\t<\/script>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-e0c9b2c elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"e0c9b2c\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-391b0ac\" data-id=\"391b0ac\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e00b85d elementor-widget elementor-widget-eael-adv-accordion\" data-id=\"e00b85d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"eael-adv-accordion.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t            <div class=\"eael-adv-accordion\" id=\"eael-adv-accordion-e00b85d\" data-scroll-on-click=\"no\" data-scroll-speed=\"300\" data-accordion-id=\"e00b85d\" data-accordion-type=\"accordion\" data-toogle-speed=\"300\">\n            <div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"rfrences\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"1\" aria-controls=\"elementor-tab-content-2341\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">R\u00e9f\u00e9rences<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-2341\" class=\"eael-accordion-content clearfix\" data-tab=\"1\" aria-labelledby=\"rfrences\"><p style=\"font-weight: 400\">American Physical Therapy Association. (n.d.).\u00a0<em>Becoming a physical therapist<\/em>. American Physical Therapy Association. Retrieved January 14, 2022, from https:\/\/www.apta.org\/your-career\/careers-in-physical-therapy\/becoming-a-pt\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">American Psychiatric Association. (n.d.).\u00a0<em>What is psychotherapy?<\/em>\u00a0American Psychiatric Association. Retrieved January 14, 2022, from https:\/\/www.psychiatry.org\/patients-families\/psychotherapy\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Cleveland Clinic. (2020, December 7).\u00a0<em>Neuropathic pain<\/em>. Cleveland Clinic. Retrieved January 14, 2022, from https:\/\/my.clevelandclinic.org\/health\/diseases\/15833-neuropathic-pain\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">College of Occupational Therapists of Ontario. (n.d.).\u00a0<em>What occupational therapists do<\/em>. College of Occupational Therapists of Ontario (COTO). Retrieved January 14, 2022, from https:\/\/www.coto.org\/clientsandthepublic\/working-with-an-occupational-therapist\/what-occupational-therapists-do\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Ellis, B. A. (2020, December 1).\u00a0<em>Tips to Relieve Chronic Pain in Cold Weather<\/em>. PennMedicine Lancaster General Health. Retrieved January 14, 2022, from https:\/\/www.lancastergeneralhealth.org\/health-hub-home\/2020\/december\/tips-to-relieve-chronic-pain-in-cold-weather\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Green, B. N., Johnson, C. D., Snodgrass, J., Smith, M., &amp; Dunn, A. S. (2016). Association between smoking and back pain in a cross-section of adult Americans.\u00a0<em>Cureus<\/em>,\u00a0<em>8<\/em>(9), e806. https:\/\/doi.org\/10.7759\/cureus.806\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Heidi, J., Gry, V., &amp; Lidal, I. B. (2022). Pain and fatigue in adults with loeys\u2013dietz syndrome and vascular ehlers\u2013danlos syndrome, a questionnaire\u2010based study.\u00a0<em>American Journal of Medical Genetics Part A<\/em>,\u00a0<em>188<\/em>(9), 2605\u20132616. https:\/\/doi.org\/10.1002\/ajmg.a.62858\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Ingelmo, P. (2019).\u00a0<em>HAD2019 | Gestion de la douleur<\/em>.\u00a0<em>YouTube<\/em>. Loeys-Dietz Syndrome Foundation Canada. Retrieved January 14, 2022, from https:\/\/www.youtube.com\/watch?v=CjwhUHP40IM.\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Johansen, H., Velvin, G., &amp; Lidal, I. (2020). Adults with Loeys-Dietz syndrome and Vascular Ehlers-Danlos Syndrome: A cross-sectional study of patient experiences with physical activity.\u00a0<em>Disability and Rehabilitation<\/em>,\u00a0<em>44<\/em>(10), 1968\u20131975. https:\/\/doi.org\/10.1080\/09638288.2020.1815874\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Johns Hopkins Medicine. (2020, July 20).\u00a0<em>Loeys-Dietz syndrome<\/em>. Johns Hopkins Medicine. Retrieved November 9, 2022, from https:\/\/www.hopkinsmedicine.org\/health\/conditions-and-diseases\/loeysdietz-syndrome\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Loeys, B., Arbustini, E., Baars, M., Bashiardes, E., Benke, K., Bjorck, E., Caruana, M., De Backer, J., De Moya Rubio, E., Di Toro, A., Dumfarth, J., Evangelista, A., Groenink, M., Giusti, B., Jondeau, G., Kempers, M., Keravnou, A., Kallenbach, K., Milleron, O., \u2026 Wildero Van Wouwe, L. (2021).\u00a0<em>VASCERN DO\u2019S AND DON\u2019TS FACTSHEETS FOR RARE VASCULAR DISEASE PATIENTS FACING FREQUENT SITUATIONS: Loeys-Dietz syndrome<\/em>. European Reference Network: VASCERN. Retrieved 2022, from https:\/\/vascern.eu\/wp-content\/uploads\/2021\/09\/Loeys-Dietz-syndrome_Dos-and-Donts_EN_2021.pdf\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Loeys, B. L., &amp; Dietz, H. C. (2018, March 1).\u00a0Loeys-Dietz Syndrome. GeneReviews\u00ae [Internet].\u00a0Available from: <a href=\"https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK1133\/\">https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK1133\/<\/a><\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Loeys-Dietz Syndrome Foundation. (n.d.).\u00a0<em>Loeys-Dietz Syndrome Caring for Cardiovascular Issues<\/em>. Loeys-Dietz Syndrome Foundation. Loeys-Dietz Syndrome Foundation. Retrieved November 9, 2022, from https:\/\/static1.squarespace.com\/static\/5be355670dbda39d591a525e\/t\/5dd30b1376d4226b2a6db297\/1574112020024\/LDSF_Cardiovascular_Edited+111819.pdf<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Mayo Clinic Health System. (n.d.).\u00a0<em>Rheumatic diseases<\/em>. Mayo Clinic Health System. Retrieved January 14, 2022, from https:\/\/www.mayoclinichealthsystem.org\/locations\/mankato\/services-and-treatments\/rheumatology\/rheumatic-diseases\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Meester, J. A., Verstraeten, A., Schepers, D., Alaerts, M., Van Laer, L., &amp; Loeys, B. L. (2017). Differences in manifestations of Marfan syndrome, Ehlers-Danlos syndrome, and Loeys-Dietz syndrome.\u00a0<em>Annals of Cardiothoracic Surgery<\/em>,\u00a0<em>6<\/em>(6), 582\u2013594. https:\/\/doi.org\/10.21037\/acs.2017.11.03\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Mittal, N. (2019).\u00a0<em>HAD2018 | Pain Management<\/em>.\u00a0<em>YouTube<\/em>. Loeys-Dietz Syndrome Foundation Canada. Retrieved January 14, 2022, from https:\/\/www.youtube.com\/watch?v=M3KBnbJ0oAw.\u00a0<\/p><p style=\"font-weight: 400\">. [accessed 2022 Jan 14]. <a href=\"https:\/\/www.youtube.com\/watch?v=M3KBnbJ0oAw\">https:\/\/www.youtube.com\/watch?v=M3KBnbJ0oAw<\/a><\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Southside Pain Specialists. (2019, September 10).\u00a0<em>Chronic pain and the changing seasons<\/em>. Southside Pain Specialists. Retrieved January 14, 2022, from https:\/\/www.southsidepainspecialists.com\/chronic-pain-changing-seasons\/\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Southside Pain Specialists. (2019, April 8).\u00a0<em>Smoking is a huge risk factor for pain<\/em>. Southside Pain Specialists. Retrieved January 14, 2022, from https:\/\/www.southsidepainspecialists.com\/a-huge-risk-factor-for-pain-smoking\/\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">The Marfan Foundation. (2021).\u00a0<em>Loeys-Dietz Syndrome<\/em>. The Marfan Foundation. Retrieved November 9, 2022, from https:\/\/marfan.org\/wp-content\/uploads\/2021\/01\/Loey-Dietz_Syndrome.pdf\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">The Marfan Foundation. (2018).\u00a0<em>Managing Pain<\/em>.\u00a0<em>YouTube<\/em>. Retrieved January 14, 2022, from https:\/\/www.youtube.com\/watch?v=0G4Y06_paMA.\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">The Marfan Foundation. (2021).\u00a0<em>Medical Marijuana for Pain Management<\/em>.\u00a0<em>YouTube<\/em>. Retrieved January 14, 2022, from https:\/\/www.youtube.com\/watch?v=G2TmWvdqdk8.\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">The Marfan Foundation. (2021).\u00a0<em>The Mechanisms of Pain and How to Treat Them (August 26, 2020) E3 Summit<\/em>.\u00a0<em>YouTube<\/em>. Retrieved January 14, 2022, from https:\/\/www.youtube.com\/watch?v=6oAPKo5M-ts.\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">The Marfan Foundation. (2021, October 20).\u00a0<em>Quality of Life<\/em>. The Marfan Foundation. Retrieved January 14, 2022, from https:\/\/marfan.org\/expectations\/quality-of-life\/\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Polston, G. R., &amp; Wallace, M. S. (2013). Analgesic Agents in Rheumatic Disease. In\u00a0<em>Kelley\u2019s Textbook of Rhematology<\/em>(Ninth Edition, p. 66). Elsevier Inc.\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Prakash, S. (n.d.).\u00a0<em>Dr. Siddharth Prakash: exercise and thoracic aortic disease<\/em>.\u00a0<em>2022 Final Friday Webinars on Thoracic Aortic Disease<\/em>. Retrieved November 9, 2022, from https:\/\/www.youtube.com\/watch?v=yhMEZ0glPqc.\u00a0<\/p><p>\u00a0<\/p><p style=\"font-weight: 400\">Public Health Agency of Canada. (2021, July 12).\u00a0<em>Chronic pain<\/em>. Canada.ca. Retrieved January 14, 2022, from https:\/\/www.canada.ca\/en\/public-health\/services\/diseases\/chronic-pain.html\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">U.S. Department of Health and Human Services. (n.d.).\u00a0<em>NCI Dictionary of Cancer terms<\/em>. National Cancer Institute. Retrieved January 14, 2022, from https:\/\/www.cancer.gov\/publications\/dictionaries\/cancer-terms\/def\/endorphin\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">VASCERN ERN. (2022).\u00a0<em>Before and After Aortic Surgery: Q&amp;A for Marfan Patients<\/em>.\u00a0<em>YouTube<\/em>. Retrieved November 9, 2022, from https:\/\/www.youtube.com\/watch?v=7ObVyvPbikY&amp;t=986s.\u00a0<\/p><p>\u00a0<\/p><p style=\"font-weight: 400\">Veritas Health, LLC. (n.d.).\u00a0<em>Mechanical pain definition<\/em>. Spine-health. Retrieved January 14, 2022, from https:\/\/www.spine-health.com\/glossary\/mechanical-pain\u00a0<\/p><p style=\"font-weight: 400\">\u00a0<\/p><p style=\"font-weight: 400\">Warnink-Kavelaars, J., de Koning, L., Rombaut, L., Alsem, M., Menke, L., Oosterlaan, J., Buizer, A., &amp; Engelbert, R. (2021). Heritable connective tissue disorders in childhood: Increased fatigue, pain, disability and decreased general health.\u00a0<em>Genes<\/em>,\u00a0<em>12<\/em>(6), 831. https:\/\/doi.org\/10.3390\/genes12060831<\/p><\/div>\n\t\t\t\t\t<\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Bien vivre avec le SLD Au moment du diagnostic, les personnes atteintes du SLD peuvent recevoir des examens d&#8217;imagerie, des traitements pour leurs sympt\u00f4mes visibles, et des soins m\u00e9dicaux d&#8217;urgence.\u00a0\u00a0\u00a0\u00a0\u00a0 [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":1814,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-1823","page","type-page","status-publish","hentry"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages\/1823","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/comments?post=1823"}],"version-history":[{"count":40,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages\/1823\/revisions"}],"predecessor-version":[{"id":8021,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages\/1823\/revisions\/8021"}],"up":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages\/1814"}],"wp:attachment":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/media?parent=1823"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}