{"id":1817,"date":"2022-07-18T16:47:22","date_gmt":"2022-07-18T20:47:22","guid":{"rendered":"https:\/\/loeysdietzcanada.org\/?page_id=1817"},"modified":"2026-03-17T13:36:50","modified_gmt":"2026-03-17T17:36:50","slug":"trouver-aide","status":"publish","type":"page","link":"https:\/\/loeysdietzcanada.org\/fr\/soutien-aux-patients\/trouver-aide\/","title":{"rendered":"Trouver de l&#8217;aide"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"1817\" class=\"elementor elementor-1817 elementor-680\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-4b0062dd elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"4b0062dd\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-438534fe\" data-id=\"438534fe\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2d05596 elementor-widget elementor-widget-heading\" data-id=\"2d05596\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Trouver de l'aide<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-d83f4c0 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"d83f4c0\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-2caebbac\" data-id=\"2caebbac\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-40b4565f elementor-widget elementor-widget-spacer\" data-id=\"40b4565f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-inner-section elementor-element elementor-element-1c7732b elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1c7732b\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-4e7df578\" data-id=\"4e7df578\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-676c3e19 elementor-widget elementor-widget-spacer\" data-id=\"676c3e19\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-inner-section elementor-element elementor-element-63f6fc62 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"63f6fc62\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-4816e67d\" data-id=\"4816e67d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-66aab5ae elementor-widget elementor-widget-image\" data-id=\"66aab5ae\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/elementor\/thumbs\/hug-adults_compressed-w-tinypng-scaled-1-q0klt7tdbk96usd7yxxbcq0a20q7awk6jjzxym6hig.jpg\" title=\"hug-adults_compressed-w-tinypng-scaled.jpg\" alt=\"hug-adults_compressed-w-tinypng-scaled.jpg\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-56d5204 elementor-align-center elementor-widget elementor-widget-button\" data-id=\"56d5204\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/loeysdietzcanada.us7.list-manage.com\/subscribe?u=c4cc02dcbc70baf12c33aef04&#038;id=1ffff14939%20\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-long-arrow-alt-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Abonnez-vous \u00e0 notre bulletin<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-4492780a\" data-id=\"4492780a\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-627944f elementor-widget elementor-widget-text-editor\" data-id=\"627944f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<strong>Nous sommes l\u00e0 pour vous, pour que vous ne soyez pas seul face \u00e0 vos soucis.<\/strong>\n\nLa Fondation soutient les patients, les familles et les d\u00e9fenseurs de la communaut\u00e9 du syndrome de Loeys-Dietz par le biais de :\n<ul>\n \t<li><strong>La ligne d&#8217;assistance t\u00e9l\u00e9phonique pour le syndrome de Loeys-Dietz<\/strong> au 1-888-LDS-FCAN. Trouvez un soutien par les pairs, des r\u00e9ponses et des ressources par le biais de la ligne d&#8217;assistance.<\/li>\n \t<li><strong>Le r\u00e9pertoire de ressources<\/strong> comprenant des centaines de ressources en mati\u00e8re du SLD. Trouvez des informations sur les ressources m\u00e9dicales, param\u00e9dicales, psychologiques, financi\u00e8res, sociales, \u00e9ducatives, juridiques et sur les tests g\u00e9n\u00e9tiques.<\/li>\n<li><strong>Groupes de soutien par les pairs <\/strong> organis\u00e9s virtuellement le troisi\u00e8me lundi de chaque mois.<\/li>\n<\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-25085385 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"25085385\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-2b68931c\" data-id=\"2b68931c\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-9e6a755 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"9e6a755\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-2af5596c elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2af5596c\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-52ee4758\" data-id=\"52ee4758\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-500e457 elementor-widget elementor-widget-heading\" data-id=\"500e457\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">R\u00e9pertoire de ressources pour le syndrome de Loeys-Dietz<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8e59a3e elementor-widget elementor-widget-spacer\" data-id=\"8e59a3e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-37a6ebdb elementor-widget elementor-widget-eael-adv-accordion\" data-id=\"37a6ebdb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"eael-adv-accordion.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t            <div class=\"eael-adv-accordion\" id=\"eael-adv-accordion-37a6ebdb\" data-scroll-on-click=\"no\" data-scroll-speed=\"300\" data-accordion-id=\"37a6ebdb\" data-accordion-type=\"accordion\" data-toogle-speed=\"300\">\n            <div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"rpertoire-des-cliniques-mdicales\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"1\" aria-controls=\"elementor-tab-content-9331\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">R\u00e9pertoire des cliniques m\u00e9dicales<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-9331\" class=\"eael-accordion-content clearfix\" data-tab=\"1\" aria-labelledby=\"rpertoire-des-cliniques-mdicales\"><p><strong>Pour trouver une clinique :<\/strong><\/p><ul><li><span style=\"font-weight: 400\">sp\u00e9cialis\u00e9e en g\u00e9n\u00e9tique, cardiologie ou troubles du tissue conjonctif comme le syndrome de Loeys-Dietz, <a href=\"https:\/\/loeysdietzcanada.org\/fr\/soutien-aux-patients\/ou-trouver-une-clinique\/\" target=\"_blank\" rel=\"noopener\">visitez notre r\u00e9pertoire <em>Trouver une clinique.<\/em><\/a><\/span><\/li><li><span style=\"font-weight: 400\">qui conna\u00eet bien les troubles du tissu conjonctif et qui est sp\u00e9cialis\u00e9e en orthop\u00e9die, en neurologie, en sant\u00e9 des femmes, en obst\u00e9trique, en fertilit\u00e9, en oto-rhino-laryngologie et plus encore, <a href=\"https:\/\/loeysdietzcanada.org\/fr\/contactez-nous\/\" target=\"_blank\" rel=\"noopener\">contactez nous<\/a>.<\/span><\/li><\/ul><\/div>\n\t\t\t\t\t<\/div><div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"rpertoire-des-cliniques-de-soins-de-soutien\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"2\" aria-controls=\"elementor-tab-content-9332\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">R\u00e9pertoire des cliniques de soins de soutien<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-9332\" class=\"eael-accordion-content clearfix\" data-tab=\"2\" aria-labelledby=\"rpertoire-des-cliniques-de-soins-de-soutien\"><p><span style=\"font-weight: 400\">Les ressources param\u00e9dicales comprennent la physioth\u00e9rapie, l\u2019ergoth\u00e9rapie, la kin\u00e9siologie, la douleur chronique, le massage, la naturopathie, le bien-\u00eatre et d\u2019autres services.\u00a0<\/span><\/p><p><strong>\u00c0 travers le Canada :<\/strong><\/p><ol><li><a href=\"https:\/\/www.canada.ca\/en\/health-canada\/corporate\/about-health-canada\/public-engagement\/external-advisory-bodies\/resources.html#wb-auto-4\" target=\"_blank\" rel=\"noopener\"><b>Ressources pour les Canadiens vivant avec la douleur chronique par le Gouvernement du Canada<\/b><\/a><b><\/b><\/li><\/ol><p><strong>Au Qu\u00e9bec:<\/strong><\/p><ol><li><a href=\"https:\/\/confortphysio.com\"><strong>Confort Physio et Sant\u00e9<\/strong><\/a><\/li><\/ol><ul><li><span style=\"font-size: 16px\">Personne-cl\u00e9\u00a0: <\/span><span style=\"font-size: 16px\"> Anike Vanagas (physioth\u00e9rapeute)<\/span><\/li><li>5115, avenue Trans Island, bureau 234, Montr\u00e9al (Qu\u00e9bec) H3W 1Y3<\/li><li>T\u00e9l\u00e9phone : (514) 552-1002<\/li><li>Courriel :<br \/><a class=\"decorated-link cursor-pointer\" rel=\"noopener\">info@confortphysio.com<\/a><\/li><\/ul><p><a href=\"https:\/\/physioformesante.com\/fr\"><strong>2. Physio FormeSant\u00e9<\/strong><\/a><\/p><ul><li>Personne-ressource: Amy Fagan (physioth\u00e9rapeute)<\/li><li>4377, rue Notre-Dame Ouest, bureau 105, Montr\u00e9al (Qu\u00e9bec) H4C 1R8<\/li><li>T\u00e9l\u00e9phone : (514) 933-1910<\/li><li>Courriel :<br \/><a class=\"decorated-link cursor-pointer\" rel=\"noopener\">info@physioformesante.com<\/a><\/li><\/ul><p><strong>En Alberta :<\/strong><\/p><ol><li><a href=\"https:\/\/www.vidahealth.ca\/\" target=\"_blank\" rel=\"noopener\"><b>Vida Health and Wellness (Physioth\u00e9rapie)<\/b><\/a><ul><li><span style=\"font-size: 16px\">Personne-cl\u00e9\u00a0: Mercedes Eustergerlin (Physioth\u00e9rapeute)<\/span><\/li><li><span style=\"font-weight: 400\">609, 14<\/span><span style=\"font-weight: 400\">\u00e8me<\/span><span style=\"font-weight: 400\">\u00a0rue Nord-Ouest,\u00a0<\/span><span style=\"font-size: 16px\">Suite #208,\u00a0<\/span><span style=\"font-size: 16px\">Calgary (Alberta),\u00a0<\/span><span style=\"font-size: 16px\">T2N 2A1<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone\u00a0: 403-237-0211<\/span><\/li><li><span style=\"font-weight: 400\">Courriel\u00a0:\u00a0<\/span><span style=\"font-weight: 400\">info@vidahealth.ca<\/span><\/li><\/ul><\/li><\/ol><p><strong>Dans les maritimes :<\/strong><\/p><ol><li><b>Centre de sant\u00e9 et de physioth\u00e9rapie Reconnect<\/b><ul><li><span style=\"font-size: 16px\">25, chemin Gorge,\u00a0<\/span><span style=\"font-size: 16px\">Moncton (Nouveau-Brunswick),\u00a0<\/span><span style=\"font-size: 16px\">E1G 1B1<\/span><\/li><li><span style=\"font-weight: 400\">Courriel\u00a0:\u00a0<\/span><span style=\"font-weight: 400\">info@reconnecthealth.ca<\/span><\/li><\/ul><\/li><li><a href=\"https:\/\/www.thefixpei.ca\/\" target=\"_blank\" rel=\"noopener\"><b>The Fix<\/b><\/a><ul><li><span style=\"font-size: 16px\">478, rue Granville,\u00a0<\/span><span style=\"font-size: 16px\">Summerside (\u00ce.-P.-\u00c9.),\u00a0<\/span><span style=\"font-size: 16px\">C1N 4K6<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone\u00a0:\u00a0902-724-3104<\/span><\/li><li><span style=\"font-weight: 400\">Courriel\u00a0:\u00a0<\/span><span style=\"font-weight: 400\">info@thefixpei.ca<\/span><\/li><\/ul><\/li><li><a href=\"https:\/\/inmotionhealthcentre.ca\/\" target=\"_blank\" rel=\"noopener\"><b>Centre de sant\u00e9 InMotion<\/b><\/a><ul><li><span style=\"font-size: 16px\">Personne-cl\u00e9\u00a0: Pamela Dolomount (directrice commerciale)<\/span><\/li><li><span style=\"font-size: 16px\">Emplacement 1\u00a0:\u00a0<\/span><span style=\"font-size: 16px\">179, chemin Hamlyn,\u00a0<\/span><span style=\"font-size: 16px\">St. John\u2019s (Terre-Neuve),\u00a0<\/span><span style=\"font-size: 16px\">A1E 5Z5<\/span><\/li><li><span style=\"font-size: 16px\">Emplacement 2\u00a0:\u00a0<\/span><span style=\"font-size: 16px\">496, chemin Topsail,\u00a0<\/span><span style=\"font-size: 16px\">St. John\u2019s (Terre-Neuve),\u00a0<\/span><span style=\"font-size: 16px\">A1E 2C2<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone : 709-747-5945<\/span><\/li><li><span style=\"font-weight: 400\">Courriel :\u00a0<\/span><span style=\"font-weight: 400\">pam@inmotionhealthcentre.ca<\/span><\/li><\/ul><\/li><\/ol><p><strong>En Colombie-Britannique :<\/strong><\/p><ol><li><b>Centre pour la sant\u00e9 cardiovasculaire du VGH (kin\u00e9siologie)<\/b><ul><li><span style=\"font-size: 16px\">Personne-cl\u00e9 : Taira Birnie (Gestionnaire de cas principal)<\/span><\/li><li><span style=\"font-size: 16px\">2775, rue Laurel,\u00a0<\/span><span style=\"font-size: 16px\">6e \u00e9tage,\u00a0<\/span><span style=\"font-size: 16px\">Vancouver (Colombie-Britannique),\u00a0<\/span><span style=\"font-size: 16px\">V2W 1X1<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone : 604-875-4111 x61258<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9copieur : 604-875-5794\u00a0<\/span><\/li><li><span style=\"font-weight: 400\">Courriel :\u00a0<\/span><span style=\"font-weight: 400\">taira.birnie@vch.va<\/span><span style=\"font-weight: 400\">\u00a0 \u00a0<\/span><\/li><\/ul><\/li><li><a href=\"https:\/\/daiseykentnd.wordpress.com\/\" target=\"_blank\" rel=\"noopener\"><b>Ygeia Therapy (M\u00e9decin naturopathe)<\/b><\/a><ul><li><span style=\"font-size: 16px\">Personne-cl\u00e9 : Dr. Daisey Kent (m\u00e9decin naturopathe)<\/span><\/li><li><span style=\"font-size: 16px\">416, rue Jubilee<\/span><\/li><li><span style=\"font-size: 16px\">Duncan (Colombie-Britannique)<\/span><\/li><li><span style=\"font-size: 16px\">V9L 1X2<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone : 250-510-1910<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9copieur : 250-597-8881<\/span><\/li><li><span style=\"font-weight: 400\">Courriel :\u00a0<\/span><span style=\"font-weight: 400\">info@daiseykentnd.com<\/span><\/li><\/ul><\/li><li><a href=\"http:\/\/www.ygeiatherapy.com\/\" target=\"_blank\" rel=\"noopener\"><b>Ygeia Therapy (massoth\u00e9rapeute)<\/b><\/a><ul><li><span style=\"font-size: 16px\">Personne-cl\u00e9 : Bianca Thoma (Massoth\u00e9rapeute)<\/span><\/li><li><span style=\"font-size: 16px\">394, rue Duncan,\u00a0<\/span><span style=\"font-size: 16px\">Duncan (Colombie-Britannique),\u00a0<\/span><span style=\"font-size: 16px\">V9L 3W4<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone : 778-748-0645<\/span><\/li><li><span style=\"font-weight: 400\">Courriel :\u00a0<\/span><span style=\"font-weight: 400\">info@ygeiatherapy.com<\/span><span style=\"font-weight: 400\">\u00a0\u00a0<\/span><\/li><\/ul><\/li><\/ol><p><strong>Au Manitoba :<\/strong><\/p><ol><li><a href=\"http:\/\/www.purewinnipeg.com\/\" target=\"_blank\" rel=\"noopener\"><b>Pure Lifestyle<\/b><\/a><ul><li><span style=\"font-size: 16px\">1129, rue Empress,\u00a0<\/span><span style=\"font-size: 16px\">Winnipeg (Manitoba),\u00a0<\/span><span style=\"font-size: 16px\">R3E 3H1<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone : 204-338-7873<\/span><\/li><\/ul><\/li><\/ol><p><strong>En Ontario :<\/strong><\/p><ol><li><a href=\"https:\/\/pillarsofwellness.ca\/\" target=\"_blank\" rel=\"noopener\"><b>Les piliers du bien-\u00eatre<\/b><\/a><ul><li><span style=\"font-size: 16px\">Personne-cl\u00e9 : Laurent Pinci (copropri\u00e9taire et fondateur)<\/span><\/li><li><span style=\"font-size: 16px\">100, rue Plains O. #16,\u00a0<\/span><span style=\"font-size: 16px\">Burlington (Ontario),\u00a0<\/span><span style=\"font-size: 16px\">L7T 0A5<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone : 905-637-4000<br \/><\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9copieur : 905-637-4922<\/span><\/li><li><span style=\"font-weight: 400\">Courriel :\u00a0<\/span><span style=\"font-weight: 400\">info@pillarsofwellness.ca<\/span><span style=\"font-weight: 400\">\u00a0 \u00a0<\/span><\/li><\/ul><\/li><li><a href=\"https:\/\/torontophysiotherapy.ca\/about\/team\/\" target=\"_blank\" rel=\"noopener\"><b>Physioth\u00e9rapie de Toronto<\/b><\/a><ul><li><span style=\"font-size: 16px\">Personne-cl\u00e9 : Maryam Davari (Physioth\u00e9rapeute)<\/span><\/li><li><span style=\"font-size: 16px\">1246, rue Yonge,\u00a0<\/span><span style=\"font-size: 16px\">Suite 306,\u00a0<\/span><span style=\"font-size: 16px\">Toronto (Ontario),\u00a0<\/span><span style=\"font-size: 16px\">M4T 1W5<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone : 416-922-5118<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9copieur : 647-436-1926<\/span><\/li><\/ul><\/li><\/ol><p><strong>Aux \u00c9tats-Unis d&#8217;Am\u00e9rique :<\/strong><\/p><ol><li><a href=\"https:\/\/healyphysicaltherapy.com\/\" target=\"_blank\" rel=\"noopener\"><b>Healy Physical Therapy &amp; Sports Medicine (Th\u00e9rapie physique ; Offre de t\u00e9l\u00e9sant\u00e9)<\/b><\/a><ul><li><span style=\"font-size: 16px\">Personne-cl\u00e9 : Dr. Michael P. Healy (Physioth\u00e9rapeute)<\/span><\/li><li><span style=\"font-size: 16px\">927B, Avenue Warren,\u00a0<\/span><span style=\"font-size: 16px\">East Providence (Rhode Island),\u00a0<\/span><span style=\"font-size: 16px\">02914, \u00c9tats-Unis<\/span><\/li><li><span style=\"font-weight: 400\">Courriel :\u00a0<\/span><span style=\"font-weight: 400\">healyptmarketing@gmail.com<\/span><span style=\"font-weight: 400\">\u00a0\u00a0<\/span><\/li><\/ul><\/li><li><a href=\"https:\/\/www.actifypt.com\/\" target=\"_blank\" rel=\"noopener\"><b>Actify Physiotherapy &amp; Wellness (Physioth\u00e9rapie ; offre de t\u00e9l\u00e9sant\u00e9)<\/b><\/a><ul><li><span style=\"font-size: 16px\">Personne-cl\u00e9 : Dr. M\u00e1rcia Perretto (Physioth\u00e9rapeute)<\/span><\/li><li><span style=\"font-size: 16px\">7000, rue Palmetto Park O.,\u00a0<\/span><span style=\"font-size: 16px\">Suite 220,\u00a0<\/span><span style=\"font-size: 16px\">Boca Raton (Floride),\u00a0<\/span><span style=\"font-size: 16px\">33433, \u00c9tats-Unis<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone : 561-366-2435<\/span><\/li><li><span style=\"font-weight: 400\">Courriel :\u00a0<\/span><span style=\"font-weight: 400\">info@actifypt.com<\/span><\/li><\/ul><\/li><\/ol><\/div>\n\t\t\t\t\t<\/div><div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"ressources-sociales-et-psychologiques\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"3\" aria-controls=\"elementor-tab-content-9333\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Ressources sociales et psychologiques<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-9333\" class=\"eael-accordion-content clearfix\" data-tab=\"3\" aria-labelledby=\"ressources-sociales-et-psychologiques\"><p><b>Groupes de soutien :<\/b><\/p><ol><li><b><a href=\"https:\/\/www.facebook.com\/groups\/LoeysDietz\" target=\"_blank\" rel=\"noopener\">Groupe Facebook des familles Loeys-Dietz<\/a><\/b><\/li><li><b style=\"font-style: inherit\"><a href=\"https:\/\/events.marfan.org\/en\/i0HMOL6\/g\/SupportGroups\/lds-connect-5a3q6S1pQVV\/overview\" target=\"_blank\" rel=\"noopener\">Groupe de soutien du syndrome de Loeys-Dietz, <b>par la Fondation du syndrome de Marfan <\/b><\/a><\/b><ul><li><span style=\"font-size: 16px\">Se r\u00e9unit virtuellement le 2e jeudi de chaque mois \u00e0 19 heures HNE (en anglais).<\/span><\/li><\/ul><\/li><li><a href=\"https:\/\/marfan.org\/calendar\/support-parents-children-marfan-lds-related\/\" target=\"_blank\" rel=\"noopener\"><strong>Groupe de soutien pour les parents ou gardiens d&#8217;enfants atteints du SLD, du Marfan ou d&#8217;affections apparent\u00e9es, par la Fondation du syndrome de Marfan<\/strong><\/a><ol><li>Se r\u00e9unit <span style=\"font-size: 16px\">virtuellement\u00a0<\/span>le troisi\u00e8me mercredi de chaque mois \u00e0 19 heures HNE (en anglais).<\/li><\/ol><\/li><li><b><\/b><a href=\"https:\/\/marfan.org\/calendar\/pain-management\/\" target=\"_blank\" rel=\"noopener\"><b>\u00a0Groupe de soutien pour le traitement de la douleur, par la Fondation du syndrome de Marfan\u00a0<\/b><\/a><ul><li><span style=\"font-size: 16px\">Se r\u00e9unit virtuellement le 4e jeudi de chaque mois \u00e0 19 h HNE (en anglais).<\/span><\/li><\/ul><\/li><li><a href=\"https:\/\/higgybears.com\/scolizooms\" target=\"_blank\" rel=\"noopener\"><strong>Groupes de soutien aux personnes atteintes de scoliose, de HiggyBears, fabricant d&#8217;oursons sp\u00e9ciaux pour les personnes atteintes de scoliose<\/strong><\/a><ul><li>Les groupes de soutien sont pour les personnes de tous \u00e2ges atteintes de scoliose &#8211; enfants, pr\u00e9adolescents, adolescents et adultes. Les groupes offrent un espace pour des jeux et\/ou des discussions (en anglais) qui sont adapt\u00e9s \u00e0 l&#8217;\u00e2ge et sont ax\u00e9s sur la vie avec la scoliose.<\/li><\/ul><\/li><li><a href=\"https:\/\/www.heartandstroke.ca\/heart-disease\/recovery-and-support\/the-power-of-community\" target=\"_blank\" rel=\"noopener\"><b>Soutien par les pairs en ligne pour les personnes atteintes d&#8217;une maladie du c\u0153ur et leurs soignants, par la Fondation des maladies du c\u0153ur du Canada\u00a0<\/b><\/a><ul><li><span style=\"font-size: 16px\">Fran\u00e7ais et anglais.<\/span><\/li><\/ul><\/li><li><a href=\"https:\/\/geneticseducation.ca\/public-resources\/general-resources\/\" target=\"_blank\" rel=\"noopener\"><b>R\u00e9pertoire canadien des groupes de soutien g\u00e9n\u00e9tique<\/b><\/a><\/li><li><a href=\"https:\/\/www.facebook.com\/groups\/968241819970882\/\" target=\"_blank\" rel=\"noopener\"><b>Groupe Facebook des familles du syndrome de Loeys-Dietz au Royaume-Uni, en Irlande et dans les \u00eeles Anglo-Normandes.<\/b><\/a><\/li><li><a href=\"https:\/\/bit.ly\/AorticHope-SupportGroup\" target=\"_blank\" rel=\"noopener\"><b>Groupe de soutien pour la maladie aortique, par Aortic Hope<\/b><\/a><ul><li><span style=\"font-size: 16px\">Pour les personnes vivant avec une maladie aortique, leurs soignants et leurs professionnels de sant\u00e9.\u00a0<\/span><\/li><li><span style=\"font-size: 16px\">Se r\u00e9unit virtuellement le premier mardi de chaque mois \u00e0 14 heures HNE et le dernier mercredi de chaque mois \u00e0 19 heures HNE.<\/span><\/li><\/ul><\/li><li><a href=\"https:\/\/bit.ly\/AorticHope-CaregiverGroup-Signup\" target=\"_blank\" rel=\"noopener\"><b>Groupe de soutien aux aidants, par Aortic Hope<\/b><\/a><ul><li><span style=\"font-size: 16px\">Pour les aidants de personnes atteintes de maladie aortique. \u00a0<\/span><\/li><\/ul><\/li><li><a href=\"https:\/\/bit.ly\/AorticHope-BereavementSupport-SignUp\" target=\"_blank\" rel=\"noopener\"><b>\u00a0Groupe de soutien aux personnes en deuil, par Aortic Hope<\/b><\/a><ul><li><span style=\"font-size: 16px\">Pour les personnes qui ont perdu un proche suite \u00e0 une dissection aortique.<\/span><\/li><\/ul><\/li><\/ol><p><b>Autres :<\/b><\/p><ol><li><a href=\"https:\/\/www.psychologytoday.com\/ca\/therapists\" target=\"_blank\" rel=\"noopener\"><b>Trouver un th\u00e9rapeute n&#8217;importe o\u00f9 au Canada, par Psychology Today<\/b><\/a><\/li><li><a href=\"https:\/\/www.crisisservicescanada.ca\/en\/looking-for-local-resources-support\/\" target=\"_blank\" rel=\"noopener\"><b>Liste des lignes d&#8217;aide \u00e0 travers le Canada, par le Crisis Services Canada Directory<\/b><\/a><\/li><\/ol><\/div>\n\t\t\t\t\t<\/div><div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"ressources-financires\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"4\" aria-controls=\"elementor-tab-content-9334\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Ressources financi\u00e8res<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-9334\" class=\"eael-accordion-content clearfix\" data-tab=\"4\" aria-labelledby=\"ressources-financires\"><ol><li><a href=\"https:\/\/srv138.services.gc.ca\/daf\/q?id=555d9089-7b16-4b1d-8d05-7d62b11ef342&amp;GoCTemplateCulture=en-CA\" target=\"_blank\" rel=\"noopener\"><b>Recherche de prestations du Gouvernement du Canada<\/b><\/a><\/li><li><a href=\"https:\/\/www.canada.ca\/en\/revenue-agency\/services\/tax\/individuals\/segments\/tax-credits-deductions-persons-disabilities\/disability-tax-credit.html\" target=\"_blank\" rel=\"noopener\"><b>Cr\u00e9dit d&#8217;imp\u00f4t pour personnes handicap\u00e9es (CIPH), par le Gouvernement du Canada<\/b><\/a><\/li><li><a href=\"https:\/\/www.canada.ca\/en\/revenue-agency\/services\/tax\/individuals\/topics\/registered-disability-savings-plan-rdsp.html\" target=\"_blank\" rel=\"noopener\"><b>R\u00e9gime enregistr\u00e9 d&#8217;\u00e9pargne-invalidit\u00e9, par le Gouvernement du Canada<\/b><\/a><\/li><li><a href=\"https:\/\/www.canada.ca\/en\/revenue-agency\/services\/child-family-benefits\/child-disability-benefit.html\" target=\"_blank\" rel=\"noopener\"><b>Prestation pour enfants handicap\u00e9s (PEH), par le Gouvernement du Canada<\/b><\/a><\/li><li><a href=\"https:\/\/www.canada.ca\/en\/services\/benefits\/publicpensions\/cpp\/cpp-disability-benefit.html\" target=\"_blank\" rel=\"noopener\"><b>Prestation d&#8217;invalidit\u00e9 du R\u00e9gime de pensions du Canada, par le Gouvernement du Canada<\/b><\/a><\/li><li><a href=\"https:\/\/www.canada.ca\/en\/services\/benefits\/ei\/caregiving.html\" target=\"_blank\" rel=\"noopener\"><b>Prestations de soins familiaux pour enfants et adultes, par le Gouvernement du Canada<\/b><\/a><\/li><li><a href=\"https:\/\/www.canada.ca\/en\/services\/benefits\/ei\/ei-sickness.html\" target=\"_blank\" rel=\"noopener\"><b>Prestations de maladie de l&#8217;assurance-emploi (AE), par le Gouvernement du Canada<\/b><\/a><\/li><li><a href=\"https:\/\/www.health.gov.on.ca\/en\/public\/publications\/ohip\/northern.aspx\" target=\"_blank\" rel=\"noopener\"><b>Subventions de voyage pour la sant\u00e9 dans le Nord, par le Gouvernement de l&#8217;Ontario<\/b><\/a><\/li><li><a href=\"https:\/\/hopeair.ca\/\" target=\"_blank\" rel=\"noopener\"><b>Hope Air<\/b><\/a><ul><li><span style=\"font-weight: 400\">Courriel :\u00a0<\/span><span style=\"font-weight: 400\">mail@hopeair.ca<\/span><span style=\"font-weight: 400\">\u00a0\u00a0<\/span><\/li><\/ul><\/li><li><a href=\"https:\/\/www.heartandstroke.ca\/services-and-resources\/financial-support\" target=\"_blank\" rel=\"noopener\"><b>Soutien financier par la Fondation des maladies du c\u0153ur<\/b><\/a><\/li><li><a href=\"https:\/\/www.repertoirefondations.ca\/fondations\/\" target=\"_blank\" rel=\"noopener\"><strong>Assistance financi\u00e8re pour les personnes en situation de handicap<\/strong><\/a><\/li><\/ol><\/div>\n\t\t\t\t\t<\/div><div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"ressources-et-matriels-ducatifs\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"5\" aria-controls=\"elementor-tab-content-9335\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Ressources et mat\u00e9riels \u00e9ducatifs<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-9335\" class=\"eael-accordion-content clearfix\" data-tab=\"5\" aria-labelledby=\"ressources-et-matriels-ducatifs\"><ol><li><a href=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/10\/FSLDC_De-la-tete-aux-pieds-des-caracteristiques-du-SLD.pdf\" target=\"_blank\" rel=\"noopener\"><b>Document \u00ab\u00a0De la t\u00eate aux pieds\u00a0\u00bb sur les signes et sympt\u00f4mes du syndrome de Loeys-Dietz\u00a0<\/b><\/a><\/li><li><a href=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2023\/03\/VASCERN_Loeys-Dietz-syndrome_Dos-and-Donts_FR_LDSFC_2023.pdf\" target=\"_blank\" rel=\"noopener\"><b>Fiches d&#8217;information sur les choses \u00e0 faire et \u00e0 ne pas faire concernant le syndrome de Loeys-Dietz par VASCERN<\/b><\/a><\/li><li><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK1133\/\" target=\"_blank\" rel=\"noopener\"><b>Syndrome de Loeys-Dietz (article du Dr Loeys et du Dr Dietz)<\/b><\/a><\/li><li><b>Fiches d&#8217;information sur le syndrome de Loeys-Dietz (en anglais), par la Fondation du syndrome Loeys-Dietz<\/b><ul><li><a href=\"https:\/\/static1.squarespace.com\/static\/5be355670dbda39d591a525e\/t\/6222b1c31c636258a8c1f654\/1646440902459\/LDSF_AllergyRevised_Design+Update+3.4.22.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400\">Faits sur les allergies<\/span><\/a><\/li><li><a href=\"https:\/\/static1.squarespace.com\/static\/5be355670dbda39d591a525e\/t\/62229e4f51786a64ba0e1af2\/1646435919788\/LDSF_Cardiovascular_Edited+2022-03-04.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400\">Soins des maladies cardiovasculaires<\/span><\/a><\/li><li><a href=\"https:\/\/static1.squarespace.com\/static\/5be355670dbda39d591a525e\/t\/6222b246aeef153847b8ba3c\/1646441032711\/LDSF_Gastrointestinal+Issues_Edited+06202019+3.4.22.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400\">Maladies gastrointestinales<\/span><\/a><\/li><li><a href=\"https:\/\/static1.squarespace.com\/static\/5be355670dbda39d591a525e\/t\/6222a4a251786a64ba0e954c\/1646437538363\/LDS_Gene+Fact+Sheet_2022-03-04.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400\">Associations g\u00e9n\u00e9tiques<\/span><\/a><\/li><li><a href=\"https:\/\/static1.squarespace.com\/static\/5be355670dbda39d591a525e\/t\/5dc5e59671c2e47832a71aa6\/1573250455779\/LDSF_Arterial+system.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400\">Syst\u00e8me art\u00e9riel<\/span><\/a><\/li><li><a href=\"https:\/\/static1.squarespace.com\/static\/5be355670dbda39d591a525e\/t\/6222b291234d5d572b5c0985\/1646441107053\/LDSF_Sibling+Fact+Sheet+3.4.22.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400\">Syndrome Loeys-Dietz chez les fr\u00e8res et s\u0153urs<\/span><\/a><\/li><li><a href=\"https:\/\/static1.squarespace.com\/static\/5be355670dbda39d591a525e\/t\/5dd30b2e0fb697248c1632c9\/1574112047348\/bone+health.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400\">Sant\u00e9 des os chez les enfants<\/span><\/a><\/li><\/ul><\/li><li><a href=\"https:\/\/loeysdietzcanada.org\/fr\/soutien-aux-patients\/vocabulaire-relie-au-sld\/\" target=\"_blank\" rel=\"noopener\"><b>Vocabulaire m\u00e9dical du syndrome de Loeys-Dietz\u00a0<\/b><\/a><b><\/b><\/li><li><strong><a href=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/10\/FSLDC_Trousse-sur-le-syndrome-de-Loeys-Dietz-pour-lecole.pdf\" target=\"_blank\" rel=\"noopener\">Trousse sur le syndrome de Loeys-Dietz pour l&#8217;\u00e9cole<\/a><\/strong><\/li><li><b><a href=\"https:\/\/loeysdietzcanada.org\/fr\/soutien-aux-patients\/preparation-intervention-chirurgicale\/\" target=\"_blank\" rel=\"noopener\">Se pr\u00e9parer \u00e0 une intervention chirurgicale<\/a><\/b><ul><li><span style=\"font-weight: 400\">Lisez\u00a0<\/span><span style=\"font-weight: 400\"><a style=\"font-size: 16px\" href=\"https:\/\/static1.squarespace.com\/static\/5be355670dbda39d591a525e\/t\/5d0fd53ea71ad0000109c690\/1561318721293\/CVS+Resource_Adult_May+2019.pdf\" target=\"_blank\" rel=\"noopener\">les conseils des adultes sur la pr\u00e9paration \u00e0 la chirurgie cardiothoracique<\/a><\/span><\/li><li><span style=\"font-weight: 400\">Lisez\u00a0<\/span><span style=\"font-weight: 400\"><a style=\"font-size: 16px\" href=\"https:\/\/static1.squarespace.com\/static\/5be355670dbda39d591a525e\/t\/5d0fd57645897f0001096215\/1561318779956\/surgery_child.pdf\" target=\"_blank\" rel=\"noopener\">les conseils d&#8217;enfants et d&#8217;adolescents sur la pr\u00e9paration \u00e0 la chirurgie cardiothoracique<\/a><\/span><\/li><li><a href=\"https:\/\/loeysdietzcanada.org\/fr\/complications-cardiovasculaires-et-preparation-a-la-chirurgie\/\" target=\"_blank\" rel=\"noopener\">Complications cardiovasculaires et pr\u00e9paration \u00e0 la chirurgie<\/a><\/li><\/ul><\/li><li><strong><a href=\"https:\/\/loeysdietzcanada.org\/fr\/soutien-aux-patients\/bien-vivre-avec-le-sld\/\" target=\"_blank\" rel=\"noopener\">Bien vivre avec le SLD : gestion de la douleur, sant\u00e9 mentale et exercice physique avec le SLD, par la FSLDC<\/a><\/strong><\/li><li><a href=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2023\/02\/CHEO_Lhypermobilite-articulaire.pdf\" target=\"_blank\" rel=\"noopener\"><b style=\"font-style: inherit\">Fiche d&#8217;information sur l&#8217;hypermobilit\u00e9 articulaire par le CHEO<\/b><\/a><\/li><li><a href=\"https:\/\/www.ottawacvgenetics.ca\/_files\/ugd\/41e98c_0d72889e17de46b59ef24ea668fd1c15.pdf\" target=\"_blank\" rel=\"noopener\"><strong>Fiche d&#8217;information sur les an\u00e9vrismes et dissections thoraciques h\u00e9r\u00e9ditaires : vocabulaire, tests g\u00e9n\u00e9tiques et informations sur l&#8217;h\u00e9r\u00e9dit\u00e9 par Ottawa Cardiovascular Genetics<\/strong><\/a><\/li><li><a href=\"https:\/\/www.instagram.com\/the_eds_pt\/\" target=\"_blank\" rel=\"noopener\"><b>Conseils pour la physioth\u00e9rapie par Dr. M\u00e1rcia Perretto<\/b><\/a><\/li><li><a href=\"https:\/\/mycarepath.ca\/\" target=\"_blank\" rel=\"noopener\"><b>My Care Path (outil d&#8217;information en ligne sur la douleur chronique pour les 12 \u00e0 17 ans)<\/b><\/a><\/li><li><a href=\"https:\/\/img1.wsimg.com\/blobby\/go\/8cd3f527-0ec6-4ab1-ad6f-9b12910f8f74\/downloads\/Higgy%20Bears%20Scoliosis%20Support%20Guide.pdf?ver=1679499533771\" target=\"_blank\" rel=\"noopener\"><strong><span style=\"font-size: 16px\">Guide de soutien pour la scoliose (en anglais)<\/span><\/strong><\/a><\/li><li><a href=\"https:\/\/loeysdietzcanada.org\/fr\/syndrome-de-loeys-dietz\/medicaments\/\" target=\"_blank\" rel=\"noopener\"><strong>Le syndrome de Loeys-Dietz et les m\u00e9dicaments<\/strong><\/a><\/li><li><a href=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2023\/12\/FINAL-FR-COPY-LDS-Family-Planning.pdf\" target=\"_blank\" rel=\"noopener\"><strong>La planification familiale avec SLD<\/strong><\/a><\/li><li><strong><a href=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2025\/01\/LDS-EMERGENCY-PREPAREDNESS_FR.pdf\" target=\"_blank\" rel=\"noopener\">Pr\u00e9paration aux cas d&#8217;urgence pour le syndrome de Loeys-Dietz<\/a><\/strong><\/li><li style=\"font-weight: 400\"><strong><a href=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2026\/01\/ER-Alert-Cards-French-2025.pdf\" target=\"_blank\" rel=\"noopener\">Carte d&#8217;urgence m\u00e9dicale<\/a><\/strong><\/li><li><a href=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2025\/08\/What-is-LDS_E-Version_FR-2.pdf\" target=\"_blank\" rel=\"noopener\"><strong>Fiche informative : <span style=\"font-size: 16px\">Qu\u2019est-ce que le syndrome <\/span><\/strong><strong style=\"font-size: 16px\">de Loeys-Dietz (SLD) ?<\/strong><\/a><\/li><\/ol><\/div>\n\t\t\t\t\t<\/div><div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"ressources-juridiques-et-rpertoire\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"6\" aria-controls=\"elementor-tab-content-9336\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Ressources juridiques et r\u00e9pertoire<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-9336\" class=\"eael-accordion-content clearfix\" data-tab=\"6\" aria-labelledby=\"ressources-juridiques-et-rpertoire\"><p><strong>\u00c0 travers le Canada :<\/strong><\/p><ol><li><a href=\"http:\/\/ccgf-cceg.ca\/resources\/http:\/\/ccgf-cceg.ca\/resources\/\" target=\"_blank\" rel=\"noopener\"><b>Coalition canadienne pour l&#8217;\u00e9quit\u00e9 g\u00e9n\u00e9tique<\/b><\/a><\/li><li><a href=\"https:\/\/www.cba.org\/sections\/pro-bono\/pro-bono-resources-in-canada\/resources\" target=\"_blank\" rel=\"noopener\"><b>Ressources pro bono au Canada<\/b><\/a><\/li><li><a href=\"http:\/\/rewc-law.com\/papers\/23_genetic_discrimination_six_minute_lawyer.pdf\" target=\"_blank\" rel=\"noopener\"><b>La discrimination g\u00e9n\u00e9tique et le milieu de travail : Une mise \u00e0 jour sur l&#8217;\u00e9volution du paysage juridiqu<\/b><\/a><\/li><li><a href=\"https:\/\/www.un.org\/development\/desa\/disabilities\/convention-on-the-rights-of-persons-with-disabilities\/frequently-asked-questions-regarding-the-convention-on-the-rights-of-persons-with-disabilities.html#sqc3\" target=\"_blank\" rel=\"noopener\"><b>Questions fr\u00e9quemment pos\u00e9es concernant la Convention relative aux droits des personnes handicap\u00e9es<\/b><\/a><\/li><li><a href=\"http:\/\/www.lawyerlocate.ca\/lawyers\/canada_subs.php?category=1&amp;subcategory=1\" target=\"_blank\" rel=\"noopener\"><b>Recherche d&#8217;un avocat<\/b><\/a><\/li><\/ol><p><strong>Au Qu\u00e9bec :<\/strong><\/p><ol><li><a href=\"https:\/\/www.genomicsandpolicy.org\/en\/team\" target=\"_blank\" rel=\"noopener\"><b>Le Centre de g\u00e9nomique et de politique<\/b><\/a><ul><li><span style=\"font-size: 16px\">Affili\u00e9 \u00e0 l&#8217;Universit\u00e9 McGill.<\/span><\/li><li><span style=\"font-size: 16px\">740, avenue Dr. Penfield,\u00a0<\/span><span style=\"font-size: 16px\">Bureau 5200,\u00a0<\/span><span style=\"font-size: 16px\">Montr\u00e9al (Qu\u00e9bec),\u00a0<\/span><span style=\"font-size: 16px\">H3A 0G1<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone : 514-398-8155<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9copieur : 514-398-8954<\/span><\/li><\/ul><\/li><\/ol><p><strong>En Ontario :<\/strong><\/p><ol><li><a href=\"https:\/\/archdisabilitylaw.ca\/\" target=\"_blank\" rel=\"noopener\"><b>ARCH Disability Law Centre<\/b><\/a><ul><li><span style=\"font-size: 16px\">55, avenue University,\u00a0<\/span><span style=\"font-size: 16px\">Toronto (Ontario),\u00a0<\/span><span style=\"font-size: 16px\">M5J 2H7<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone : 416-482-8255<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone sans frais : 1-866-482-2724 \u00a0<\/span><\/li><li><span style=\"font-size: 16px\">ATS (appareil de t\u00e9l\u00e9communication pour sourds) : 416 482-1254\u00a0<\/span><\/li><li><span style=\"font-size: 16px\">ATS sans frais : 1-866-482-2728<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9copieur : 416 482-2981<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9copieur sans frais : 1-866-881-2723<\/span><\/li><li><span style=\"font-weight: 400\">Courriel :\u00a0<\/span><span style=\"font-weight: 400\">archgeneral@lao.on.ca<\/span><span style=\"font-weight: 400\">\u00a0\u00a0<\/span><\/li><\/ul><\/li><li><a href=\"https:\/\/www.probonoontario.org\/\" target=\"_blank\" rel=\"noopener\"><b>Pro Bono Ontario<\/b><\/a><ul><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone : 1-855-255-7256<\/span><\/li><\/ul><\/li><li><a href=\"https:\/\/www.legalaid.on.ca\/\" target=\"_blank\" rel=\"noopener\"><b>Aide juridique Ontario<\/b><\/a><ul><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone : 416-979-1446 416-979-1446<\/span><\/li><li><span style=\"font-size: 16px\">T\u00e9l\u00e9phone sans frais : 1-800-668-8258<\/span><\/li><li><span style=\"font-size: 16px\">ATS (appareil de t\u00e9l\u00e9communication pour sourds) : 1-800-855-0511<\/span><\/li><li><span style=\"font-weight: 400\">Courriel :\u00a0<\/span><span style=\"font-weight: 400\">info@lao.on.ca<\/span><\/li><\/ul><\/li><\/ol><\/div>\n\t\t\t\t\t<\/div><div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"ressources-de-dpistage-gntique\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"7\" aria-controls=\"elementor-tab-content-9337\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Ressources de d\u00e9pistage g\u00e9n\u00e9tique<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-9337\" class=\"eael-accordion-content clearfix\" data-tab=\"7\" aria-labelledby=\"ressources-de-dpistage-gntique\"><p><span style=\"font-weight: 400\">Chaque province a ses propres directives en mati\u00e8re de tests g\u00e9n\u00e9tiques. Si vous souhaitez en savoir plus, demandez \u00e0 votre fournisseur de soins primaires de vous orienter vers une clinique de g\u00e9n\u00e9tique ou <a href=\"https:\/\/loeysdietzcanada.org\/fr\/contactez-nous\/\" target=\"_blank\" rel=\"noopener\">contactez nous<\/a><\/span><span style=\"font-weight: 400\">.\u00a0\u00a0\u00a0\u00a0<\/span><\/p><p><strong>Informations sur la g\u00e9n\u00e9tique :<\/strong><\/p><ul><li><a href=\"https:\/\/loeysdietzcanada.org\/fr\/syndrome-de-loeys-dietz\/genetique\/\" target=\"_blank\" rel=\"noopener\"><strong>La g\u00e9n\u00e9tique et le syndrome de Loeys-Dietz : types de SLD, mutations, tests g\u00e9n\u00e9tiques et comment votre famille peut \u00eatre affect\u00e9e<\/strong><\/a><\/li><li><strong><a href=\"https:\/\/loeysdietzcanada.org\/fr\/la-genetique-et-le-syndrome-de-loeys-dietz\/\" target=\"_blank\" rel=\"noopener\">G\u00e9n\u00e9tique 101 et mutations responsables du SLD dans la voie du TGF b\u00eata<\/a><\/strong><\/li><\/ul><\/div>\n\t\t\t\t\t<\/div><div class=\"eael-accordion-list\">\n\t\t\t\t\t<div id=\"autres-associations-des-patients\" class=\"elementor-tab-title eael-accordion-header\" tabindex=\"0\" data-tab=\"8\" aria-controls=\"elementor-tab-content-9338\"><span class=\"eael-advanced-accordion-icon-closed\"><\/span><span class=\"eael-advanced-accordion-icon-opened\"><\/span><span class=\"eael-accordion-tab-title\">Autres associations des patients<\/span><i aria-hidden=\"true\" class=\"fa-toggle fas fa-plus\"><\/i><\/div><div id=\"elementor-tab-content-9338\" class=\"eael-accordion-content clearfix\" data-tab=\"8\" aria-labelledby=\"autres-associations-des-patients\"><ol><li><strong><a href=\"https:\/\/www.orpha.net\/consor\/cgi-bin\/SupportGroup_Search.php?lng=EN&amp;type_list=SupportGroups_Search_Simple&amp;data_id=10799&amp;Disease(s)\/group%20of%20diseases=Loeys-Dietz-syndrome&amp;title=Loeys-Dietz%20syndrome&amp;search=SupportGroup_Search_Simple&amp;ChdId=10799&amp;SupportGroup_SupportGroup_Search_diseaseGroup=loeys-dietz-syndrome&amp;SupportGroup_SupportGroup_Search_diseaseType=Pat&amp;SupportGroup_SupportGroup_Search_country=NN\" target=\"_blank\" rel=\"noopener\">Orphanet Directory of Related Organisations, Worldwide<\/a><\/strong><\/li><li><strong><a href=\"https:\/\/www.loeysdietz.org\/\" target=\"_blank\" rel=\"noopener\">Loeys-Dietz Syndrome Foundation, United States of America<\/a><\/strong><\/li><li><strong><a href=\"http:\/\/www.gadacanada.ca\/\" target=\"_blank\" rel=\"noopener\">Genetic Aortic Disorders Association (GADA) Canada<\/a><\/strong><\/li><li><strong><a href=\"https:\/\/thevedsmovement.org\/\" target=\"_blank\" rel=\"noopener\"><span class=\"elementor-icon-list-text\">vEDS movement<\/span><\/a><\/strong><\/li><li><strong><a href=\"https:\/\/www.gentacalliance.org\/\" target=\"_blank\" rel=\"noopener\"><span class=\"elementor-icon-list-text\">GenTAC Alliance<\/span><\/a><\/strong><\/li><li><strong><a href=\"https:\/\/johnritterfoundation.org\/\" target=\"_blank\" rel=\"noopener\"><span class=\"elementor-icon-list-text\">The John Ritter Foundation for Aortic Health<\/span><\/a><\/strong><\/li><li><strong><a href=\"https:\/\/www.aortichope.org\/\" target=\"_blank\" rel=\"noopener\"><span class=\"elementor-icon-list-text\">Aortic Hope<\/span><\/a><\/strong><\/li><li><strong><a href=\"https:\/\/aorticdissectioncharitabletrust.org\" target=\"_blank\" rel=\"noopener\">The Aortic Dissection Charitable Trust<\/a><\/strong><\/li><li><strong><a style=\"font-size: 16px\" href=\"https:\/\/thevedsmovement.org\/research\/veds-collaborative\/\" target=\"_blank\" rel=\"noopener\"><span class=\"elementor-icon-list-text\">vEDS collaborative<\/span><\/a><\/strong><\/li><\/ol><\/div>\n\t\t\t\t\t<\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6574d99 elementor-widget elementor-widget-spacer\" data-id=\"6574d99\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-67de7c9 elementor-widget elementor-widget-text-editor\" data-id=\"67de7c9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Nous ne fournissons pas de services sociaux, m\u00e9dicaux ou de sant\u00e9 et nous ne sommes pas responsables des services m\u00e9dicaux ou autres services r\u00e9f\u00e9r\u00e9s fournis par des tiers.<\/span><\/p><p><span style=\"font-weight: 400;\">Cette page offre un aper\u00e7u de notre r\u00e9pertoire de ressources.\u00a0<\/span><span style=\"font-weight: 400;\">Si vous ne trouvez pas ce que vous cherchez, ou si vous souhaitez ajouter une ressource \u00e0 notre r\u00e9pertoire, veuillez nous contacter.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-32c277a elementor-align-center elementor-widget elementor-widget-button\" data-id=\"32c277a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/loeysdietzcanada.org\/fr\/contactez-nous\/\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-long-arrow-alt-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Contactez-nous<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-3e7514e elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"3e7514e\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-b3eac5f\" data-id=\"b3eac5f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-inner-section elementor-element elementor-element-56420f9 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"56420f9\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-9d4df18\" data-id=\"9d4df18\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-63ae422 elementor-widget elementor-widget-heading\" data-id=\"63ae422\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">La ligne d'assistance t\u00e9l\u00e9phonique pour le SLD offre un soutien par les pairs, des r\u00e9ponses et un acc\u00e8s aux ressources.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-df0cb45 elementor-widget elementor-widget-spacer\" data-id=\"df0cb45\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3041acd elementor-widget elementor-widget-heading\" data-id=\"3041acd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">1-888-LDS-FCAN<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-1a7697d\" data-id=\"1a7697d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-489e281 elementor-widget elementor-widget-text-editor\" data-id=\"489e281\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Qu&#8217;est-ce que le soutien par les pairs ? Le soutien par les pairs est <strong>un type de soutien apport\u00e9 par une personne qui a v\u00e9cu une exp\u00e9rience similaire.\u00a0<\/strong><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2169efb elementor-widget elementor-widget-text-editor\" data-id=\"2169efb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Notre soutien par les pairs est assur\u00e9 par Lindsay, un membre de la Fondation ayant re\u00e7u une formation de soutien par les pairs, ayant le syndrome de Loeys-Dietz dans sa famille et ayant l&#8217;exp\u00e9rience du diagnostic, du traitement m\u00e9dical et des complications, ainsi que de la prise en charge.<\/span><\/p><p><span style=\"font-weight: 400;\">Toutes les conversations sont confidentielles. Nous nous engageons \u00e0 prot\u00e9ger votre vie priv\u00e9e et vos renseignements personnels. Vous trouverez tous les d\u00e9tails dans notre\u00a0<\/span><a href=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/09\/LDSFC-Consent-re_-Personal-Information_02-09-2022_FR.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">formulaire de consentement<\/span><\/a><span style=\"font-weight: 400;\">\u00a0et\u00a0<\/span><a href=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2026\/03\/2026-02-28_BIL_Politique-de-protection_Privacy_Policy.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">politique de protection des renseignements personnels<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d44fcc7 elementor-align-left elementor-widget elementor-widget-button\" data-id=\"d44fcc7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/loeysdietzcanada.org\/fr\/contactez-nous\/\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-long-arrow-alt-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Contactez-nous<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-d10371c elementor-widget elementor-widget-spacer\" data-id=\"d10371c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-inner-section elementor-element elementor-element-3a444817 elementor-section-content-middle elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"3a444817\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-7d76b6c2\" data-id=\"7d76b6c2\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-bf3c55c elementor-widget elementor-widget-icon-box\" data-id=\"bf3c55c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-box-wrapper\">\n\n\t\t\t\n\t\t\t\t\t\t<div class=\"elementor-icon-box-content\">\n\n\t\t\t\t\t\t\t\t\t<h3 class=\"elementor-icon-box-title\">\n\t\t\t\t\t\t<span  >\n\t\t\t\t\t\t\tAvis de soutien en situation de crise\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-72d62884 elementor-widget elementor-widget-text-editor\" data-id=\"72d62884\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Si vous vivez une urgence, veuillez appeler imm\u00e9diatement le 911.<br \/><br \/>Si vous ou une personne que vous connaissez traversez une d\u00e9tresse \u00e9motionnelle ou une crise suicidaire, appelez ou envoyez un SMS au 988 (Ligne d\u2019aide Suicide et Crise), disponible 24 h\/24 et 7 j\/7.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-1afb601 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1afb601\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-d5ec7ca\" data-id=\"d5ec7ca\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-inner-section elementor-element elementor-element-b62288d elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b62288d\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-f1be3fb\" data-id=\"f1be3fb\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c7f8051 elementor-widget elementor-widget-heading\" data-id=\"c7f8051\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Le r\u00e9pertoire de ressources offre des informations sur les ressources pour le SLD.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-74d557b\" data-id=\"74d557b\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3ae5ff6 elementor-widget elementor-widget-text-editor\" data-id=\"3ae5ff6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Notre r\u00e9pertoire de ressources propose <strong>des informations sur des ressources\u00a0pour vous aider, vous et votre famille, \u00e0 bien vivre avec le syndrome de Loeys-Dietz.<\/strong><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a66877f elementor-widget elementor-widget-text-editor\" data-id=\"a66877f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Nous fournissons des informations sur les ressources m\u00e9dicales, param\u00e9dicales, psychologiques, financi\u00e8res, sociales, \u00e9ducatives, juridiques et des tests de g\u00e9n\u00e9tiques, ainsi que des informations sur d\u2019autres organisations.\u00a0<\/span><\/p><p><span style=\"font-weight: 400;\">En outre, le groupe Facebook priv\u00e9, <\/span><a href=\"https:\/\/www.facebook.com\/groups\/LoeysDietz\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">Loeys-Dietz Families<\/span><\/a><span style=\"font-weight: 400;\">, g\u00e9r\u00e9 par la communaut\u00e9, est un endroit id\u00e9al o\u00f9 les patients et leurs proches peuvent partager leur exp\u00e9rience et retrouver de l\u2019appui \u00e9motionnel.<\/span><\/p><p><span style=\"font-weight: 400;\">Cette page offre un aper\u00e7u de notre r\u00e9pertoire de ressources.\u00a0<\/span><span style=\"font-weight: 400;\">Si vous ne trouvez pas ce que vous cherchez, ou si vous souhaitez ajouter une ressource \u00e0 notre r\u00e9pertoire, veuillez nous contacter.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-03a3a5d elementor-align-left elementor-widget elementor-widget-button\" data-id=\"03a3a5d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/loeysdietzcanada.org\/fr\/contactez-nous\/\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-long-arrow-alt-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Contactez-nous<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-2d4705f elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2d4705f\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-bb9df29\" data-id=\"bb9df29\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-inner-section elementor-element elementor-element-47dcbe1 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"47dcbe1\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-13a6e76\" data-id=\"13a6e76\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-79c5c2b elementor-widget elementor-widget-heading\" data-id=\"79c5c2b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Les groupes de soutien par les pairs offrent un espace s\u00fbr pour partager des exp\u00e9riences et obtenir du soutien.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9f6b30e elementor-widget elementor-widget-spacer\" data-id=\"9f6b30e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-6d083ec\" data-id=\"6d083ec\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-26170a14 elementor-widget elementor-widget-text-editor\" data-id=\"26170a14\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<span style=\"font-weight: 400;\">Vivre avec une maladie rare, telle que le syndrome de Loeys-Dietz, peut pr\u00e9senter des d\u00e9fis importants, tant sur les plans physique que psychologique. Les avantages des groupes de soutien par les pairs pour les personnes vivant avec des maladies rares comprennent le contact social, le soutien affectif, le partage des connaissances et l&#8217;autonomisation.<\/span>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-402e385 elementor-align-left elementor-widget elementor-widget-button\" data-id=\"402e385\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/loeysdietzcanada.org\/fr\/groupes-de-soutien-par-les-pairs\/\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-long-arrow-alt-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Lire les avantages des groupes de soutien par les pairs<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-dcda911 elementor-widget elementor-widget-spacer\" data-id=\"dcda911\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Trouver de l&#8217;aide Abonnez-vous \u00e0 notre bulletin Nous sommes l\u00e0 pour vous, pour que vous ne soyez pas seul face \u00e0 vos soucis. La Fondation soutient les patients, les familles [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":1814,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-1817","page","type-page","status-publish","hentry"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages\/1817","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/comments?post=1817"}],"version-history":[{"count":133,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages\/1817\/revisions"}],"predecessor-version":[{"id":9787,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages\/1817\/revisions\/9787"}],"up":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages\/1814"}],"wp:attachment":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/media?parent=1817"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}