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Support Centre

We are here for you, so that you do not face your worries alone. 


Our Support Centre is dedicated to supporting patients, families, and advocates in the Loeys-Dietz syndrome community. We offer peer support and resources for living well with LDS. 


Contact us today at 1-888-LDS-FCAN or  


What is peer support?


Peer support is a type of support from someone who has lived a similar experience. Our peer support is provided by Lindsay, a member of the Foundation with peer support training, Loeys-Dietz syndrome in her family, and experience with diagnosis, medical treatment and complications, as well as caregiving.


All conversations are confidential. We are committed to protecting your privacy and personal information. Find the details in our consent form and privacy policy.


What resources do we offer?


Our Resource Directory offers resources to help you and your family live well with Loeys-Dietz syndrome. 

We provide medical, paramedical, psychological, financial, social, educational, legal, and genetic testing resources, as well as information about clinical trials and other organizations.


For a preview of our resources, visit our Resource Directory.

For full access to our resources, contact us today at 1-888-LDS-FCAN or