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X-WR-CALNAME:Loeys-Dietz Syndrome Foundation Canada
X-ORIGINAL-URL:https://loeysdietzcanada.org
X-WR-CALDESC:Events for Loeys-Dietz Syndrome Foundation Canada
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DTSTART;TZID=America/Toronto:20260319T190000
DTEND;TZID=America/Toronto:20260319T203000
DTSTAMP:20260223T175822Z
CREATED:20260223T175822Z
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UID:10000035-1773946800-1773952200@loeysdietzcanada.org
SUMMARY:People's Perspectives: Living with Loeys-Dietz Syndrome
DESCRIPTION:For the first time\, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk about LDS from those with lived experience. Join four community members – two from the United States and two from Canada – for this dynamic moderated discussion. Registration is free but required. Your advance questions to brandcomms@marfan.org are most welcome! \nPlease note: registrant information will be shared with both the Canadian and U.S. Loeys-Dietz Foundations for practical considerations around this joint event. Review our privacy policies: LDSF Canada and LDSF (U.S.) \nClick here to register
URL:https://loeysdietzcanada.org/event/peoples-perspectives-living-with-loeys-dietz-syndrome/
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