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01 Aug 2015

To mark Valentine's Day, Karen Schollhammer organized a coffee morning where she educated a group of London, England, mothers about Loeys-Dietz syndrome. Since then, Karen has participated in a mud run and a Sprint distance triathlon in London’s Hyde Park. 

But that’s not all: in August, she participated in an Olympic-distance triathlon. So far, Karen has raised a little over 2,000£ (over 3,500 Canadian dollars) for Great Ormond Street Hospital’s Inherited Cardiac Unit, which follows Loeys-Dietz pediatric patients, and has educated many people about Loeys-Dietz syndrome. And she’s not yet finished!

Well done, Karen, and thank you!

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05 Sep 2015

Excellent news for our friends in Europe and the UK! Dr. Alex Pitcher, along with other doctors in Oxford University Hospitals, and members of our community organized a "Loeys-Dietz day", similar to the one that took place in Toronto in January. Participants in the January event found the sessions to be very informative, and left feeling more empowered and confident in managing their condition. The event will take place in Oxford, in the U.K., on Saturday, September 5th, 2015 and organizers are thrilled to announce the participation of special guest speakers, Dr. Bart Loeys (Antwerp, Belgium) and Dr. Hal Dietz (Baltimore, U.S.A.)! Places are limited, but hurry, there are only a few days left to register. There is no fixed attendance fee; however, organizers do ask that you consider making a donation with your registration.

For more information, or to register today, please visit and search “Loeys-Dietz”.

Our sincere congratulations to the organizing committee!Read more

30 Nov 2018

Together with 5 teaching Universities & Hospitals,  LDSF Canada and the Genetic Aortic Disorders Association Canada (GADA), the Heritable Aortic Disorders collaborative brought a two day symposium to Toronto that can be described as nothing short of amazing! The two fully packed days were dedicated to educating and connecting healthcare professionals, patients and family members. Although this symposium was dedicated to all aortic disorders, LDS was at the forefront of most discussions.

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06 Sep 2019

The 2nd annual Heritable Aortic Disorders symposium was a resounding success with more than 180 health professionals and 40 patients and family members in attendance! This year, the HAD collaborative hosted the event at CHU Ste. Justine in Montreal, Quebec with the goal of educating and connecting healthcare professionals, foundation members, patients, and families over 2 days of presentations, workshops and networking opportunities.

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