Medical Professionals
This list is a directory of selected Canadian health centres whose staff has expertise in Loeys-Dietz syndrome and related disorders. It may be necessary to obtain a referral in order to be treated at these centres.
If your medical team is not listed below, please forward details to info@loeysdietzcanada.org for inclusion in a future revision of this directory.
Atlantic Canada
I. IWK Health Centre
Affiliated with Dalhousie University.
5980 University Avenue #5850
Halifax, Nova-Scotia
B3K 6R8
II. Maritime Heart Centre
Connective Tissue Clinic
A multidisciplinary care clinic for patients and families affected by genetic mutations causing aneurysms and connective tissue disorders.
1796 Summer Street
Room 2102
Halifax, Nova Scotia
B3H 3A7
Phone: 902-473-1945
Fax: 902-473-2434
Quebec
III. Montreal Heart Institute
Affiliated with Université de Montréal
Cardiovascular Genetics Centre
Aorta and Connective Tissue Clinic
The clinic was the subject of a study and subsequent poster titled First 2 years of experience of an integrated multidisciplinary clinic for adults with aortopathies in a Canadian context: view it here.
5000 Bélanger Street
Montréal, Québec
H1T 1C8
Phone: 514-376-3330 x 2498
Fax: 514-593-2158
IV. The Montreal Children’s Hospital
The McGill University Health Centre
Department of Cardiology
General paediatric cardiology with an interest in aortopathies.
1001 Décarie Boulevard
Room B-RC.3219
Montreal, Québec
H4A 3J1
Phone: 514-412-4423
Fax: 514-412-4273
V. McGill University Health Centre
Aortic Clinic (for adults)
1001 Décarie Boulevard
Montréal, Québec
H4A 3J1
Phone: 514-934-1934 x 36873
Fax: 514-843-1602
Fax: 514-843-1602
VI. Shriners Hospitals for Children – Canada
(Montreal)
Orthopaedics
1003 Décarie Boulevard
Montréal, Québec
H4A 0A9
Phone: 514-842-4464 (clinic)
Toll-free: 800-237-5055
VII. CHU Sainte-Justine
The Mother-Child university health centre affiliated with Université de Montréal
Paediatric Gastroenterology
Gastroenterology, nutrition, allergic disorders, nutrition support, inflammatory bowel diseases.
3175 Côte-Sainte-Catherine Road
Montréal, Québec
H3T 1C5
Phone: 514-345-4871
VIII. CHU Sainte-Justine
The Mother-Child university health centre affiliated with Université de Montréal
Cardiovascular Genetic Clinic
3175 Côte-Sainte-Catherine Road
Montréal, Québec
H3T 1C5
Phone: 514-345-4654
Fax: 514-345-2171
Fax: 514-345-2171
IX. Quebec Heart and Lung Institute
Affiliated with the University of Laval
Thoracic Aortic Disease Clinic
2725 Ste-Foy Road
Québec, Quebec G1V 4G5
Québec, Quebec G1V 4G5
Phone: 418-656-8711 x 5612
Fax: 418-656-4833
Fax: 418-656-4833
Email: iucpq.cmat@ssss.gouv.qc.ca
Ontario
X. ST. MICHAEL’S HOSPITAL
The Aorta Program
Diagnosis and management of patients with aortic-associated connective tissue disorders.
30 Bond St.
Toronto ON
M5B 1W8
Phone: 416-864-3086
Fax: 416-864-6096
XI. The Hospital for Sick Children (SickKids)
Affiliated with the University of Toronto
Labatt Family Heart Centre
Cardiology Clinic
555 University Avenue
4th Floor, Atrium (4A)
Toronto, Ontario
M5G 1X8
Phone: 416-813-5848
Fax: 416-813-5582
Fax: 416-813-5582
Clinical and Metabolic Genetics
Diagnosis and management of children with suspected connective tissue disorders, including Loeys-Dietz and Marfan syndromes.
5550 University Avenue
Toronto, Ontario
M5G 1X8
Phone: 416-813-6390
Fax: 416-813-5345
XII. Toronto General Hospital
University Health Network
Peter Munk Cardiac Centre
Cardiology Clinic
Cardiology Clinic
585 University Avenue
Norman Urquhart Building, 5th floor
Toronto, Ontario
M5G 2N2
Phone: 416-340-5309
Toll-free: 888-846-4278 (888-UHN-HART)
Fax: 416-340-4127
Email: pmcc_acc@uhn.ca
XIII. Children’s Hospital of Eastern Ontario (CHEO)
Affiliated with the University of Ottawa
Connective Tissue Clinic
“The connective tissue clinic at CHEO accepts referrals for patients with suspected underlying heritable connective tissue disorders. We aim to diagnose and care for patients and families with Loeys-Dietz syndrome, Marfan syndrome, vascular EDS and other forms of familial thoracic aneurysms. We also see patients without a family history if they present with a significant aortic dilation before 50 years of age or if they sustained a spontaneous arterial dissection prior to age 50 in the absence of another identified etiology. Finally, we see patients with significant joint hypermobility in the presence of additional findings. Care is provided in close collaboration with the team from the Aorta Clinic of the Ottawa Heart Institute for our adult patients and with Dr. Lai and other pediatric cardiologists for our pediatric patients.”
The clinic is open to individuals of all ages, despite it being housed in a paediatric hospital.
401 Smyth Road
Ottawa, Ontario
K1H 8L1
Phone: 613-737-2275
Fax: 613-738-4822
XIV. University of Ottawa Heart Institute
Affiliated with the University of Ottawa
Aortic Clinic
40 Ruskin Street
Ottawa, Ontario
K1Y 4W7
Phone: 613-696-7237
Fax: 613-696-7302
Fax: 613-696-7302
Central Canada
XV. Children’s Hospital of Manitoba
Health Sciences Centre
Affiliated with the University of Manitoba
Children’s Heart Centre
Cardiology Clinic
Cardiology Clinic
820 Sherbrook Street
Level 4, JM-476
Winnipeg, Manitoba
R3E 0Z2
Phone: 204-787-2410
Fax: 204-787-2004
Fax: 204-787-2004
XVI. Jim Pattison Children's Hospital
Pediatric Cardiology Clinic
103 Hospital Drive
Saskatoon, Saskatchewan
S7N 0W8
Phone: 306-844-1235
Fax: 306-844-1535
Fax: 306-844-1535
Western Canada
XVII. The Heart Centre at St. Paul’s Hospital
Providence Health Care
Pacific Adult Congenital Heart (PACH) Clinic
“The PACH clinic’s multidisciplinary team of physicians, nurses, psychologists and social workers provide clinical expertise to patients 18 years and older with congenital heart disease. Individuals who are newly diagnosed with congenital heart disease and those transitioning from pediatric programs receive ongoing follow-up and care for their cardiac condition.”
1081 Burrard Street
Room 5051 (Providence Building)
Vancouver, British Columbia
V6Z 1Y6
Phone: 604-806-8520
Fax: 604-806-8800
Heritable Aortopathies Clinic (HAC)
“The Heritable Aortopathies Clinic (HAC) provides assessments, care and follow up for people with a wide range of genetic disorders that stretch or weaken the aorta (e.g. Loeys-Dietz and Marfan syndromes). The team includes doctors, nurses, a genetic counsellor and other health care professionals and specialists at St. Paul’s Hospital and Vancouver Coastal Health Authority.”
1081 Burrard Street
Room 5051 (Providence Building)
Vancouver, British Columbia
V6Z 1Y6
Phone: 604-806-8520
Fax: 604-806-8800
XVIII. Peter Lougheed Centre
Southern Alberta Adult Congenital Heart Clinic
26 Avenue NE #3500
Calgary, Alberta
T1Y 6J4
Phone: 403-943-4504
Fax: 403-291-6814
Fax: 403-291-6814
XIX. Alberta Children's Hospital
Genetic Connective Tissues Disorders Clinic
28 Oki Drive NW
Calgary, Alberta
T3B 6A8
Calgary, Alberta
T3B 6A8
Phone: 403-955-7373
Fax: 403-955-2701
Fax: 403-955-2701
XX. Stollery Children's Hospital
Pediatric Cardiology Clinic
4C2n Walter Mackenzie Centre
8440 112 Street NW
Edmonton, Alberta
T6G 2B7
8440 112 Street NW
Edmonton, Alberta
T6G 2B7
Phone: 780-407-3392
Fax: 780-407-3310
Fax: 780-407-3310
XXI. Mazankowski Alberta Heart Institute
Northern Manitoba Adult Congenital Heart Program
11220 83 Avenue NW
Room 2a5.061
Edmonton, Alberta
T6G 2B7
Edmonton, Alberta
T6G 2B7
Phone: 780-407-6552
Fax: 780-407-4546
Fax: 780-407-4546
