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X-WR-CALNAME:Loeys-Dietz Syndrome Foundation Canada
X-ORIGINAL-URL:https://loeysdietzcanada.org
X-WR-CALDESC:Events for Loeys-Dietz Syndrome Foundation Canada
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DTSTART;VALUE=DATE:20260925
DTEND;VALUE=DATE:20260926
DTSTAMP:20260914T135411Z
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UID:10000041-1790294400-1790380799@loeysdietzcanada.org
SUMMARY:Saskatoon Patient & Family Day - Connective Tissue Disorders and Aortopathy
DESCRIPTION:Join patients\, families\, healthcare professionals\, and researchers for a Patient & Family Day dedicated to connective tissue disorders and heritable thoracic aortic disorders (HTAD)\, including Marfan syndrome\, Loeys-Dietz syndrome\, and related conditions. \nTaking place on September 25\, 2026\, at Remai Modern in Saskatoon\, this in-person event will bring together experts from a range of specialties to provide practical\, accessible information on living with and managing these conditions. \nSessions will explore genetic testing\, aortic and cardiac care\, orthopedic concerns\, 3D facial imaging\, and available patient and family resources. The day will also create an opportunity for patients and families to connect with one another\, share their experiences\, ask questions\, and learn from members of the healthcare and research community. \nThe event is presented by the Canadian Aortopathy and Connective Tissue Disorders Registry (CAN-ACT) and the Canadian Congenital and Pediatric Cardiology Research Network (CCPCRN). \nAgenda: Connective Tissue Disorders_Patient and Family Day_Program \nTo register\, please email Monique Reboe Benjamin at monique.reboebenjamin@usask.ca \nAccommodation support may be available for participants travelling from outside Saskatoon. Please feel free to contact her directly to discuss available support options.
URL:https://loeysdietzcanada.org/event/saskatoon-patient-family-day/
LOCATION:Saskatoon\, Saskatchewan\, 102 Spadina Crescent E\, Saskatoon\, SK\, Canada
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DTSTART;VALUE=DATE:20261004
DTEND;VALUE=DATE:20261008
DTSTAMP:20260702T121110Z
CREATED:20260702T121110Z
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UID:10000039-1791072000-1791417599@loeysdietzcanada.org
SUMMARY:Science in Spain
DESCRIPTION:The Marfan Foundation is collaborating with the European Society of Cardiology’s Peripheral Artery and Aortic Disease Working Group\, along with local hosts\, Drs. Arturo Evangelista and Gisela Teixidó Turà\, to present “Science in Spain.”  This joint meeting brings together: \n\nThe 12th International Symposium on Marfan\, Loeys-Dietz\, Vascular Ehlers-Danlos and Related Syndromes\n\n\nThe Genetic Aortic Network and the European Society for Cardiology Aorta and Peripheral Vascular Disease Joint Session \n\nThe meeting will take place in Barcelona\, Spain\, from October 4–7\, 2026. \nScience in Spain advances our global mission to accelerate research and innovation in genetic aortic conditions. The meeting will convene leading scientists\, clinicians\, and researchers from around the world to share the latest discoveries\, discuss clinical advances and controversies\, foster collaboration\, and explore new therapeutic approaches. This meeting has become the premier international meeting for thoracic aortic disease. The program will include two days of basic and translational research and two days focused on clinical management and registry studies. \nThe meeting welcomes scientists\, clinicians\, researchers\, students\, and postdoctoral fellows from all disciplines. Planned programming includes oral presentations\, poster sessions\, networking events\, and small-group lunches with topic experts. Travel awards will be available for students\, genetic counselors\, and postdoctoral fellows based on abstract review. \nOctober 4-5\, 2026 12th International Symposium on Marfan\, Loeys-Dietz\, Vascular Ehlers-Danlos and Related Syndromes \nOctober 6-7\, 2026 Genetic Aortic Network and the European Society for Cardiology Aorta and Peripheral Vascular Disease Joint Session
URL:https://loeysdietzcanada.org/event/science-in-spain/
LOCATION:Barcelona\, Spain\, Barcelone\, Spain
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