{"id":1788,"date":"2022-09-01T17:38:40","date_gmt":"2022-09-01T21:38:40","guid":{"rendered":"https:\/\/loeysdietzcanada.org\/?page_id=1788"},"modified":"2026-03-21T14:18:28","modified_gmt":"2026-03-21T18:18:28","slug":"nos-benevoles","status":"publish","type":"page","link":"https:\/\/loeysdietzcanada.org\/fr\/s-impliquer\/nos-benevoles\/","title":{"rendered":"Nos b\u00e9n\u00e9voles"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"1788\" class=\"elementor elementor-1788 elementor-727\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-4387367 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"4387367\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-243eaa7\" data-id=\"243eaa7\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5f88d3d elementor-widget elementor-widget-heading\" data-id=\"5f88d3d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Nos b\u00e9n\u00e9voles\n<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-a830fa7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"a830fa7\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-0744046\" data-id=\"0744046\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-fda2b80 elementor-widget elementor-widget-spacer\" data-id=\"fda2b80\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d48082e elementor-widget elementor-widget-image\" data-id=\"d48082e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1024\" height=\"683\" src=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/09\/Volunteers-Team-Photo_Final-1-1024x683.jpg\" class=\"attachment-large size-large wp-image-1629\" alt=\"\" srcset=\"https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/09\/Volunteers-Team-Photo_Final-1-1024x683.jpg 1024w, https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/09\/Volunteers-Team-Photo_Final-1-300x200.jpg 300w, https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/09\/Volunteers-Team-Photo_Final-1-768x512.jpg 768w, https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/09\/Volunteers-Team-Photo_Final-1-1536x1024.jpg 1536w, https:\/\/loeysdietzcanada.org\/wp-content\/uploads\/2022\/09\/Volunteers-Team-Photo_Final-1.jpg 1620w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-48ce4c1 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"48ce4c1\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-fb503e5\" data-id=\"fb503e5\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-895c5a7 elementor-widget__width-auto elementor-widget elementor-widget-heading\" data-id=\"895c5a7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Pourquoi devenir b\u00e9n\u00e9vole ? <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-5cbdeff\" data-id=\"5cbdeff\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c997db3 elementor-widget elementor-widget-text-editor\" data-id=\"c997db3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">C&#8217;est l&#8217;occasion id\u00e9ale de faire une diff\u00e9rence dans la communaut\u00e9 du syndrome de Loeys-Dietz.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fafc31a elementor-widget elementor-widget-text-editor\" data-id=\"fafc31a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Vous avez du temps libre ou des comp\u00e9tences particuli\u00e8res que vous aimeriez partager ? Quelle que soit l&#8217;ampleur de votre contribution, nous vous en sommes toujours reconnaissants.\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-3faf023 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"3faf023\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-abd5962\" data-id=\"abd5962\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-73343f8 elementor-widget elementor-widget-spacer\" data-id=\"73343f8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-11b3cc1 elementor-widget elementor-widget-heading\" data-id=\"11b3cc1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Voici quelques fa\u00e7ons de devenir b\u00e9n\u00e9vole :<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-997b4cf elementor-widget__width-auto elementor-widget elementor-widget-text-editor\" data-id=\"997b4cf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Lancez une <\/span><a href=\"https:\/\/loeysdietzcanada.org\/fr\/lancer-une-collecte-de-fonds\/\" target=\"_blank\" rel=\"noopener\"><b>collecte de fonds<\/b><\/a> <span style=\"font-weight: 400;\">et contribuez \u00e0 financer notre mission.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Cataloguez des recherches<\/b><span style=\"font-weight: 400;\"> pour notre <a href=\"https:\/\/loeysdietzcanada.org\/fr\/le-syndrome-de-loeys-dietz-et-les-chercheurs\/\" target=\"_blank\" rel=\"noopener\">outil d&#8217;inventaire mondial de recherche (OIMR)<\/a><\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Devenez un <\/span><b>coach de collecte de fonds<\/b><span style=\"font-weight: 400;\"> et partagez vos outils, conseils et astuces de collecte de fonds.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Soyez un <\/span><b>ambassadeur local<\/b><span style=\"font-weight: 400;\"> de la Fondation afin de sensibiliser sur le SLD lors de conf\u00e9rences et de r\u00e9unions.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Soyez un contributeur \u00e0 la <\/span><b>r\u00e9daction des bulletins d&#8217;information<\/b><span style=\"font-weight: 400;\"> afin de partager les derni\u00e8res informations sur la recherche, l&#8217;\u00e9ducation et le soutien aux SLD.\u00a0<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Soyez un <\/span><b>correcteur<\/b><span style=\"font-weight: 400;\"> et aidez-nous \u00e0 \u00e9viter les fautes d&#8217;orthographe et de grammaire.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Soyez un <\/span><b>traducteur<\/b><span style=\"font-weight: 400;\"> et aidez-nous \u00e0 atteindre le plus grand nombre de communaut\u00e9s possibles.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Soyez un <\/span><b>journaliste<\/b><span style=\"font-weight: 400;\"> et sensibilisez sur nos \u00e9v\u00e9nements, nos activit\u00e9s et les champions de la communaut\u00e9 SLD.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Soyez un <\/span><b>h\u00e9ros du soutien <\/b><span style=\"font-weight: 400;\">et guidez les autres dans leur parcours avec le SLD.<\/span><\/li><\/ul><p><span style=\"font-weight: 400;\">Si vous ou quelqu&#8217;un de votre entourage souhaitez devenir <\/span><b>b\u00e9n\u00e9vole de la Fondation<\/b><span style=\"font-weight: 400;\">, contactez-nous d\u00e8s aujourd&#8217;hui !<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c6668ce elementor-widget-mobile__width-inherit elementor-align-center elementor-widget elementor-widget-button\" data-id=\"c6668ce\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/loeysdietzcanada.org\/fr\/contactez-nous\/\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-long-arrow-alt-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">devenir b\u00e9n\u00e9vole <\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6f6b8e9 elementor-widget elementor-widget-spacer\" data-id=\"6f6b8e9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-bb7ebc4 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"bb7ebc4\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-0bd5d61\" data-id=\"0bd5d61\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7cc0d44 elementor-widget elementor-widget-spacer\" data-id=\"7cc0d44\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-14047a1 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"14047a1\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-eeb747e\" data-id=\"eeb747e\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-33688ad elementor-widget elementor-widget-heading\" data-id=\"33688ad\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Nos b\u00e9n\u00e9voles<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-451223b elementor-widget elementor-widget-text-editor\" data-id=\"451223b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Du fond du c\u0153ur, merci \u00e0 tous nos formidables b\u00e9n\u00e9voles ! Rencontrez quelques-uns de nos b\u00e9n\u00e9voles :<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-5fc6e72 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"5fc6e72\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-8387810\" data-id=\"8387810\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5f11eec elementor-widget elementor-widget-image-box\" data-id=\"5f11eec\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><div class=\"elementor-image-box-content\"><h3 class=\"elementor-image-box-title\">Julie<\/h3><p class=\"elementor-image-box-description\">\u00ab J'ai saut\u00e9 sur l'occasion de devenir b\u00e9n\u00e9vole, car ma fille Emma a \u00e9t\u00e9 diagnostiqu\u00e9e avec le SLD \u00e0 l'\u00e2ge de 8 ans par le Dr Dietz. J'ai ador\u00e9 l'id\u00e9e de pouvoir redonner \u00e0 la Fondation.\n\nDepuis janvier 2020, j'ai rassembl\u00e9 des centaines d'articles relatifs au SLD pour la base de donn\u00e9es de recherche OMIR. Ce fut un plaisir de la voir se d\u00e9velopper pour inclure des recherches suppl\u00e9mentaires qui b\u00e9n\u00e9ficieront aux personnes vivant avec le SLD. \u00bb\n<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-2e5383e\" data-id=\"2e5383e\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c4276ee elementor-widget elementor-widget-image-box\" data-id=\"c4276ee\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><div class=\"elementor-image-box-content\"><h3 class=\"elementor-image-box-title\">Paul<\/h3><p class=\"elementor-image-box-description\">\u00ab J'ai contact\u00e9 la Fondation \u00e0 plusieurs reprises, pour moi-m\u00eame et pour ma famille, et j'ai pu constater tout de suite la passion de l'\u00e9quipe et sa volont\u00e9 de soutenir la communaut\u00e9. \nJ'ai eu le plaisir de travailler avec la Fondation et je suis actuellement b\u00e9n\u00e9vole en aidant \u00e0 conserver leur r\u00e9pertoire de ressources pertinentes pour les SLD. \u00bb<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-ac4b83d\" data-id=\"ac4b83d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-41bc589 elementor-widget elementor-widget-image-box\" data-id=\"41bc589\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><div class=\"elementor-image-box-content\"><h3 class=\"elementor-image-box-title\">Emma<\/h3><p class=\"elementor-image-box-description\">\u00ab Je suis atteinte du SLD et j'ai voulu faire du b\u00e9n\u00e9volat pour la Fondation afin d'en savoir plus sur le SLD et la fa\u00e7on dont la recherche est collect\u00e9e. Depuis avril 2021, je trouve et saisis les coordonn\u00e9es des chercheurs afin que la Fondation dispose d'une base de donn\u00e9es compl\u00e8te des chercheurs qui pourraient b\u00e9n\u00e9ficier de leur financement de recherche, le LEAP Impact Award. \u00bb\n<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-477ae67 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"477ae67\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-2da394a\" data-id=\"2da394a\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-523bbcf elementor-widget elementor-widget-image-box\" data-id=\"523bbcf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><div class=\"elementor-image-box-content\"><h3 class=\"elementor-image-box-title\">Heather<\/h3><p class=\"elementor-image-box-description\">\u00ab J'ai d\u00e9couvert le syndrome de Loeys-Dietz lorsque le fils de mes amis a \u00e9t\u00e9 diagnostiqu\u00e9 comme atteint de cette maladie rare. Je me suis engag\u00e9e dans la Fondation avec l'intention de faire ma part et d'aider autant que possible.\nPendant huit ans, j'ai donn\u00e9 b\u00e9n\u00e9volement de mon temps \u00e0 la Fondation dans un r\u00f4le administratif, notamment en m'occupant de toutes les responsabilit\u00e9s bancaires et du traitement de tous les dons. J'ai \u00e9galement travaill\u00e9 \u00e0 la conception et \u00e0 la distribution du mat\u00e9riel promotionnel. C'est toujours un privil\u00e8ge de faire partie de la Fondation et j'ai h\u00e2te que l'\u00e9quipe \u00e9tablisse les liens dans la prochaine \u00e8re. \u00bb<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-56de62c\" data-id=\"56de62c\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3464867 elementor-widget elementor-widget-image-box\" data-id=\"3464867\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><div class=\"elementor-image-box-content\"><h3 class=\"elementor-image-box-title\">Sally<\/h3><p class=\"elementor-image-box-description\">\u00ab En tant qu\u2019une personne int\u00e9ress\u00e9e pour le conseil en g\u00e9n\u00e9tique, je suis passionn\u00e9e d\u2019aider les personnes atteintes de maladies rares comme le syndrome de Loeys-Dietz. Je suis fi\u00e8re d'\u00eatre b\u00e9n\u00e9vole pour la Fondation. J'ai r\u00e9dig\u00e9 des contenus \u00e9ducatifs, cr\u00e9\u00e9 un r\u00e9pertoire de ressources li\u00e9es au SLD, et je continue \u00e0 trouver de nouvelles ressources et \u00e0 apprendre comment les patients peuvent naviguer au mieux dans le syst\u00e8me de sant\u00e9 Canadien. \u00bb\n\n<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-82f93a7\" data-id=\"82f93a7\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6b98504 elementor-widget elementor-widget-image-box\" data-id=\"6b98504\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><div class=\"elementor-image-box-content\"><h3 class=\"elementor-image-box-title\">Amiel<\/h3><p class=\"elementor-image-box-description\">\u00ab Apr\u00e8s avoir \u00e9t\u00e9 officiellement diagnostiqu\u00e9 avec le SLD (variation SMAD-3) en octobre 2021 et avoir d\u00fb reporter ma poursuite d'\u00e9tudes sup\u00e9rieures, je savais que ma vie serait remplie de nouveaux d\u00e9fis. \nAu moment du diagnostic, je me souviens d'un sentiment \u00e9crasant d'anxi\u00e9t\u00e9, de stress et de peur, et j'aurais aim\u00e9 avoir quelqu'un \u00e0 qui parler qui puisse comprendre mon exp\u00e9rience personnelle du SLD. C'est pourquoi, lorsqu'on m'a pr\u00e9sent\u00e9 la Fondation en mai 2022, j'ai lanc\u00e9 l'id\u00e9e d'une nouvelle initiative de soutien (qui sera bient\u00f4t annonc\u00e9e !), destin\u00e9e aux Canadiens atteints de SLD.\nJe suis actuellement b\u00e9n\u00e9vole aupr\u00e8s de la Fondation pour veiller \u00e0 ce que les patients atteints de SLD disposent de ressources, de connaissances et d'un soutien g\u00e9n\u00e9ral suffisants dans leur parcours - du diagnostic aux difficult\u00e9s quotidiennes. \u00bb\n<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-fdc9b12 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"fdc9b12\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-ef44ef4\" data-id=\"ef44ef4\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-68c2ca4 elementor-widget elementor-widget-image-box\" data-id=\"68c2ca4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><div class=\"elementor-image-box-content\"><h3 class=\"elementor-image-box-title\">Alex<\/h3><p class=\"elementor-image-box-description\">\u00ab \u00c0 diff\u00e9rents moments au cours de la derni\u00e8re d\u00e9cennie, j'ai \u00e9t\u00e9 responsable des bulletins d'information, des m\u00e9dias sociaux, des traductions, des communications, des relations communautaires, des b\u00e9n\u00e9voles, du soutien aux collectes de fonds, de l'\u00e9ducation communautaire et du d\u00e9veloppement des ressources. J'ai \u00e9galement particip\u00e9 \u00e0 la reconnaissance des donateurs, \u00e0 l'\u00e9ducation des professionnels de la sant\u00e9, \u00e0 l'organisation d'\u00e9v\u00e9nements, \u00e0 la collecte de fonds pour la fondation et au changement de marque de la fondation. \u00bb<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-e6670d5\" data-id=\"e6670d5\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-90c480b elementor-widget elementor-widget-image-box\" data-id=\"90c480b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><div class=\"elementor-image-box-content\"><h3 class=\"elementor-image-box-title\">Lukas<\/h3><p class=\"elementor-image-box-description\">\u00ab Faire du b\u00e9n\u00e9volat et faire \u00e9quipe avec la Fondation \u00e0 diff\u00e9rents titres est gratifiant \u00e0 deux \u00e9gards. D'une part, j'ai l'occasion de me plonger r\u00e9guli\u00e8rement dans de nouveaux projets et d\u00e9fis pour tester mes comp\u00e9tences, apprendre de nouvelles techniques et acqu\u00e9rir de l'exp\u00e9rience en r\u00e9solvant des probl\u00e8mes de mani\u00e8re cr\u00e9ative. Mais ce qui est encore plus important, c'est la possibilit\u00e9 de contribuer \u00e0 sensibiliser la communaut\u00e9 au syndrome de Loeys-Dietz, en particulier pour soutenir des amis de longue date touch\u00e9s par cette maladie. Je participe actuellement \u00e0 des projets sp\u00e9ciaux au sein de l'\u00e9quipe de marketing et de communication et j'ai d\u00e9j\u00e0 travaill\u00e9 dans les domaines de la strat\u00e9gie de marque, de l'administration, de la collecte de fonds et de la strat\u00e9gie. \u00bb\n<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-b37e209\" data-id=\"b37e209\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3e548d0 elementor-widget elementor-widget-image-box\" data-id=\"3e548d0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><div class=\"elementor-image-box-content\"><h3 class=\"elementor-image-box-title\">Chantal<\/h3><p class=\"elementor-image-box-description\">\u00ab Je suis reconnaissante pour cette exp\u00e9rience de volontariat qui me donne l'occasion de passer en revue et d'analyser la litt\u00e9rature scientifique relative au syndrome de Loeys-Dietz. En tant que scientifique travaillant dans le domaine des maladies rares, je suis passionn\u00e9e par la science, la recherche clinique et l'aide aux personnes atteintes de maladies rares. Cette opportunit\u00e9 est une grande exp\u00e9rience d'apprentissage pour moi et j'ai bon espoir d'avoir un impact positif sur les personnes et les familles qui vivent avec le SLD. \u00bb\n<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-2c5fbff elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2c5fbff\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-c679e64\" data-id=\"c679e64\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5a2c57b elementor-widget elementor-widget-spacer\" data-id=\"5a2c57b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Nos b\u00e9n\u00e9voles Pourquoi devenir b\u00e9n\u00e9vole ? C&#8217;est l&#8217;occasion id\u00e9ale de faire une diff\u00e9rence dans la communaut\u00e9 du syndrome de Loeys-Dietz. Vous avez du temps libre ou des comp\u00e9tences particuli\u00e8res que [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":1778,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"default","header-above-stick-meta":"","header-main-stick-meta":"on","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-1788","page","type-page","status-publish","hentry"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages\/1788","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/comments?post=1788"}],"version-history":[{"count":31,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages\/1788\/revisions"}],"predecessor-version":[{"id":9862,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages\/1788\/revisions\/9862"}],"up":[{"embeddable":true,"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/pages\/1778"}],"wp:attachment":[{"href":"https:\/\/loeysdietzcanada.org\/fr\/wp-json\/wp\/v2\/media?parent=1788"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}