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Medical Professionals
This list is a directory of selected Canadian health centres whose staff has expertise in Loeys-Dietz syndrome and related disorders. It may be necessary to obtain a referral in order to be treated at these centres.
If your medical team is not listed below, please forward details to info@loeysdietzcanada.org for inclusion in a future revision of this directory.
Atlantic Canada
IWK Health Centre
Affiliated with Dalhousie University.
5850/5980, University Avenue
P.O. Box 9700
Halifax, Nova-Scotia
B3K 6R8
Maritime Heart Centre
Connective Tissue Clinic
A multidisciplinary care clinic for patients and families affected by genetic mutations causing aneurysms and connective tissue disorders.
Key contact: Dr. Gabrielle Horne (gabrielle.horne@dal.ca)
1796, Summer Street
Suite 2102
Halifax, Nova Scotia
B3H 3A7
Phone: 902-473-6815
Fax: 902-473-2434
Quebec
Montreal Heart Institute
Affiliated with Université de Montréal
Cardiovascular Genetics Centre
Aorta and Connective Tissue Clinic
The clinic was the subject of a study and subsequent poster titled First 2 years of experience of an integrated multidisciplinary clinic for adults with aortopathies in a Canadian context: view it here.
5000, Bélanger Street
Central Pavilion, First Floor
Montréal, Québec
H1T 1C8
Phone: 514-376-3330
Toll-free: 1-855-922-6387
The Montreal Children’s Hospital
The McGill University Health Centre
Department of Cardiology
General paediatric cardiology with an interest in aortopathies.
1001, Décarie Boulevard
Room B-RC.3219
Montreal, Québec
H4A 3J1
Phone: 514-412-4423
Fax: 514-412-4273
Shriners Hospitals for Children – Canada
(Montreal)
Orthopaedics
Key contact: Ms. Judy Costello, Clinical nurse specialist (jcostello@shrinenet.org)
1003, Décarie Boulevard
Montréal, Québec
H4A 3J1
Phone: 514-842-4464 (clinic)
Toll-free: 800-361-7256
CHU Sainte-Justine
The Mother-Child university health centre affiliated with Université de Montréal
Paediatric Gastroenterology
Gastroenterology, nutrition, allergic disorders, nutrition support, inflammatory bowel diseases.
Key contact: Ms. Nicole Theriault (514-345-4931, ext. 7000)
3175, Côte-Sainte-Catherine Road
6th Floor, Bloc 2
Montréal, Québec
H3R 2B9
Phone: 514-345-4871
Ontario
The Hospital for Sick Children (SickKids)
Affiliated with the University of Toronto
The Labatt Family Heart Centre
Marfan and Connective Tissue Disorders Clinic
Key Contact: Ms. Nicole Macbeth-Curtis (nicole.macbethcurtis@sickkids.ca)
555, University Avenue
4th Floor, Atrium (4A)
Toronto, Ontario
M5G 1X8
Phone: 416-813-5848
Phone: 416-813-7654 ext. 1340
Fax: 416-813-5582
Phone: 416-813-7654 ext. 1340
Fax: 416-813-5582
Clinical and Metabolic Genetics
Diagnosis and management of children with suspected connective tissue disorders, including Loeys-Dietz and Marfan syndromes.
Key contact: Laura Zahavich, Genetics counsellor (416-813-6389)
525, University Avenue
Room 940
Toronto, Ontario
M5G 1X8
Phone: 416-813-6390
Fax: 416-813-5345
Toronto General Hospital
University Health Network
Aortopathy Clinic
Key contact: Adult Cardiac Hereditary Disease Booking office (ACHD@uhn.ca)
585, University Avenue
Norman Urquhart Building, 5th floor
Toronto, Ontario
M5G 2N2
Phone: 416-340-4393
Toll-free: 888-846-4278 (888-UHN-HART)
Fax: 416-340-4127
Email: pmcc_acc@uhn.ca
Children’s Hospital of Eastern Ontario (CHEO)
Affiliated with the University of Ottawa
Connective Tissue Clinic
“The connective tissue clinic at CHEO accepts referrals for patients with suspected underlying heritable connective tissue disorders. We aim to diagnose and care for patients and families with Loeys-Dietz syndrome, Marfan syndrome, vascular EDS and other forms of familial thoracic aneurysms. We also see patients without a family history if they present with a significant aortic dilation before 50 years of age or if they sustained a spontaneous arterial dissection prior to age 50 in the absence of another identified etiology. Finally, we see patients with significant joint hypermobility in the presence of additional findings. Care is provided in close collaboration with the team from the Aorta Clinic of the Ottawa Heart Institute for our adult patients and with Dr. Lai and other pediatric cardiologists for our pediatric patients.”
The clinic is open to individuals of all ages, despite it being housed in a paediatric hospital.
401, Smyth Road
3rd Floor: clinic wC-2
Ottawa, Ontario
K1H 8L1
Phone: 613-737-2275
Fax: 613-738-4822
Central Canada
Children’s Hospital of Manitoba
Health Sciences Centre
Affiliated with the University of Manitoba
Variety Children’s Heart Centre
Pediatric cardiology, interventional cardiology, connective tissue disease, acute rheumatic fever, Kawasaki disease, pulmonary hypertension.
Key contact: Dr. Dionysios Pepelassis (dpepelassis@hsc.mb.ca)
Key contact: Ms. Pam Wiebe, nurse (pwiebe@hsc.mb.ca)
685, William Avenue
Room FE-241
Winnipeg, Manitoba
R3E 0Z2
Phone: 204-787-2410
Western Canada
The Heart Centre at St. Paul’s Hospital
Providence Health Care
Pacific Adult Congenital Heart (PACH) Clinic
“The PACH clinic’s multidisciplinary team of physicians, nurses, psychologists and social workers provide clinical expertise to patients 18 years and older with congenital heart disease. Individuals who are newly diagnosed with congenital heart disease and those transitioning from pediatric programs receive ongoing follow-up and care for their cardiac condition.”
1081, Burrard Street
Room 5051 (Providence Building)
Vancouver, British Columbia
V6Z 1Y6
Phone: 604-806-8520
Fax: 604-806-8800
Heritable Aortopathies Clinic (HAC)
“The Heritable Aortopathies Clinic (HAC) provides assessments, care and follow up for people with a wide range of genetic disorders that stretch or weaken the aorta (e.g. Loeys-Dietz and Marfan syndromes). The team includes doctors, nurses, a genetic counsellor and other health care professionals and specialists at St. Paul’s Hospital and Vancouver Coastal Health Authority.”
1081, Burrard Street
Room 5051 (Providence Building)
Vancouver, British Columbia
V6Z 1Y6
Phone: 604-806-8520
Fax: 604-806-8800
Connective Tissue Clinic & Southern Alberta Adult Congenital Heart Clinic
Peter Lougheed Centre
3500 - 26 Avenue NE
Calgary, Alberta
T1Y 6J4
Phone: 403-943-4504
