Upcoming Events

01 Aug 2015

To mark Valentine's Day, Karen Schollhammer organized a coffee morning where she educated a group of London, England, mothers about Loeys-Dietz syndrome. Since then, Karen has participated in a mud run and a Sprint distance triathlon in London’s Hyde Park. 

But that’s not all: in August, she will participate in an Olympic-distance triathlon. So far, Karen has raised a little over 2,000£ (over 3,500 Canadian dollars) for Great Ormond Street Hospital’s Inherited Cardiac Unit, which follows Loeys-Dietz pediatric patients, and has educated many people about Loeys-Dietz syndrome. And she’s not yet finished!

Well done, Karen, and thank you!

 Read more

05 Sep 2015

Excellent news for our friends in Europe and the UK! Dr. Alex Pitcher, along with other doctors in Oxford University Hospitals, and members of our community are organizing a "Loeys-Dietz day", similar to the one that took place in Toronto in January. Participants in the January event found the sessions to be very informative, and left feeling more empowered and confident in managing their condition. The event will take place in Oxford, in the U.K., on Saturday, September 5th, and organizers are thrilled to announce the participation of special guest speakers, Dr. Bart Loeys (Antwerp, Belgium) and Dr. Hal Dietz (Baltimore, U.S.A.)! Places are limited, but hurry, there are only a few days left to register. There is no fixed attendance fee; however, organizers do ask that you consider making a donation with your registration.

For more information, or to register today, please visit www.eventbrite.co.uk and search “Loeys-Dietz”.

Our sincere congratulations to the organizing committee!

Journée « Loeys-Dietz » à Oxford

Nous avons d'excellentes nouvelles pour nos amis britanniques et européens! Le Dr Alex Pitcher, en compagnie d'autres médecins du Oxford University Hospitals, et des membres de notre communauté, organise une « Journée Loeys-Dietz », semblable à celle ayant...Read more